Get Involved

No matter how old you are, where you live, or whether or not you can give, there are so many ways you can get involved in providing lichen sclerosus education— and you can start right now.

Join our team of volunteers and get involved in spreading LS education.

Get Involved by Volunteering

It takes a team of dedicated volunteers to help with research, copywriting, web design, event planning, etc., to bring quality lichen sclerosus education to our LS community.

We can use your help. Whether it's 2 or 10 hours a month, get involved.

Check back often as we update the job board. Or fill out our volunteer form and get started helping the community now.

Fill out volunteer form
Get involved and team join our LSSN

Get Involved by Volunteering

Get involved and team join our LSSN

It takes a team of dedicated volunteers to help with research, copywriting, web design, event planning, etc., to bring quality lichen sclerosus education to our LS community.

We can use your help. Whether it's 2 or 10 hours a month, get involved.

Check back often as we update the job board. Or fill out our volunteer form and get started helping the community now.

Fill out our volunteer form

Volunteer Job Board

Provider Directory Volunteer

What do we need?

As we work on updating our provider directory for a more user-friendly experience, we need 2-3 volunteers to verify our current information and make the first point of contact between LSSN and providers.

Volunteers will mostly work alone for this project over 2-3 months. Each volunteer will be assigned a list of providers on a Google Sheet.

Phase 1

Verify the current information through an online search and make updates as necessary.

Can be worked on at any time of day in their spare time.

Phase 2

Call the providers and attempt to speak with the office manager to introduce LSSN, verify and update existing information, and get the best direct contact information. Or establish a point of contact and send them a questionnaire they can fill out and send back.

Must be completed during the provider’s typical business hours.

Phase 3

Notify the project lead when complete and get a new list of providers.

Skills needed:

  • Spreadsheet data entry (Google Sheets tutorial available)
  • Comfortable speaking on the phone while acquiring information (Script provided for guidance)
  • Self-starter – Ability to work alone and self motivate
  • Communicate comfortably through chat and email

What’s in it for you?

In return for your service, not only will you make a difference to the Lichen Sclerosus community by raising awareness and helping people get

  • LS education,
  • diagnosed earlier,
  • better access to support resources.

But you’ll also get free access to the LSSN membership as long as you volunteer. The membership includes

  • Access to the private LS Warriors group ($35/month value)
    • A positive, off social media, private, growing community of people dealing with Lichen Sclerosus through:
      • Weekly discussions developed to help you cope with an LS diagnosis
      • Weekly virtual meetings where we discuss LS topics, have listening parties, and more
      • Private interviews and Live Q&As with experts
      • Exclusive video, audio, and written content covering physical and mental health with LS, including all of the main sessions from the 2022 Holistic Healing Summit
      • Private weekly groups of restorative, gentle stretching Wild Soul Movement classes
  • Discounts on LSSN in-person and virtual events like the Holistic Healing Summit All-Access pass
  • Access to a growing content library. This includes handouts and PDFs that you can fill in to make future visits to the doctor less stressful.
  • Discounts from our allies and partners
  • Privacy: Neither LSSN nor LS Warrior, LLC will gather or sell your private information

You’ll also receive

  • A free Holistic Healing Summit 2023 Basic Pass ($25 value)
  • An invitation to the LSSN Annual End-of-year Volunteer/Board Virtual Party (Priceless fun and friendship)
  • Volunteer hours

Interested in getting involved as a Provider Directory Volunteer? Fill out our volunteer form, and we’ll schedule an orientation meeting to get you started soon.

Please email support@lssupportnetwork.org with any questions.

We look forward to working with you!

Nominating Committee Volunteer

What do we need?

It’s hard to believe, but LSSN is almost old enough to hold its first board elections, and we need your help. We are looking for 1-2 volunteers to work with the committee chair, the board, and other appropriate committees to assist in

  • Creating campaign materials
  • Searching for candidates (Broadcasting the election to get applicants)
  • Identifying candidates (Of applicants select candidates for each position)
  • Hosting a special meeting for the candidates to make their campaign speeches for the voting members
  • Preparation, distribution, and counting of ballots

You should be able to complete the duties of this position in 2-3 hours per month. The committee will meet from January through June 2023.

What’s in it for you?

In return for your service, not only will you make a difference to the Lichen Sclerosus community by raising awareness and helping people get

  • LS education,
  • diagnosed earlier,
  • better access to support resources.

