What is a Vulvar Lichen Sclerosus Flare Up?

What is a Vulvar Lichen Sclerosus Flare Up?

Introduction For today’s video, we are going to chat about flares and vulvar lichen sclerosus (VLS). Specifically, we define what a VLS flare is and provide examples. We also discuss different things that can trigger a flare. In our next video, we will talk about the treatment and management of VLS flares. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. https://www.youtube.com/watch?v=zw2bDDOojrw Important Links Get my FREE eBook on vulvar lichen sclerosus here Want to work with me (Jaclyn)? I offer 1:1 lichen sclerosus peer support calls. Learn more and book a call here.…
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How to Get Vulvar Lichen Sclerosus into Remission

How to Get Vulvar Lichen Sclerosus into Remission

Introduction For today’s video, we are going to chat about remission and vulvar lichen sclerosus (VLS). Specifically, we are going to talk about how to get vulvar lichen sclerosus into remission. We share what the science says on this topic, as well as other adjunct therapies and add-ons that can help you achieve remission. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. https://www.youtube.com/watch?v=W5ZgPQKnQDU Important Links Get my FREE eBook on vulvar lichen sclerosus here Want to work with me (Jaclyn)? I offer 1:1 lichen sclerosus peer support calls. Learn more and book a…
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Unraveling the Hormone and Microbiome Puzzle in Lichen Sclerosus

Unraveling the Hormone and Microbiome Puzzle in Lichen Sclerosus

Hey friend! I recently had the pleasure of chatting with Dr. Melissa Mauskar, a true rockstar in the world of vulvar health research. She illuminated some fascinating new findings about the hormone and microbiome landscapes in lichen sclerosus. I walked away feeling so hopeful about how this work might improve patient care down the road! 🙌 Dr. Mauskar broke down the key takeaways in an accessible way - no need for a medical degree to follow along! Whether you have lichen sclerosus yourself or treat patients, I think you'll find this chat insightful. A few highlights that caught my ear: The role of progesterone and other hormones in LS skin How treatment impacts microbiome diversity Exciting areas for future research. Dr. Mauskar's passion for patient-centered care and collaboration across specialties to move the needle is inspiring. She helped me understand how this study into hormones and the vulvar microbiome in…
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Remission and Vulvar Lichen Sclerosus

Remission and Vulvar Lichen Sclerosus

Introduction For today’s video, we are going to chat about remission and vulvar lichen sclerosus (VLS). Specifically, we define what clinical remission with VLS means, how it is diagnosed, and whether you can still have symptoms in remission. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. https://www.youtube.com/watch?v=4gPINe2d9mc Important Links Get my FREE eBook on vulvar lichen sclerosus here Want to work with me (Jaclyn)? I offer 1:1 lichen sclerosus peer support calls. Learn more and book a call here. Sign up for LSSN's FREE virtual support meetups Subscribe to LSSN's newsletter here Subscribe…
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Vulvar Lichen Sclerosus in Darker Skin Types

Vulvar Lichen Sclerosus in Darker Skin Types

Introduction In today's video, we are joined by Dr. Akinshemoyin Vaughn to discuss vulvar lichen sclerosus (VLS) in darker skin types. We talk about misdiagnoses, how VLS presents in folks of darker skin types, and how lichen simplex chronicus and erosive lichen planus present in folks of darker skin types. We chat about so much, including cultural and ethnic backgrounds and how they influence diagnosis, treatment, and management, taboo & stigma in certain communities, and so much more. Be sure to like this video and subscribe to our channel for more educational LS content. Disclaimer This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. Importantly, what I share is my interpretation of the science. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a…
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Non-Ablative Laser for Lichen Sclerosus

Non-Ablative Laser for Lichen Sclerosus

Introduction In our last video, I discussed ablative laser and addressed the question of whether it was an effective treatment for lichen sclerosus. I noted, in that video, that there are different types of laser, so, for today's video, we are going to look at non-ablative laser for lichen sclerosus and whether they are an effective treatment option for LS. Be sure to like this video and subscribe to our channel for more educational LS content. Disclaimer This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. Importantly what I share is my interpretation of the science. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate. https://www.youtube.com/watch?v=noTt0b1imCo Important Links Get my FREE eBook on vulvar lichen sclerosus here Want to…
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Ablative Laser for Lichen Sclerosus: Is It an Effective Treatment?

