What is Lichen Sclerosus?

Lichen Sclerosus is an inflammatory chronic skin condition that mostly affects the anogenital skin. It creates localized inflammation, which changes the texture of the skin. The skin can turn white and appear waxy. The most common symptoms are itching, tears, architectural changes, and pain with sex (dyspareunia). Although there is no current cure for Lichen Sclerosus, it can be managed with proper treatment and care.

Learn more about Lichen Sclerosus
women sitting on a sofa contemplating on what Lichen Sclerosus is

What's Happening at LSSN?

LS Digital Zine

The LS Zine Project is our newest initiative. We have collected your stories, poems, artwork, and interviews about living with LS. And released them to raise awareness and let people know they are not alone.

LS has gain visibility over the last few years. As we grow as a community it's important everyone's voices are heard.

Download your FREE copy today and share it with a someone to help bring more awareness to this condition.

Download your copy of the LS Zine
The LSSN Membership is OPEN!

We are pleased to announce the new Lichen Sclerosus Support Network membership!

In partnership with LS Warrior LLC, we will provide our recurring monthly and annual donors various programs to help them overcome the mental and physical effects of Lichen Sclerosus.

Click to learn more about the program
We need your Help

It takes a team of dedicated volunteers to help with research, copywriting, web design, event planning, etc., to bring quality lichen sclerosus education to our LS community.

We can use your help. That's why we're calling for all volunteers.

Click to view our volunteer job board

How to Donate

Sponsor an Event
  • Help our organization provide quality content
  • Advertise your company with us
  • Support Lichen Sclerosus education and awareness
Donate Time or Services
  • Volunteer your time to advance the mission
  • Donate your service or product
  • Make a one-time donation or become a continuous sponsor

Lichen Sclerosus is more common than we think and it's often missed and this is really important.
Jill Krapf, MD

Get the Facts
Find answers to our most frequently asked questions.
Get Support
Find support resources.
Get A Provider
Search our referral based provider directory.

Lichen Sclerosus Blogs and Videos

Hands holding out a block with the word "Grace" written on it.
May 30, 2023
Giving Yourself Grace
Do you struggle with mental health and Lichen Sclerosus? Click here for 4 tips on how to give yourself grace with your struggles!
Image of a person with pale skin and a black tank top and blue jeans hunched over, with their hands on their pelvic floor in pain from lichen sclerosus.
May 21, 2023
Pain from Lichen Sclerosus: The Fundamentals
Do you experience pain from lichen sclerosus? Want to learn more about how pain can manifest and how to manage pain? Click to learn more.
Image of Jaclyn in a black shir twith cat-winged eyeliner on the right, and the title text reading "Lichen sclerosus and exercise, pt 1" on the left.
May 19, 2023
Lichen Sclerosus and Exercise (+ LS Friendly Routine)
It's hard to get lifestyle and lichen sclerosus info from our doctors. Learn about lichen sclerosus and exercise here.
Lower sex drive is a common side effect of LS but it doesn't have to stay that way.
May 16, 2023
Is Lichen Sclerosus Lowering Your Sex Drive?
Do you have Lichen Sclerosus and are struggling with your sex drive? Want to find out why? Come and find tips on how to get your drive back.

Meet the Executive Board

Lauren Connelly
Lauren Connelly
Kathy Ruiz-Carter
Kathy Ruiz-Carter
Jaclyn Lanthier
Jaclyn Lanthier

Words from the Community

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