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Sexual Health Symptoms and Lichen Sclerosus

Sexual Health Symptoms and Lichen Sclerosus


This video on sexual health symptoms and lichen sclerosus is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan.


For today’s video, I review different sexual health-related symptoms that *can* occur if you have lichen sclerosus. Be sure to like this video and subscribe to our channel for more educational LS content. 

This video is evidence-based; I draw on the medical literature to share what you need to know about sexual health and lichen sclerosus. Importantly, what I share is my interpretation of the science and data.

Important Links

Get my FREE eBook on vulvar lichen sclerosus at www.lostlabia.com/lsebook

Want to work with me? I offer 1:1 lichen sclerosus peer support calls.

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Timestamps for Sexual Health Symptoms and Lichen Sclerosus

0:00 – Introduction of sexual health symptoms and lichen sclerosus

2:45 – Pain with sex

6:38 – How common is pain with sex and LS

8:24 – Quality of life, LS, and pain with sex

12:58 – Loss of clitoral sensation

18:45 – Tearing with sex

25:08 – Overactive pelvic floor

29:08 – Libido issues

33:58 – Summary and outro

Videos Mentioned

If you experience pain with sex, be sure to watch this video I did with Dr. Chauhan on overactive pelvic floor, painful sex, and lichen sclerosus.

My diagnosis story

LS Terminology: Fusing and Resorption

Does LS Thin or Thicken the Skin

Learn about how I unfused my clitoris (written by Kathy) here (video to come).

Learn about how pelvic floor PT can help with chronic pain here.

How to have better sex with LS.

Reach Out to Me

Email: jaclyn@lostlabia.com & @thelostlabiachronicles on Instagram, Facebook, & TikTok


  • Mary

    I have all the symptoms you have talked about I was going to hospital I’m completely fused. I was discharged from the hospital and cope on my own now as they’re really not interested

  • Judy

    Hi Jaclyn
    I’m 66 and have all the symptoms except pelvic floor issues. Lol where were you 35 years ago. 😆 Diagnosed at 30 and told, sorry, there’s no cure.
    Thank you for shedding a light on these subjects for women, like me, who didn’t know where to go for help. I learn something new with each video. My LS journey would have been so different if I’d had someone like you in my corner back then.
    Thank you so much

    • Jaclyn Lanthier

      Hi, Judy.

      Yes, this is so common for folks to just get “there’s no cure, here’s some steroids”, and no education or information and resources about sexual health. We are trying to find folks earlier now so they can get all of the information and education and support upfront.

  • Caroll

    I am using a steroid ointment since 2019 and now I will take more time to apply.
    I also have a swollen gland near my vagina and was told by my family doctor that it may not go away. I am concerned about it.
    Can u tell me which specialist to see for swollen glands?

    • Jaclyn Lanthier

      Hi, Caroll. Thanks for reading and commenting. Unfortunately, I’m not a doctor and cannot diagnose, treat, or give medical advice, but it could be a Bartholin’s cyst. You could see a gynecologist or dermatologist for this. They should be able to let you know what is going on. With love,

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