Ablative Laser for Lichen Sclerosus: Is It an Effective Treatment?

Introduction For today’s video, I am going to be discussing laser therapy for lichen sclerosus. Specifically, I'm going to look at an ablative laser for lichen sclerosus. In our next video, I will review non-ablative lasers for lichen sclerosus, because there are different types of lasers, and they do not all work the same. In this video, I explain what ablative laser therapy is, how it works, what to expect, how to prepare, cost, and frequency. Finally, I share what the science says about ablative laser and whether it is an effective treatment for lichen sclerosus. Disclaimer This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. Importantly what I share is my interpretation of the science. If this video was helpful to you, we’d love your support so we can continue providing important education like this.…
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Fat Grafting for Lichen Sclerosus and Sexual Health

Fat Grafting for Lichen Sclerosus and Sexual Health

Introduction For today’s video, I am joined by the wonderful Dr. Aurora Almadori. Dr. Almadori talks to us about the potential for fat grafting to improve skin texture and sexual pain. We discuss what steroids can and cannot do, sexual health and lichen sclerosus, the difference between stem cells, PRP, and fat grafting. Then we dive into current research that is investigating the potential for fat grafting to improve skin texture and sexual pain. We also discuss the question of if fat grafting can increase the side of our labia minora and if reconstructive surgery is recommended for folks with vulvar lichen sclerosus. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate. *Disclaimer: This video is for…
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10 Tips for Managing Itch with Lichen Sclerosus

10 Tips for Managing Itch with Lichen Sclerosus

Introduction Not everyone has itch as a symptom of lichen sclerosus. However, if it is a symptom of yours, you know how absolutely miserable this can be. For today’s video, I share 10 tips for managing itch with lichen sclerosus. Let us know in the comments what your favorite tips are. To be transparent, this post is not evidence-based. Instead, the tips I share are either tips that work for me or tips I have heard from others. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate. https://www.youtube.com/watch?v=O1MPYMTGg6g Important Links Get my FREE eBook on vulvar lichen sclerosus here Want to work with me (Jaclyn)? I offer 1:1 lichen sclerosus peer support calls. Learn more and book a…
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Barrier Cream or Emollient: Which is Better for Lichen Sclerosus

Barrier Cream or Emollient: Which is Better for Lichen Sclerosus

Introduction For today’s video, I discuss the difference between barrier creams, emollients, balms, and salves and which option is best for lichen sclerosus. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate. https://www.youtube.com/watch?v=6VO13qXjiME Important Links Get FemmeSense balm in Canada or the United States here and save 10% off of your order with code LABIALOVE23 Celina's code for 10% off of the Momotaro Salve with code JOYONJOYONJOY Get my FREE eBook on vulvar lichen sclerosus here Want to work with me (Jaclyn)? I offer 1:1 lichen sclerosus peer support calls. Learn more and book a call here. Sign up for LSSN's FREE virtual support meetups Subscribe to LSSN's newsletter here Subscribe to TLLC's newsletter here Timestamps for Barrier…
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LSSN Mini Summit on Vulvovaginal Conditions

LSSN Mini Summit on Vulvovaginal Conditions

https://www.youtube.com/watch?v=lLPT8xf6F7U As we all know, education is foundational to health. If we don’t know about our bodies and vulvovaginal conditions, it’s difficult to take care of them. LSSN exists to empower people with LS through evidence-based information and support. And this year, we’re bringing you even more opportunities to access information and experts in the field.  For the first time, LSSN is hosting a mini-summit! The LSSN Mini Summit: Vulvovaginal Conditions is a 3-day virtual event that will provide you with the information and support you need to take control of your vulvar health. It will take place Friday, September 29, through Sunday, October 1, 2023. You'll learn from leading experts about vulvovaginal conditions rarely discussed, including Lichen Sclerosus. Other conditions include: Hidradenitis Suppurativa Persistent Pelvic Nerve Pain Persistent Genital Arousal Disorder Genitourinary Syndrome of Menopause Lichen Simplex Chronicus Overactive Pelvic Floor Muscles. You'll also be able to connect with…
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Lichen Sclerosus and Hair Removal: Which Method is Best?

Lichen Sclerosus and Hair Removal: Which Method is Best?

