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Novel NonSteroidal Lichen Sclerosus Study: Your Experience Could Help Others

What is Lichen Sclerosus?

Lichen Sclerosus is a chronic inflammatory autoimmune skin condition that mostly affects the female anogenital skin. It creates localized inflammation, which changes the texture of the skin. The skin can turn white and appear waxy. The most common symptoms are itching, tears, architectural changes, and pain with sex (dyspareunia). Although there is no current cure for Lichen Sclerosus, it can be managed with proper treatment and care.

The Lichen Sclerosus Support Network is a beacon of support and empowerment for individuals and couples navigating the challenges of Lichen Sclerosus. Our international non-profit organization recognizes LS's far-reaching impact on physical and emotional well-being, extending beyond the initial diagnosis.

LSSN goes beyond simply providing information. We foster a supportive community through educational resources, workshops, and online forums. By offering easy-to-understand, evidence-based knowledge and fostering open conversations about living with LS, the network empowers individuals and couples to overcome obstacles and rewrite their love stories, fostering inclusivity and understanding throughout their journey.

Learn more about Lichen Sclerosus
women sitting on a sofa contemplating on what Lichen Sclerosus is

What's Happening at LSSN?

Join Us for an Intimate Meetup in Florida

Tired of feeling isolated and overwhelmed by lichen sclerosus? You're not alone. Join LSSN for an intimate, in-person meetup led by LSSN Executive Director Kathy Ruiz-Carter.

Connect with local LS warriors, share your experiences, and get your questions answered in a safe, supportive space.

This is your chance to:

  • Build meaningful connections with locals who understand
  • Learn practical tips and strategies for managing your symptoms
  • Feel empowered and less alone on your LS journey

    Location Details 

    South Miami: July 1, 12-2 PM EDT

    Central Miami: July 9, 11-1 PM EDT

    West Palm Beach: July 15, 12-2 PM EDT

    * Meetings will be held in professional buildings. Exact locations will be emailed after registration.

    * Meetups are Free. Donations are Greatly Appreciated to Help Cover Snacks and Refreshments.  

  • Click to get more details about the in-person meetup.
    Missed the Wholistic Healing Summit? Unlock a World of Lichen Sclerosus Knowledge!

    The Wholistic Healing Summit might be over, but the opportunity to learn, heal, and connect is still here! Our replays offer a deep dive into the physical, emotional, and relational aspects of living with lichen sclerosus.

    Whether you're newly diagnosed or seeking new insights, these recordings are packed with expert advice, practical tips, and heartwarming stories from the LS community.

    What You'll Discover:

  • Medical Expertise: Learn about the latest treatments, management strategies, and research breakthroughs from renowned specialists.
  • Emotional Well-being: Gain tools for coping with stress, anxiety, and the emotional impact of LS.
  • Relationships & Intimacy: Navigate intimacy challenges and strengthen your connections with loved ones.
  • Self-Care & Empowerment: Discover holistic approaches to well-being and find your voice in the LS community.

    For a limited time, you can get access to ALL of this for a fraction of the cost!

    Lifetime Replay Access + Exclusive Bonuses: $99 (Includes a comprehensive PDF guide and bonus sessions!)

    Don't miss out on this transformative opportunity. Let the Wholistic Healing Summit be your guide on the journey to a healthier, happier you.

  • Click for more details and to get your Pass
    Leading Experts in Vulvar Health Join LSSN Circle of Support's Mission

    The LSSN Circle of Support is thrilled to announce a powerful new partnership with The Center for Vulvovaginal Disorders (CVVD)! As a leading authority on lichen sclerosus and other vulvar conditions, CVVD brings invaluable expertise and resources to our mission.

    With locations in New York City, Washington DC, and Tampa, FL, their team of renowned specialists, including Drs. Andrew Goldstein, Jill Krapf, and Chailee Moss, has helped thousands of women find relief and healing.

    Explore their groundbreaking research, educational resources, and comprehensive treatment options on their website today.

    Go to the CVVD website
    Ditch the Lichen Sclerosus Drama. Find Your Community of Empowered Warriors.

    Tired of the endless cycle of Googling, the fear-mongering on social media, and the unsolicited advice? We get it. The LS Warrior community is your sanctuary from the chaos.