But you’ll also get free access to the LSSN membership as long as you volunteer. The membership includes

  • Access to the private LS Warriors group ($35/month value)
    • A positive, off social media, private, growing community of people dealing with Lichen Sclerosus through:
      • Weekly discussions developed to help you cope with an LS diagnosis
      • Weekly virtual meetings where we discuss LS topics, have listening parties, and more
      • Private interviews and Live Q&As with experts
      • Exclusive video, audio, and written content covering physical and mental health with LS, including all of the main sessions from the 2022 Holistic Healing Summit
      • Private weekly groups of restorative, gentle stretching Wild Soul Movement classes
  • Discounts on LSSN in-person and virtual events like the Holistic Healing Summit All-Access pass
  • Access to a growing content library. This includes handouts and PDFs that you can fill in to make future visits to the doctor less stressful.
  • Discounts from our allies and partners
  • Privacy: Neither LSSN nor LS Warrior, LLC will gather or sell your private information

You’ll also receive

  • A free Holistic Healing Summit 2023 Basic Pass ($25 value)
  • An invitation to the LSSN Annual End-of-year Volunteer/Board Virtual Party (Priceless fun and friendship)
  • Volunteer hours

Interested in getting involved as a Nominating Committee Volunteer? Fill out our volunteer form and we’ll schedule an orientation meeting to get you started soon.

Please email support@lssupportnetwork.org with any questions.

We look forward to working with you!

Holistic Healing Summit Volunteer

What do we need?

The Holistic Healing Summit is LSSN’s featured annual event. After this year’s huge success, the audience asked for more, and we aim to deliver.

So, we’re planning three summits for 2023!

That’s right. LSSN’ll be hosting one week-long summit in May and two mini summits, one in late summer and fall.

This means we need many volunteers to spread the workload. There’s work for every skill.

These are some of our most immediate needs:

  • WordPress design
  • Copywriting
  • Marketing/advertising
  • Event planning
  • Project planning
  • Graphic design
  • Sponsorship development

We’re looking for volunteers who will give a one-year commitment from October 2022-2023. Duties will take 5-6 hours a month, including required planning meetings.

If you’re passionate about bringing LS education to the community, please volunteer for this amazing opportunity.

What’s in it for you?

In return for your service, not only will you make a difference to the Lichen Sclerosus community by raising awareness and helping people get

  • LS education,
  • diagnosed earlier,
  • better access to support resources.

But you’ll also get free access to the LSSN membership as long as you volunteer. The membership includes

  • Access to the private LS Warriors group ($35/month value)
    • A positive, off social media, private, growing community of people dealing with Lichen Sclerosus through:
      • Weekly discussions developed to help you cope with an LS diagnosis
      • Weekly virtual meetings where we discuss LS topics, have listening parties, and more
      • Private interviews and Live Q&As with experts
      • Exclusive video, audio, and written content covering physical and mental health with LS, including all of the main sessions from the 2022 Holistic Healing Summit
      • Private weekly groups of restorative, gentle stretching Wild Soul Movement classes
  • Discounts on LSSN in-person and virtual events like the Holistic Healing Summit All-Access pass
  • Access to a growing content library. This includes handouts and PDFs that you can fill in to make future visits to the doctor less stressful.
  • Discounts from our allies and partners
  • Privacy: Neither LSSN nor LS Warrior, LLC will gather or sell your private information

You’ll also receive

  • A free Holistic Healing Summit 2023 All-Access Pass ($100 value)
  • A free 30-minute support call with lichen sclerosus mentors Jaclyn or Kathy ($30 value)
  • An invitation to the LSSN Annual End-of-year Volunteer/Board Virtual Party (Priceless fun and friendship)
  • Volunteer hours

Interested in getting involved as a Holistic Healing Summit Volunteer? Fill out our volunteer form, and we’ll schedule an orientation meeting to get you started soon.

Please email support@lssupportnetwork.org with any questions.

We look forward to working with you!

Join the Warriors

Get involved by making a monthly donation of over $35. You not only support our continued efforts to bring widespread evidence-based education but also get access to exclusive support services.

Learn more about the LSSN Membership

Partner With Us

We'd love to work closely with you to develop mutually-beneficial campaigns, co-branded merchandise, media, and experiences that impact the community.

Our events reach thousands of people who need to know about your products. Become a champion for pelvic health and sponsor a project today.