Introduction Lichen scleorsus and hair removal is a hot topic in our community. Many folks have questions about if they should remove their hair, and, if so, what are LS-friendly ways to remove hair. We got you covered! In today's video, I share my story of what worked and what didn't work for me. I share some of the better ways to remove hair if you have lichen sclerosus and share some really important caveats about hair removal with LS. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate." https://www.youtube.com/watch?v=wII__nykpT8&t=177s Disclaimer This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. Important Links from…
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Sexual Health Resources for Lichen Sclerosus

Sexual Health Resources for Lichen Sclerosus

Introduction For today’s video, we are going to chat about sexual health resources for lichen sclerosus. I begin by reviewing what a sex therapist is and how to find and vet a sex therapist. After, I highlight a number of different sexual health resources for lichen sclerosus as not everyone is able to work with a sex therapist. Such resources include educational podcasts, key figures to follow on social media, books and practices, and events and workshops. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. https://www.youtube.com/watch?v=XCThBj6-ggo Free Vetting a Potential Sex Therapist…
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How Sex Therapy can Help with Lichen Sclerosus

How Sex Therapy can Help with Lichen Sclerosus

Introduction For today’s video, I share my journey with lichen sclerosus and sexual health. Specifically, I discuss how my sexual health was impacted by lichen sclerosus. I share what prompted me to find a sexy therapist and how sex therapy can help with lichen sclerosus. This video is very personal and vulnerable. In our next video, we will approach this topic from a more practical lens by sharing how to find a sex therapist. There will also be free and paid sexual health resources discussed in that video as well. Be sure to like this video and subscribe to our channel for more educational LS content. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. If this video was helpful to you, we’d love your support so we can continue providing important education like this.…
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Low Libido and Lichen Sclerosus: Can You Get It Back?

Low Libido and Lichen Sclerosus: Can You Get It Back?

For today’s video, I am joined by the brilliant Dr. Lori Brotto to discuss all things low libido and lichen sclerosus. We chat about what libido is, different categories of libido, lichen sclerosus, and libido, and different ways to work on increasing libido with lichen sclerosus. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today. If you need more support, join our FREE virtual LS support meetups here. https://www.youtube.com/watch?v=g4sB8sbe_xk Dr. Lori Brotto's Bio & Main Links Dr. Lori Brotto is a Professor in the UBC Department of Obstetrics and Gynaecology, where she holds a Canada…
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What’s the Deal with Hormones and Lichen Sclerosus?

What’s the Deal with Hormones and Lichen Sclerosus?

Introduction For today’s video, I am joined by the brilliant Dr. Corey Babb to answer some of your on-demand questions about lichen sclerosus and hormones. We talk about whether there is a hormonal component to lichen sclerosus, why some folks flare around their periods (and what to do if that happens), what's the deal with estrogen, and more! *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. Be sure to like this video and subscribe to our channel for more educational LS content. https://www.youtube.com/watch?v=o5gTLNL9LNU If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate Important Links Dr. Babb's website North American Menopause Society website Follow Dr. Babb on Instagram and TikTok @dr.coreybabb Dr. Babb's YouTube Channel The AZIZA Project…
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Discussing The Mona Lisa Double-Blind Study with Leia Mitchell

Discussing The Mona Lisa Double-Blind Study with Leia Mitchell

In this episode, we look at the clinical trial done around Fractionated Carbon Dioxide Laser, also known as the Mona Lisa laser, with Leia Michell. We discuss why they felt the research was needed, who was in the trial, how they performed the trial, and the results. If you've got laser treatment, please let us know how it was for you in the comments below. Meet Leia Mitchell, a passionate and knowledgeable physician assistant whose expertise lies in the realm of Lichen Sclerosus treatment. Her commitment to the comprehensive understanding and management of this condition has led her to investigate the Mona Lisa laser's potential for helping those with Lichen Sclerosus. As a board-certified physician assistant, Leia's extensive experience and background allow her to provide expert guidance and advice to medical practitioners seeking the latest innovations in Lichen Sclerosus's care. Leia's dedication to her field has resulted in the groundbreaking…
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Tips for Pain with Sex and Lichen Sclerosus

Tips for Pain with Sex and Lichen Sclerosus

Introduction .For today’s video, we are continuing our discussion of sexual health and lichen sclerosus. I'm going to share my top 10 tips for managing pain with sex. Be sure to share your favorite tips and what works for you in the comments below. Full disclosure, these tips for pain with sex come from my lived experience. There is no research on this topic I am drawing from. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate. https://www.youtube.com/watch?v=Xx2JFHqaEjU Important Links Get my FREE eBook on vulvar lichen sclerosus here Want to work with…
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Unfiltered and Bold: Real Talk on Pelvic Health with Penny Petersson