    Imagine a space where you can:

    • Cut through the noise: Access curated, expert-backed resources and ditch the endless scroll.
    • Share your story without judgment: Connect with others who truly understand your experience, no matter where you are on your LS journey.
    • Take back control: Arm yourself with knowledge, support, and the confidence to advocate for your health.

    Join us and discover a community that champions informed decisions, body autonomy, and a whole lot of support.

    Your Lichen Sclerosus journey doesn't have to be a solo mission. Let's rise together.

    Join the LS Warriors Community
    We need your Help

    It takes a team of dedicated volunteers to help with research, copywriting, web design, event planning, etc., to bring quality lichen sclerosus education to our LS community.

    We can use your help. That's why we're calling for all volunteers.

    Click to view our volunteer job board

    International Monthly LS Support Virtual Meetups

    Support from People who Understand
    Who better to share your story with and get answers from then others going through the same thing.
    Evidence-based Information not Advice
    No one can tell you what to do with your body. We'll tell you what the evidence says. You take what you need and leave the rest. There is no one-size fits all in LS.
    Available to Everyone with Vulvar LS
    We meet every 4 weeks on Saturday from 2-4 and 7-9 PM EST, to make the meetups accessible to all time zones. We provide an inclusive environment and respect everyone's pronouns and identity.
    Security
    Not only will you be surrounded by friends, our meeting are held on a password protected secure platform. Your login information will be emailed to you within a week of the next meetup.
    Strength in Numbers
    There's something freeing and empowering about telling your story to a group who gets it. It will give you the strength and power to continue the fight.
    Signup For Our Free Virtual Meetups

    How to Donate

    Join our Circle of Support
    • Help our organization provide quality content
    • Share your business with our community
    • Support evidence-based Lichen Sclerosus education and support
    Donate Time or Services
    • Volunteer your time to advance the mission
    • Donate your service or product
    • Make a one-time donation or become a continuous sponsor

    Lichen Sclerosus is more common than we think and it's often missed and this is really important.
    Jill Krapf, MD

    Get the Facts
    Get an overview of lichen sclerosus.
    Get Support
    Join our private community.
    Get A Provider
    Search our referral based provider directory.

    Lichen Sclerosus Blogs and Videos

    Image of LSSN ED Kathy Ruiz-Carter holding a book with title "You Got This". Text - "Meet Our Executive Director" "Join us and break free from the confusion, frustration, and isolation holding you back. " "LSSN Florida In-Person Meetups" "Miami, Tampa, & Palm Beach County" "July 2024"
    June 17, 2024
    Join Us & Empower Your LS Journey with In-Person Meetups in Florida.
    Join intimate in-person meetups in Florida for those with lichen sclerosus led by LSSN expert Kathy Ruiz-Carter. Connect with others, share experiences, and gain expert advice.
    Graphic design image of a clitoris.
    July 8, 2024
    Help! I Can’t Feel My Clitoris. Now What?
    "I Can't Feel My Clitoris, Help! "If you experience decreased clitoral sensation from lichen sclerosus, read this post to learn your options.
    Image of Sophie with a short, brown, bobbed hairstyle and a smile, and Jaclyn with long brown hair and cat winged liner. The title text reads: "Want to learn more about missed opportunities and vulvar lichen sclerosus? Watch this interview with Dr. Sophie Rees today!"
    July 4, 2024
    Missed Opportunities and Vulvar Lichen Sclerosus
    Want to learn more about missed opportunities and vulvar lichen sclerosus? Watch this interview with Dr. Sophie Rees today!
    Graphic design image of a person with brown skin, blue glasses and a blue shirt sighing into their hands with a stressed expression on the face and body.
    June 21, 2024
    Does Stress Cause Vulvar Lichen Sclerosus?
    Does stress cause vulvar lichen sclerosus? How can you manage stress with VLS? Read our latest blog post to learn more.

    Meet the Executive Board

    Pam Cobb
    Pam Cobb
    Chief Executive Officer
    Detail
    Kathy Ruiz-Carter
    Kathy Ruiz-Carter
    President/Treasurer
    Detail
    Jaclyn Lanthier
    Jaclyn Lanthier
    Secretary
    Detail

    Words from the Community

      Have a question? Need a resource?

      We're here to help. Send us a message and we'll get back to you as soon as possible.

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