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What is Lichen Sclerosus?

Lichen Sclerosus is an inflammatory chronic skin condition that mostly affects the anogenital skin. It creates localized inflammation, which changes the texture of the skin. The skin can turn white and appear waxy. The most common symptoms are itching, tears, architectural changes, and pain with sex (dyspareunia). Although there is no current cure for Lichen Sclerosus, it can be managed with proper treatment and care.

Learn more about Lichen Sclerosus
women sitting on a sofa contemplating on what Lichen Sclerosus is

What's Happening at LSSN?

Breaking Through Misconceptions, Paving the Way for Hope

LSSN is quickly becoming the #1 hub for LS patient information. We are changing the future of people with lichen sclerosus by providing easy-to-understand content and bringing outstanding experts to educate patients.

Proving educational content on the internet has already touched more than 118,000 people with LS in 2023. We want to change the future of 200,000 more next year!

For GivingTuesday this year, we're raising funds to create more easy-to-understand, evidence-based content and education in 2024. By investing in our Education Fund, you can finance a life-changing piece of content.

Will you help change someone's future with lichen sclerosus by donating today?

Donate Now
LSSN Is A 2023 Top-Rated Nonprofit!

You made it possible!

Thank you to everyone who has shared and continues to share their reviews on GreatNonprofits.org website. By sharing your stories and experiences, LSSN has become one of the first 2023 Top-Rated Nonprofits of the year.

This honor makes it possible for more donors and potential volunteers to find our organization and help further our mission.

If LSSN has touched your life please consider sharing your review so even more people can find us.

Click to share your review
Take Part in the GRIDD Study

Our lichen sclerosus patient community is encouraged to take part in the GRIDD Study. GlobalSkin is collecting patient impact data through a 10–20-minute survey (available in 17 languages).

It will help to validate the very real and difficult challenges faced by dermatology patients globally. Data collected will support local, national, and international advocacy work for more research, better treatments, and healthcare policies and, ultimately, will improve the lives of dermatology patients.

Deadline is December 31, 2023.

Get more information
LS Digital Zine

The LS Zine Project is our newest initiative. We have collected your stories, poems, artwork, and interviews about living with LS. And released them to raise awareness and let people know they are not alone.

LS has gain visibility over the last few years. As we grow as a community it's important everyone's voices are heard.

Download your FREE copy today and share it with a someone to help bring more awareness to this condition.

Download your copy of the LS Zine
The LSSN Membership is OPEN!

We are pleased to announce the new Lichen Sclerosus Support Network membership!

In partnership with LS Warrior LLC, we will provide our recurring monthly and annual donors various programs to help them overcome the mental and physical effects of Lichen Sclerosus.

Click to learn more about the program
We need your Help

It takes a team of dedicated volunteers to help with research, copywriting, web design, event planning, etc., to bring quality lichen sclerosus education to our LS community.

We can use your help. That's why we're calling for all volunteers.

Click to view our volunteer job board

How to Donate

Sponsor an Event
  • Help our organization provide quality content
  • Advertise your company with us
  • Support Lichen Sclerosus education and awareness
Donate Time or Services
  • Volunteer your time to advance the mission
  • Donate your service or product
  • Make a one-time donation or become a continuous sponsor

Lichen Sclerosus is more common than we think and it's often missed and this is really important.
Jill Krapf, MD

Get the Facts
Find answers to our most frequently asked questions.
Get Support
Join our virtual support.
Get A Provider
Search our referral based provider directory.

Lichen Sclerosus Blogs and Videos

Graphic image design of the silhouettes of 4 people standing back to back, representing the strength and resilience behind the LS community. The title text above reads LSSN 2023 Year in Review.
November 20, 2023
LSSN End-of-Year Wrap-Up and Hope for the Future
What has LSSN been up to in 2023? Click to read our year in review, new research, and what's to come for 2024.
Image of Jaclyn with red lipstick, a bright mustard yellow shirt, long brown hair and cat-eye liner pointing at the title text which reads: "Non-ablative laser for lichen sclerosus: Is it better than ablative laser"?
November 16, 2023
Non-Ablative Laser for Lichen Sclerosus
Ablative lasers can help with symptoms, but aren't a treatment for LS. Is non-ablative laser for lichen sclerosus better? Click to find out!
Image of an Asian person, in a soft pink long dress, with a pregnant belly pointing at text that reads "Lisa's lichen scleorsus pregnancy journey".
November 6, 2023
Lisa’s Lichen Sclerosus Pregnancy Journey
Ever wondered about pregnancy and lichen sclerosus? Click to read Lisa's lichen sclerosus pregnancy journey.
Image of Jaclyn wearing red lipstick and a red t-shirt with long brown hair and cat-eye liner pointing at the title text, which reads: "Ablative Laser for Lichen Sclerosus: Is It an Effective Treatment?".
November 2, 2023
Ablative Laser for Lichen Sclerosus: Is It an Effective Treatment?
Steroids do not work for everyone; so what about ablative laser for lichen sclerosus? Is it a good treatment option? Click to learn more.

Meet the Executive Board

Lauren Connelly
Lauren Connelly
Kathy Ruiz-Carter
Kathy Ruiz-Carter
Jaclyn Lanthier
Jaclyn Lanthier

Words from the Community

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    We're here to help. Send us a message and we'll get back to you as soon as possible.