Unfiltered and Bold: Real Talk on Pelvic Health with Penny Petersson

Does the constant discomfort in your pelvic area sound familiar? Have you tried medication or invasive procedures with little to no relief? It's time to take control of your pelvic wellness with holistic approaches that celebrate the power of your body. Join us to discover how embracing your pelvic area can alleviate pain and create a supportive community for those dealing with similar issues. Don't let chronic conditions hold you back any longer - it's time to unlock your potential for a fulfilling life. Empower yourself and join us for a journey towards pelvic health and wellness. The body is so fucking amazing. Penny Petersson Pelvic Yoga Coach My special guest is Penny Petersson You can catch a glimpse of Penny's infectious spirit on her Instagram page, @wellbeingbypenny, where she makes us smile by calling out the struggles of living with LS and pelvic health issues. This is Penny Petersson's…
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Recurrent Tearing and Lichen Sclerosus

Recurrent Tearing and Lichen Sclerosus

For today’s video, we are continuing our discussion of sexual health and lichen sclerosus and discuss recurrent tearing and lichen sclerosus. Tearing with sex may happen to some folks on occasion; for others, it can happen often. When folks keep experiencing tearing, this is called recurrent tearing. In this video, I talk about why LS skin is prone to tearing, which areas tend to tear more frequently, who tends to tear, and options to manage recurrent tearing. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation. https://www.youtube.com/watch?v=dLUer7VCDhc&t=6s Important Links Get my FREE eBook on vulvar lichen…
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Discussing The Challenges of Lichen Sclerosus Research with Sophie Rees

Discussing The Challenges of Lichen Sclerosus Research with Sophie Rees

The surprising roadblocks of Lichen Sclerosus research - and how they were overcome! In this episode, you will be able to: Delve into the challenges faced in Lichen Sclerosus research and the consequences for affected individuals. Realize the value of spreading awareness about vulval and vaginal conditions to empower women. Grasp the essential role education and accurate diagnosis play in successfully treating Lichen Sclerosus. Investigate the impact of diverse and inclusive language in Lichen Sclerosus research on patient well-being. Recognize the importance of increasing healthcare access and improving treatments for Lichen Sclerosus patients. My special guest is Sophie Rees. Sophie Rees is a medical sociologist specializing in qualitative and mixed methods research to explore patient experience. She works at the University of Bristol Trials Centre, conducting qualitative research within randomized controlled trials. Sophie is the Chief Investigator of the ESRC-funded project Living with Vulval LS: A Mixed Methods Study, using…
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Exercise and Lichen Sclerosus, Part 2

Exercise and Lichen Sclerosus, Part 2

Introduction For today’s video, we will be talking about lifestyle and LS. Specifically, we will be talking about lichen sclerosus and exercise. Can you exercise? How can you exercise safely with LS? I address these questions and more in this video. I share my top 5 tips for exercising with lichen sclerosus. After, I demonstrate a workout routine you can do standing up and lying down. This is great if you cannot sit for prolonged periods. However, if you are looking for a seated workout, be sure to check out my last video, where I demo a seated routine. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. Be sure to like this video and subscribe to our channel for more educational LS content. Important Links for Lichen Sclerosus and Exercise Get my FREE lichen…
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Lichen Sclerosus and Exercise (+ LS Friendly Routine)

Lichen Sclerosus and Exercise (+ LS Friendly Routine)

Introduction In this video, we will be talking about lifestyle and lichen sclerosus. Specifically, we will be talking about lichen sclerosus and exercise. Can you exercise? How can you exercise safely with LS? I address these questions and more in this video. I share my top 5 tips for exercising with lichen sclerosus. After, I demonstrate a workout routine you can do completely seated. This is great if you experience a lot of tearing or are afraid to tear while working out. And if you're like, Jaclyn, sitting hurts, no way I can workout seated, don't worry, I got you! In my next video, I will demonstrate a standing/lying down workout that is great for folks who cannot sit for extended periods of time. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. Be sure…
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Pelvic Health and Lichen Sclerosus

