What is Lichen Sclerosus?

Lichen Sclerosus is an inflammatory chronic skin condition that mostly affects the anogenital skin. It creates localized inflammation, which changes the texture of the skin. The skin can turn white and appear waxy. The most common symptoms are itching, tears, architectural changes, and pain with sex (dyspareunia). Although there is no current cure for Lichen Sclerosus, it can be managed with proper treatment and care.

Learn more about Lichen Sclerosus
women sitting on a sofa contemplating on what Lichen Sclerosus is

What's Happening at LSSN?

LS Digital Zine

The LS Zine Project is our newest initiative. We want to collect your stories, poems, artwork, and interviews about living with LS. And release them in May 2023 at this year's Holistic Healing Summit so we can raise awareness and let people know they are not alone.

LS has gain visibility over the last few years. As we grow as a community it's important everyone's voices are heard.

All contributions are welcome. Let's talk about all aspects of living with LS, from the everyday routines to the physical, emotional, and intimate dimensions of the condition. We welcome anonymous submissions.

Deadline to submit: March 15, 2023

Apply to be in the Zine
World LS Awareness Day Event

We had two wonderful live events, where we provided hope, education, and community.

On January 17, 2023, we heard from two brave LS patients, had an educational presentation and Q&A session with Dr. Ulrike Dehaeck, and a second Q&A session with Dr. Jill Krapf.

If you weren't able to make it live be sure to watch the recordings on our YouTube channel.

Watch the LS Awareness Day events now
The LSSN Membership is OPEN!

We are pleased to announce the new Lichen Sclerosus Support Network membership!

In partnership with LS Warrior LLC, we will provide our recurring monthly and annual donors various programs to help them overcome the mental and physical effects of Lichen Sclerosus.

Click to learn more about the program
We need your Help

It takes a team of dedicated volunteers to help with research, copywriting, web design, event planning, etc., to bring quality lichen sclerosus education to our LS community.

We can use your help. That's why we're calling for all volunteers.

Click to view our volunteer job board

How to Donate

Sponsor an Event
  • Help our organization provide quality content
  • Advertise your company with us
  • Support Lichen Sclerosus education and awareness
Donate Time or Services
  • Volunteer your time to advance the mission
  • Donate your service or product
  • Make a one-time donation or become a continuous sponsor

Lichen Sclerosus is more common than we think and it's often missed and this is really important.
Jill Krapf, MD

Get the Facts
Find answers to our most frequently asked questions.
Get Support
Find support resources.
Get A Provider
Search our referral based provider directory.

Lichen Sclerosus Blogs and Videos

In this episode, dietitian Erica Eberl looks at Lichen Sclerosus Diet studies and explains how we can find out if foods trigger our LS.
February 3, 2023
Looking at Lichen Sclerosus Diet Studies for Hope and Guidance
Is there a link between diet and LS? We take a look at lichen sclerosus diet studies, discuss triggers, and the risks of elimination diets.
Image of a person with brown skin, their hair in a ponytail with their hands on their forehead with an upset expression on their face.
January 30, 2023
Burnt – Stop Ignoring my (Vulvar/Pelvic) Pain
Pelvic and vulvar pain is political. Click here to read a guest post by Sabrina Sarro on the political aspects of living with vulvar pain.
Image of Jaclyn, founder of TLLC looking downcast and solemn. To the left of her, the title text reads: Health Anxiety from Lichen Sclerosus.
January 27, 2023
Overcoming Health Anxiety from Lichen Sclerosus
Do you have health anxiety from lichen sclerosus? Not sure what health anxiety is? Click here for more information on how to manage it.
Finding the right support is important
January 24, 2023
The 4 Important Elements to the Right Lichen Sclerosus Support Group
Struggling with the emotional and mental health side of LS? Discover how to find the right lichen sclerosus support group you need to thrive.

Meet the Executive Board

Lauren Connelly
Lauren Connelly
President
Detail
Kathy Ruiz-Carter
Kathy Ruiz-Carter
Vice-President/Treasurer
Detail
Jaclyn Lanthier
Jaclyn Lanthier
Secretary
Detail

Words from the Community

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