When we think about what or who Lichen Sclerosus Support Network is, we have to think about its co-founders and the first set of volunteers, who would go on to become the first board. Not about their individual stories, but their collective struggle. If you're interested in learning more about the individual members of the board, we encourage you to check our Board Page.
Their collective struggle, which was similar to millions before them and would be to millions after them if they didn't come together to solve this problem, was a lack of quality information.
They were lost looking for information, so they came together to bring much-needed awareness and education to the public about Lichen Sclerosus. This serious chronic progressive skin disease affects as many as 1 in 70 vulva owners. While LS is treatable and manageable, too many people are suffering in silence because of a lack of information.
They created Lichen Sclerosus Support Network to do something about that.
About LSSN's Vision
Our vision is a world where those affected by Lichen Sclerosus are informed, educated, and get diagnosed early.
LSSN will empower vulva owners to take an active role in their vulvar health. Programs such as the “Check Your Vulva” program will create an appreciation and knowledge of the vulva. These programs will allow people to advocate for themselves better, leading to earlier diagnosis.
On the other hand, the more Lichen Sclerosus specific education we can provide medical providers, the earlier they can diagnose people. Hence, our second program, the provider education program.
By targeting the problem from both sides, we will reduce the current wait time of 5-15 years for an LS diagnosis.
We Need Your Support
We have ambitious goals, but we won't be able to accomplish anything without your help.
You can help by making a monetary donation, volunteering your time, or providing your services or products in kind.
Will you help us?