Pelvic Health and Lichen Sclerosus

Introduction: Why You Should Care about Pelvic Health if You Have Lichen Sclerosus For today’s video, I am joined by Penny, a fellow LS warrior, and founder and CEO of the Pelvic Health Yoga Membership. The topic of this video is pelvic health and lichen sclerosus. Particularly, we discuss why it's so important for folks with LS to prioritze their pelvic health. Further, we share how the Pelvic Health Yoga Membership can help. Be sure to like this video and subscribe to our channel for more educational LS content. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. **This post includes an affiliate link. If you join the Pelvic Health Yoga Membership, I will receive a small commission which goes towards running The Lost Labia Chronicles. Watch the Video on Here https://www.youtube.com/watch?v=wV3gOJC4850 Penny's Links Join…
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Unlocking Lichen Sclerosus Secrets: (W)holistic Healing Summit

Unlocking Lichen Sclerosus Secrets: (W)holistic Healing Summit

When Kathy started her podcast, she never imagined it would grow into something so much more - the Lichen Sclerosus Support Network and their annual (W)holistic Healing Summit. Now, every year, Kathy and her community strive to make a brighter tomorrow for those facing the same struggle she once did. But what does the future hold for this amazing network? In this episode, you will be able to: Experience the transformational effects of holistic healing on lichen sclerosus patients at the inspiring summit. Dive into the world of comprehensive resources to fill the information gap and learn more. Elevate your network by participating in interactive sessions and listening to expert talks within the community. Unfold necessary discussions on sexual health, pregnancy, and menopause related to lichen sclerosus. Choose from free, basic, or all-access passes to get different perk levels “It's important that you guys get that information in a way…
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Vulva Awareness and Appreciation with Jaclyn & Penny

Vulva Awareness and Appreciation with Jaclyn & Penny

National Vulva Awareness Day 2023 Why do we Have an Event for Vulvar Awareness and Appreciation Did you know 8 out of 10 folks with vulvas do not know all the names of their anatomy or what part does what? Yes, we have a major lack of vulvar awareness out there. Vulvar health is in trouble because of stigma and lack of awareness and education, and we want to turn that around! April 21st is National Vulva Awareness Day! National Vulva Awareness Day was created in 2022 by our dear friends and allies to the lichen sclerosus community, SweetSpot Labs, to bring awareness to a part of the body that is often overlooked and to break the stigma around the vulva. This year, we at Lichen Sclerosus Support Network wanted to hold an event on this special day to raise awareness and cultivate some vulva appreciation and love. Introduction In…
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Vulva Checks for Vulvar Cancer: What to Look out For

Vulva Checks for Vulvar Cancer: What to Look out For

Introduction *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. *Content Warning* Please note that this video contains discussions of vulvar cancer and includes a traumatic story of a survivor's fight for a diagnosis. Mentions of sexual assault and trauma are also included. If this doesn't feel safe for you right now, please return when you feel more grounded. If you do watch the video, please be sure to do self-care afterward. In this video, I am joined by the beautiful LS and vulvar cancer warrior Yohanna Hoehler, founder and director of Vulvar Cancer Awareness Forum (more on Yohanna below). One of our first videos on LSSN's channel was vulva checks for lichen sclerosus. However, given that lichen sclerosus has a slightly increased risk of developing vulvar cancer, many folks started messaging us about what…
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Discussing how steroids affect lichen sclerosus patients with Dr. Jill Krapf

Discussing how steroids affect lichen sclerosus patients with Dr. Jill Krapf

Join me in the second part of this conversation with Dr. Jill Krapf, LS specialist; researcher; author; and educator, about her research review, "Topical Corticosteroids in the Treatment of Vulvar Lichen Sclerosus: A Review of Pharmacokinetics and Recommended Dosing Frequencies." When evaluating treatments for lichen sclerosis, one must consider all variables involved for optimal application. In this review article, the authors explore the science of the skin and the effects of inflammation, as well as the absorption of the medication. However, with limited research guiding us, the answer remains scattered and uncertain, leaving us with more questions than answers. In this episode, you will be able to: Discover the effectiveness of topical steroid treatments in managing Lichen Sclerosis. Understand skin absorption concerns and dosages when using steroid treatments. Uncover truths about the myths surrounding the long-term side effects of steroid use. Grasp the significance of adhering to proper steroid application…
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Clitoral Myofascial Release for Lichen Sclerosus: Un-fuse Without Surgery

