The Lichen Sclerosus Support Network Membership was created to give back to our supportive community.
Researching, creating and hosting accurate, informative, and engaging lichen sclerosus content and events take lots of time and money. But we are dedicated to providing the best for our community because we believe you deserve the best.
To thank you for your monthly and annual support, we have partnered with LS Warrior, LLC to develop a supportive membership package to help you cope mentally and emotionally while learning about LS.
LSSN membership benefits include:
Connection to a positive, off social media, private, growing community of people dealing with Lichen Sclerosus through:
The knowledge and support of people who have been through the fear, anxiety, and despair but now have control of their LS and are living life on their terms
Information to help you understand and manage your condition
Weekly discussions developed to help you cope with an LS diagnosis
Weekly virtual meetings where we discuss LS topics, have listening parties, and more
Private interviews and Live Q&As with experts
Access to exclusive video, audio, and written content covering physical and mental health with LS, including all of the main sessions from the 2022 Holistic Healing Summit
Private weekly groups of restorative, gentle stretching Wild Soul Movement classes
Discounts on LSSN in-person and virtual events like the Holistic Healing Summit All-Access pass
Access to a growing content library. This includes handouts and PDFs that you can fill in to make future visits to the doctor less stressful
Discounts from our allies and partners
Privacy: Neither LSSN nor LS Warrior, LLC will gather or sell your private information
Ready to join? Choose a tax-deductible* LSSN Membership donation option.
LSSN has been a lifesaver. I felt completely isolated and alone after I was diagnosed. Almost everything I know about LS is as a result of this group. I literally do not know what I would have done without you amazing women. This group changed my life in so many positive ways. I am forever grateful.
Alison
This group has given me an intimate and safe place to share my hills and valleys of this journey with LS. My journey is just beginning but I feel like this place is home. I know, no matter what happens or where I go, these women and this space will be there for me and that is extremely comforting.
Megan
I’m coping and managing pretty good lately. LS Warriors have helped me so much. I’m doing a lot better mentally – LS sucks but I have accepted it and no longer think about it constantly Or obsessively check my vulva. that’s huge for me considering how I was feeling when first diagnosed. So thankful and grateful 🙏🤗
Maria
I didn't realize how much I needed this group until I was in it. LS is such a lonely disease, and it is so wonderful having the support system provided in this space. We all have unique LS situations but understand each other's pain and struggles in a way no one else can. We also have access to interviews with specialists and learn and share information so that we have the power to advocate for ourselves in the health care world. This network really is amazing.
Amanda
LS Warriors has become my new family. I not only found a safe place to try and explain such a private itch but I also found a safe place to transition from depression to hope. Without LS warriors I would’ve continued to feel alone in a personal battle that was bigger than myself. Thank you for being brave enough Kathy to reach out to others like myself. You and all the other beautiful women physically helped me regain A sense of purpose and value that I had allowed to slip through my fingers as the lichen planus and lichen sclerosus try to take over my life…Thank you again.
Evon
I have an entire group of women who know exactly what I'm going through. They are always there for me no questions asked. Not only that, I have access to live interviews/Q&As with world renowned doctors who specialize in vulvar disease. This group connected to me my current doctor, Dr. Goldstein, who has treated more LS patients than anyone in the world! I am so grateful for the information and support that I've gotten through this network.
Yes, US residents and businesses can deduct their donations from income taxes as the Lichen Sclerosus Support Network is a registered 501(c)3 organization (tax ID #87-2172854).
You will receive receipts for your donations with all the necessary information.
We are currently exploring non-profit status in other countries.
What payment options do you offer?
Through our donation platform Givebutter, we can accept either monthly or annual tax-deductible donations via credit card, Google Pay, Apple Pay, Venmo, or PayPal. A monthly membership is $35 per month, and annual membership is $350 per year.
What programs do my membership donations fund for LSSN?
Monies collected through our membership program help fund the cost of creating and hosting our evidence-based educational content, free virtual meetups, LS provider directory, and future provider education programs. Learn more about our mission and programs here.
What if I want to support LSSN through a subscription but don’t want to participate in the private community?
When you sign up for the monthly membership, you can indicate if you’d like to opt-out of the private community. You can still take advantage of the content library and discounts. Your spot in the private community will be gifted as a scholarship to someone from our Warriors waitlist who may not be able to afford the monthly cost.
What if I can’t afford the LSSN membership donations but still need help with my LS diagnosis?
We understand resources get limited sometimes. This is why we provide so much free information, education, and events.
Please fill out this form to be placed on our waitlist to request a sponsored membership. We will ask for valid contact information. All applications are vetted. Please understand this is necessary to ensure the privacy and harmony of our sensitive community. See our LSSN Membership Scholarship Policy for more details.
What is LS Warrior, LLC?
LS Warrior, LLC is a privately held company formed by Kathy Ruiz-Carter, one of the LSSN founders. LS Warriors was created as a haven from all the noise on the internet and is focused on its members' emotional and mental well-being. The Warriors are a group of women who are working toward the same goals.
Ensure they get the best care from their doctors.
Minimize the effect Lichen Sclerosus has on their relationships.
Be confident in their future and their quality of life.
LSSN formalized its partnership with LS Warrior, LLC in 2022. While LSSN is focused on providing evidence-based education for people diagnosed with Lichen Sclerosus, LS Warrior, LLC brings additional mental and emotional support to our LSSN membership.
Is what I discuss in the private group really private?
Yes. Neither LSSN nor LS Warrior, LLC collect or sell your personal information. LSSN may sometimes run polls within the membership or ask for feedback on certain topics to develop new educational content for our members. In these cases, all feedback is anonymized and will contain no personal information. Please see our full privacy policy.
