Get Involved
No matter how old you are, where you live, or whether or not you can give, there are so many ways you can get involved in providing lichen sclerosus education— and you can start right now.
Volunteer Job Board
What do we need?
Exciting news! In 2023, we are launching the LS Zine Project – a self-published collection of stories, interview transcripts, collages, drawings, and artwork by women living with LS. The zine will be released as an e-book at the Holistic Healing Summit in May 2023. Depending on the number of submissions, we may even turn it into a zine series!
We are recruiting volunteers to fill the following needs:
- Interviews: Record and transcribe interviews, select excerpts for zine
- Content curation: Review submitted materials and organize them into thematic chapters or zine series
- Design & illustration: Create a look and feel for the zine, assist with zine layout (in Canva or InDesign), create cover page artwork and chapter illustrations
Volunteers should be willing to commit to the project for at least 6 months (December 2022 – May 2023). The LS Zine Project volunteer team will meet regularly (1-2x a month) to check in about progress, support each other, and collectively create something beautiful and exciting.
Project timeline:
- December 2022: Volunteer Recruitment
- January – March 2023: Open Call & Interview Recordings
- March – April 2023: Zine Design & Production
- May 2023: Launch
Skills needed:
- Art, graphic design, and/or illustration – calling all artists & creatives!
- Interviewing skills, or comfortable speaking with people about sensitive experiences and willing to learn interview skills
- Writing, reading, copy/editing
- Eager to work on a storytelling project by and for the LS community
What’s in it for you?
In return for your service, not only will you make a difference to the Lichen Sclerosus community by raising awareness and helping people get
- LS education,
- diagnosed earlier,
- better access to support resources.
But you’ll also get free access to the LSSN membership as long as you volunteer. The membership includes
- Access to the private LS Warriors group ($35/month value)
- A positive, off-social media, private, growing community of people dealing with Lichen Sclerosus through:
- Weekly discussions developed to help you cope with an LS diagnosis
- Weekly virtual meetings where we discuss LS topics, have listening parties, and more
- Private interviews and Live Q&As with experts
- Exclusive video, audio, and written content covering physical and mental health with LS, including all of the main sessions from the 2022 Holistic Healing Summit
- Private weekly groups of restorative, gentle stretching Wild Soul Movement classes
- A positive, off-social media, private, growing community of people dealing with Lichen Sclerosus through:
- Discounts on LSSN in-person and virtual events like the Holistic Healing Summit All-Access pass
- Access to a growing content library. This includes handouts and PDFs that you can fill in to make future visits to the doctor less stressful.
- Discounts from our allies and partners
- Privacy: Neither LSSN nor LS Warrior, LLC will gather or sell your private information
You’ll also receive
- A free Holistic Healing Summit 2023 All-Access Pass ($100 value)
- A free 30-minute support call with lichen sclerosus mentors Jaclyn or Kathy ($30 value)
- An invitation to the LSSN Annual End-of-year Volunteer/Board Virtual Party (Priceless fun and friendship)
- Volunteer hours
Interested in getting involved as a LS Zine Project Volunteer? Fill out our volunteer form, and we’ll schedule an orientation meeting to get you started soon.
Please email support@lssupportnetwork.org with any questions.
We look forward to working with you!
What do we need?
As we work on updating our provider directory for a more user-friendly experience, we need 2-3 volunteers to verify our current information and make the first point of contact between LSSN and providers.
Volunteers will mostly work alone for this project over 2-3 months. Each volunteer will be assigned a list of providers on a Google Sheet.
Phase 1
Verify the current information through an online search and make updates as necessary.
Can be worked on at any time of day in their spare time.
Phase 2
Call the providers and attempt to speak with the office manager to introduce LSSN, verify and update existing information, and get the best direct contact information. Or establish a point of contact and send them a questionnaire they can fill out and send back.
Must be completed during the provider’s typical business hours.
Phase 3
Notify the project lead when complete and get a new list of providers.
Skills needed:
- Spreadsheet data entry (Google Sheets tutorial available)
- Comfortable speaking on the phone while acquiring information (Script provided for guidance)
- Self-starter – Ability to work alone and self motivate
- Communicate comfortably through chat and email
What’s in it for you?
In return for your service, not only will you make a difference to the Lichen Sclerosus community by raising awareness and helping people get
- LS education,
- diagnosed earlier,
- better access to support resources.