Clitoral Myofascial Release for Lichen Sclerosus: Un-fuse Without Surgery

Introduction *Disclaimer: This video on clitoral myofascial release for lichen sclerosus is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. For today’s video, I am joined by the brilliant Dr. Ashlie Crewe to talk all about clitoral myofascial release for un-fusing your clitoris with lichen sclerosus. We chat about myofascial release, how it's applied to the clitoris to help break up adhesions and scarring (aka fusing), when to avoid it, when you can expect results, and more. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today. https://youtu.be/QWyM1WFAY-Y Important Links from Lichen Sclerosus and Overactive Pelvic Floor Get my FREE lichen sclerosus eBook with over 60+ pages of…
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Do you want to Get Your Sexy Back? You need this program.

Do you want to Get Your Sexy Back? You need this program.

Has lichen sclerosus changed your sex life? Did you lose your self-confidence? Do you feel less at home in your body? Has your sexual identity been destroyed? Is your libido nonexistent? Like you have no desire for sex and intimacy? Here’s the thing. You are not alone! What if we had a way to turn it around? If you're ready to get your sexy back, you need to watch this video and go to https://lssupportnetwork.org/sexyback We spent months designing a unique program for folks with lichen sclerosus with chronic illness, sex educator Shauna Farabaugh. A one a kind of life-changing experience for our community. And you do not want to miss it. We're only accepting the first 15 people into the program. By attending the live classes, doing the practices, and interacting with the community, you will: Increase your libido and desire Learn how to communicate sexual desires and limits…
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Unfusing Your Clitoris with Lichen Sclerosus

Unfusing Your Clitoris with Lichen Sclerosus

Disclaimer This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. Introduction For today’s video, we are going to be discussing unfusing your clitoris for better sensation with lichen sclerosus. I review three evidence-based ways to help unfuse your clitoris - e.g., clitoral myofascial release, non-surgical lysis of adhesions, and lysis of adhesions. Be sure to like this video and subscribe to our channel for more educational LS content.  This video is evidence-based; I draw on the medical literature to share what you need to know about clitoral health and lichen sclerosus. Importantly, what I share is my interpretation of the science and data. https://www.youtube.com/watch?v=2_z1Santg5g&t=622s Important Links Get my FREE eBook on vulvar lichen sclerosus at www.lostlabia.com/lsebook Want to work with me? I offer 1:1 lichen sclerosus peer support calls. Sign up for LSSN's FREE virtual support…
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Unraveling the Mystery of Lichen Sclerosus Treatment with Dr. Jill Krapf

Unraveling the Mystery of Lichen Sclerosus Treatment with Dr. Jill Krapf

Join me as I talk to Dr. Jill Krapf, LS specialist; researcher; author; and educator, about all things steroids. What does it do to the skin? Why do we need it? And she answers some frequently heard steroid concerns. If you’re on the fence about or want to learn more about steroids, this is the episode for you. In this video, you will learn: 1. What is the current understanding of the cause of Lichen Sclerosus and what role do external stressors, diet, hormones, and trauma play? 2. How can topical steroids be effectively used to manage Lichen Sclerosus? 3. What are the best strategies for individualized care for Lichen Sclerosus? https://www.youtube.com/watch?v=NtFse-rcRwI Resources: Vulvar Lichen Sclerosus: Current Perspectives https://www.vulvodynia.com/assets/files/ijwh-191200-vulvar-lichen-sclerosus-current-perspectives.pdf Topical Corticosteroids in the Treatment of Vulvar Lichen Sclerosus: A Review of Pharmacokinetics and Recommended Dosing Frequencies https://vulvodynia.com/assets/files/Lichen-Sclerosus.pdf Center for Vulvovaginal Disorder http://cvvd.org LSSN Blogs: How to Apply Topical Steroid Treatment…
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Sexual Health Symptoms and Lichen Sclerosus

Sexual Health Symptoms and Lichen Sclerosus

Disclaimer This video on sexual health symptoms and lichen sclerosus is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. Introduction For today’s video, I review different sexual health-related symptoms that *can* occur if you have lichen sclerosus. Be sure to like this video and subscribe to our channel for more educational LS content.  This video is evidence-based; I draw on the medical literature to share what you need to know about sexual health and lichen sclerosus. Importantly, what I share is my interpretation of the science and data. https://www.youtube.com/watch?v=bv9aZYjEB7o Important Links Get my FREE eBook on vulvar lichen sclerosus at www.lostlabia.com/lsebook Want to work with me? I offer 1:1 lichen sclerosus peer support calls. Sign up for LSSN's FREE virtual support meetups Subscribe to LSSN's newsletter here Subscribe to TLLC's newsletter here Join LSSN's Membership here. Timestamps for…
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Pain Relief Without Pills: Ashlie Crewe’s Guide to Treating Persistent Pelvic Pain

Pain Relief Without Pills: Ashlie Crewe’s Guide to Treating Persistent Pelvic Pain

Do you suffer from persistent pelvic pain and have been told that it is “all in your head”? If so, you are not alone. Ashlie Crewe, a Physical Therapist with a Psychology degree, embarks on a journey to help patients manage their chronic pain using neuroscience, only to find her own trial by fire as she discovers a unique way to challenge a patient's overprotective nervous system. "The beautiful thing, good and bad, is that physical therapists, we're not allowed to prescribe medicine in the United States. So I think one of the cool things about my job then is we're really taught to work with the human body, and we're not allowed to order imaging, we're not allowed to prescribe medications.” Who is Ashlie Crewe? Ashlie Crewe is a Pelvic Health physical therapist and teacher/mentor to Pelvic Health physical therapists across the United States. She has a passion for…
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Lichen Sclerosus and Period Products

Lichen Sclerosus and Period Products

Introduction In this video, we are going to discuss lichen sclerosus and period products. This video isn't evidence-based; there are no research articles on which period products are better or worse for LS. Instead, this video is based on anecdotes; I draw on wisdom from the LS community and my personal experience with menstrual products. I share what to avoid, and review each type of period product. I also share some tips and tricks for LS while on your period. Be sure to like this video and subscribe to our channel for more educational LS content. https://www.youtube.com/watch?v=m9ZzG2LQvKM&t=348s Important Links from Lichen Sclerosus and Period Products Get my FREE lichen sclerosus eBook with over 60+ pages of evidence-based information and support guidance here. Join LSSN's FREE LS virtual support meetup here. Are you looking for more individualized support? I offer 1:1 LS Peer Support Calls. Learn more and book a call…
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The Way To Undo Severe Clitoral Fusing In One Visit Without Going Under The Knife

The Way To Undo Severe Clitoral Fusing In One Visit Without Going Under The Knife

In this episode, Dr. Rachel Rubin sheds light on the startling truth that 23% of all women suffer from Clitoral Phimosis, aka fusing. We later discuss how her innovative stretching procedure, non-surgical lysis of clitoral phimosis, has resulted in a 76% decrease in pain and a 64% increase in orgasm rate for these women. In this video, you will learn: Discover why 23% of all women have some degree of clitoral adhesions and what symptoms this can cause. Learn about a new procedure, non-surgical lysis of clitoral phimosis, that can help 76 % of women reduce pain, improve satisfaction with sex, increase sexual arousal, and even help 64% of women achieve orgasm for the first time. Uncover the secrets to treating lichen sclerosus optimally before any procedure, including what hormones and topical treatments can be used. Watch the interview replay on non-surgical lysis of clitoral fusing https://youtu.be/F5KO5LGXRx0 Resources: Read Dr.…
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Lichen Sclerosus and Overactive Pelvic Floor

Lichen Sclerosus and Overactive Pelvic Floor

How Overactive Pelvic Floor May Be Contributing to Painful Sex Introduction In this video, we are going to discuss lichen sclerosus and overactive pelvic floor. Specifically, we are going to discuss how lichen sclerosus may predispose you to experience overactive floor and how that can cause pain with sex. For this video, joined by Dr. Mukta Chauhan, who is double board certified in orthopedics and pelvic health. She is a tremendous resource for all things bladder, bowel, and pelvic pain. Dr. Chauhan demonstrates how the pelvic floor muscles are connected to the vulva, how this can create painful sex, and what you can do about it. She drops some amazing information in this video, so be sure to give it a watch! *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. https://www.youtube.com/watch?v=mxQjC3jEoYg&t=7s Important Links from…
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Looking at Lichen Sclerosus Diet Studies for Hope and Guidance