But you’ll also get free access to the LSSN membership as long as you volunteer. The membership includes
- Access to the private LS Warriors group ($35/month value)
- A positive, off social media, private, growing community of people dealing with Lichen Sclerosus through:
- Weekly discussions developed to help you cope with an LS diagnosis
- Weekly virtual meetings where we discuss LS topics, have listening parties, and more
- Private interviews and Live Q&As with experts
- Exclusive video, audio, and written content covering physical and mental health with LS, including all of the main sessions from the 2022 Holistic Healing Summit
- Private weekly groups of restorative, gentle stretching Wild Soul Movement classes
- A positive, off social media, private, growing community of people dealing with Lichen Sclerosus through:
- Discounts on LSSN in-person and virtual events like the Holistic Healing Summit All-Access pass
- Access to a growing content library. This includes handouts and PDFs that you can fill in to make future visits to the doctor less stressful.
- Discounts from our allies and partners
- Privacy: Neither LSSN nor LS Warrior, LLC will gather or sell your private information
You’ll also receive
- A free Holistic Healing Summit 2023 Basic Pass ($25 value)
- An invitation to the LSSN Annual End-of-year Volunteer/Board Virtual Party (Priceless fun and friendship)
- Volunteer hours
Interested in getting involved as a Provider Directory Volunteer? Fill out our volunteer form, and we’ll schedule an orientation meeting to get you started soon.
Please email support@lssupportnetwork.org with any questions.
We look forward to working with you!
What do we need?
It’s hard to believe, but LSSN is almost old enough to hold its first board elections, and we need your help. We are looking for 1-2 volunteers to work with the committee chair, the board, and other appropriate committees to assist in
- Creating campaign materials
- Searching for candidates (Broadcasting the election to get applicants)
- Identifying candidates (Of applicants select candidates for each position)
- Hosting a special meeting for the candidates to make their campaign speeches for the voting members
- Preparation, distribution, and counting of ballots
You should be able to complete the duties of this position in 2-3 hours per month. The committee will meet from January through June 2023.
What’s in it for you?
In return for your service, not only will you make a difference to the Lichen Sclerosus community by raising awareness and helping people get
- LS education,
- diagnosed earlier,
- better access to support resources.
But you’ll also get free access to the LSSN membership as long as you volunteer. The membership includes
- Access to the private LS Warriors group ($35/month value)
- A positive, off social media, private, growing community of people dealing with Lichen Sclerosus through:
- Weekly discussions developed to help you cope with an LS diagnosis
- Weekly virtual meetings where we discuss LS topics, have listening parties, and more
- Private interviews and Live Q&As with experts
- Exclusive video, audio, and written content covering physical and mental health with LS, including all of the main sessions from the 2022 Holistic Healing Summit
- Private weekly groups of restorative, gentle stretching Wild Soul Movement classes
- A positive, off social media, private, growing community of people dealing with Lichen Sclerosus through:
- Discounts on LSSN in-person and virtual events like the Holistic Healing Summit All-Access pass
- Access to a growing content library. This includes handouts and PDFs that you can fill in to make future visits to the doctor less stressful.
- Discounts from our allies and partners
- Privacy: Neither LSSN nor LS Warrior, LLC will gather or sell your private information
You’ll also receive
- A free Holistic Healing Summit 2023 Basic Pass ($25 value)
- An invitation to the LSSN Annual End-of-year Volunteer/Board Virtual Party (Priceless fun and friendship)
- Volunteer hours
Interested in getting involved as a Nominating Committee Volunteer? Fill out our volunteer form and we’ll schedule an orientation meeting to get you started soon.
Please email support@lssupportnetwork.org with any questions.
We look forward to working with you!
What do we need?
The Holistic Healing Summit is LSSN’s featured annual event. After this year’s huge success, the audience asked for more, and we aim to deliver.
So, we’re planning three summits for 2023!
That’s right. LSSN’ll be hosting one week-long summit in May and two mini summits, one in late summer and fall.
This means we need many volunteers to spread the workload. There’s work for every skill.
These are some of our most immediate needs:
- WordPress design
- Copywriting
- Marketing/advertising
- Event planning
- Project planning
- Graphic design
- Sponsorship development
We’re looking for volunteers who will give a one-year commitment from October 2022-2023. Duties will take 5-6 hours a month, including required planning meetings.
If you’re passionate about bringing LS education to the community, please volunteer for this amazing opportunity.
What’s in it for you?