Looking at Lichen Sclerosus Diet Studies for Hope and Guidance

Lichen Sclerosus diet studies are few and far between but our guest Erica Eberl went on the hunt so we can discuss what we can learn from the science. Erica Eberl is a 23-year-old dietitian and LS warrior who was diagnosed less than a year ago. She has used her skills and resources to research LS and diet and shares her findings to help others. After Erica Eberl was diagnosed with LS, she did extensive research on Lichen Sclerosus and diet and found three studies that she was able to share. One LS diet study from Italy found that avocado and soybean extract cream and a dietary strategy improved symptoms in women with mild to moderate LS, although it wasn't as effective as corticosteroids. A case-control study from Italy found that increased consumption of carotenoids (precursors to Vitamin A) was associated with less LS. Lastly, a study from Portugal found…
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Overcoming Health Anxiety from Lichen Sclerosus

Overcoming Health Anxiety from Lichen Sclerosus

Introduction In this video, we are going to discuss health anxiety from lichen sclerosus. If you have health anxiety or aren't sure what it is, be sure to watch this video. I explain what health anxiety is, the three main defining characteristics, and how it can manifest and impact your quality of life. I share how your health anxiety may affect your LS. Finally, I speak from lived experience on what my journey on overcoming health anxiety from LS looked like and more! Be sure to like this video and subscribe to our channel for more educational LS content. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. https://www.youtube.com/watch?v=a8B9i3LQOZY&t=3s Important Links from to Health Anxiety from Lichen Sclerosus Get my FREE lichen sclerosus eBook with over 60+ pages of evidence-based information and support guidance here.…
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Is the Autoimmune Protocol the Lichen Sclerosus Natural Treatment for You?

Is the Autoimmune Protocol the Lichen Sclerosus Natural Treatment for You?

Have you ever wondered if there was a Lichen Sclerosus natural treatment? Could you actually manage this condition with diet and lifestyle? Angie Alt, a social activist and researcher, takes on the challenge of managing her Lichen Sclerosus for 9 years through the Autoimmune Protocol, an ambitious goal that leads to a journey of self-discovery and healing. In this video, you will learn:1. How Angie Alt transformed the Paleo Diet into the Autoimmune Protocol to manage her Lichen Sclerosus naturally for 9 years.2. What is the Autoimmune Protocol and how can it help those living with Lichen Sclerosus?3. How to navigate the Autoimmune Protocol in a sustainable way with the help of Angie Alt’s program. https://youtu.be/6cKD3IhFOxw Resources:If you want to work with Angie or become an AIP-certified trainer, so you can use this Lichen Sclerosus natural treatment effectively, check out the links below. www.autoimmunewellness.com sadtoaip.com for AIP coaching program www.aipcertified.com Lichen Sclerosus…
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Vulva Checks for Lichen Sclerosus

Vulva Checks for Lichen Sclerosus

Introduction to Vulva Checks for Lichen Sclerosus In this video, we are going to discuss vulva checks for lichen sclerosus. I start by discussing why they are so important. I share what you need to do one, how to do one, and what you need to look out for in terms of lichen sclerosus. Additionally, I review two ways to document important changes and what to do if you suspect your LS is progressing. Be sure to like this video and subscribe to our channel for more educational LS content. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. https://www.youtube.com/watch?v=E9fnXDh5up4&t=5s Important Links Get my FREE lichen sclerosus eBook with over 60+ pages of evidence-based information and support guidance here. Join LSSN's FREE LS virtual support meetup here. Are you looking for more individualized support? I…
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How Nutrition Therapy Could Help Manage Your Lichen Sclerosus

How Nutrition Therapy Could Help Manage Your Lichen Sclerosus

Can nutrition therapy help manage your Lichen Sclerosus? After Heather Cooan was denied care for 25 years and her Lichen Sclerosus developed into Vulvar Cancer, she fought back, healed herself, and now, as a certified nutrition therapy practitioner, she's helping others balance their hormones, identify triggers, and find hope to heal their LS.In this video, you will learn:1. What is the difference between a nutrition therapist and a dietitian?2. What is leaky gut, and how can it cause auto-immune diseases?3. What are the six buckets of triggers that can cause auto-immune diseases? Nutrition therapy is a way to look at all the factors in your diet, environment, and lifestyle to manage your Lichen Sclerosus. While challenging, it can also be rewarding. https://www.youtube.com/watch?v=dXNu_ptApCA Resources: Find out what buckets are triggering your health issues by taking Heather's test at https://heathercooan.com/lspodcast.  Dive deeper with Heather in our Holistic Healing Summit Replay video: Troubleshooting Your…
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