In return for your service, not only will you make a difference to the Lichen Sclerosus community by raising awareness and helping people get
- LS education,
- diagnosed earlier,
- better access to support resources.
But you’ll also get free access to the LSSN membership as long as you volunteer. The membership includes
- Access to the private LS Warriors group ($35/month value)
- A positive, off social media, private, growing community of people dealing with Lichen Sclerosus through:
- Weekly discussions developed to help you cope with an LS diagnosis
- Weekly virtual meetings where we discuss LS topics, have listening parties, and more
- Private interviews and Live Q&As with experts
- Exclusive video, audio, and written content covering physical and mental health with LS, including all of the main sessions from the 2022 Holistic Healing Summit
- Private weekly groups of restorative, gentle stretching Wild Soul Movement classes
- A positive, off social media, private, growing community of people dealing with Lichen Sclerosus through:
- Discounts on LSSN in-person and virtual events like the Holistic Healing Summit All-Access pass
- Access to a growing content library. This includes handouts and PDFs that you can fill in to make future visits to the doctor less stressful.
- Discounts from our allies and partners
- Privacy: Neither LSSN nor LS Warrior, LLC will gather or sell your private information
You’ll also receive
- A free Holistic Healing Summit 2023 All-Access Pass ($100 value)
- A free 30-minute support call with lichen sclerosus mentors Jaclyn or Kathy ($30 value)
- An invitation to the LSSN Annual End-of-year Volunteer/Board Virtual Party (Priceless fun and friendship)
- Volunteer hours
Interested in getting involved as a Holistic Healing Summit Volunteer? Fill out our volunteer form, and we’ll schedule an orientation meeting to get you started soon.
Please email support@lssupportnetwork.org with any questions.
We look forward to working with you!
What do we need?
This role is responsible for the key functions of events and fundraising for the nonprofit, including developing and maintaining a calendar of and overseeing annual fundraising events.
Responsibilities include:
- Working with the Executive Director to ensure that volunteers have the necessary support and resources to complete assigned tasks/manage responsibilities
- Communicating appropriate information to all Board members/be a resource for teams communicating to the board
- Strategize with team members to host events that are will increase awareness and raise funds to support the mission of LSSN
- Execute fundraising plans developed by ED or fundraising chair
- Assist in developing fundraising events
Qualification/Skills
- A commitment to and understanding of LSSN’s mission, preferably based on experience
- Excellent interpersonal and communication skills
- Planning and organizing
- Google Sheets experience (tutorial available)
Requirements
- Able to be present at events or meetings
- Understand and uphold LSSN’s mission and policies
- One year commitment
- Time commitment of 1-2 hours per week
What’s in it for you?
In return for your service, not only will you make a difference to the Lichen Sclerosus community by raising awareness and helping people get
- LS education,
- diagnosed earlier,
- better access to support resources.
But you’ll also get free access to the LSSN membership as long as you volunteer. The membership includes
- Access to the private LS Warriors group ($35/month value)
- A positive, off social media, private, growing community of people dealing with Lichen Sclerosus through:
- Weekly discussions developed to help you cope with an LS diagnosis
- Weekly virtual meetings where we discuss LS topics, have listening parties, and more
- Private interviews and Live Q&As with experts
- Exclusive video, audio, and written content covering physical and mental health with LS, including all of the main sessions from the 2022 Holistic Healing Summit
- Private weekly groups of restorative, gentle stretching Wild Soul Movement classes
- A positive, off social media, private, growing community of people dealing with Lichen Sclerosus through:
- Discounts on LSSN in-person and virtual events like the Holistic Healing Summit All-Access pass
- Access to a growing content library. This includes handouts and PDFs that you can fill in to make future visits to the doctor less stressful.
- Discounts from our allies and partners
- Privacy: Neither LSSN nor LS Warrior, LLC will gather or sell your private information
You’ll also receive
- A free Holistic Healing Summit 2023 All-Access Pass ($100 value)
- A free 30-minute support call with lichen sclerosus mentors Jaclyn or Kathy ($30 value) after one month of service
- An invitation to the LSSN Annual End-of-year Volunteer/Board Virtual Party (Priceless fun and friendship)
- Volunteer hours
Interested in being a Holistic Healing Summit Volunteer? Fill out our volunteer form, and we’ll schedule an orientation meeting to get you started soon.
Please email support@lssupportnetwork.org with any questions.
We look forward to working with you!
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