What is Lichen Sclerosus?

Lichen Sclerosus is an inflammatory chronic skin condition that mostly affects the anogenital skin. It creates localized inflammation, which changes the texture of the skin. The skin can turn white and appear waxy. The most common symptoms are itching, tears, architectural changes, and pain with sex (dyspareunia). Although there is no current cure for Lichen Sclerosus, it can be managed with proper treatment and care.

Learn more about Lichen Sclerosus
women sitting on a sofa contemplating on what Lichen Sclerosus is

What's Happening at LSSN?

LS Digital Zine

The LS Zine Project is our newest initiative. We want to collect your stories, poems, artwork, and interviews about living with LS. And release them in May 2023 at this year's Holistic Healing Summit so we can raise awareness and let people know they are not alone.

LS has gain visibility over the last few years. As we grow as a community it's important everyone's voices are heard.

All contributions are welcome. Let's talk about all aspects of living with LS, from the everyday routines to the physical, emotional, and intimate dimensions of the condition. We welcome anonymous submissions.

Deadline to submit: March 15, 2023

Apply to be in the Zine
The LSSN Membership is OPEN!

We are pleased to announce the new Lichen Sclerosus Support Network membership!

In partnership with LS Warrior LLC, we will provide our recurring monthly and annual donors various programs to help them overcome the mental and physical effects of Lichen Sclerosus.

Click to learn more about the program
We need your Help

It takes a team of dedicated volunteers to help with research, copywriting, web design, event planning, etc., to bring quality lichen sclerosus education to our LS community.

We can use your help. That's why we're calling for all volunteers.

Click to view our volunteer job board

How to Donate

Sponsor an Event
  • Help our organization provide quality content
  • Advertise your company with us
  • Support Lichen Sclerosus education and awareness
Donate Time or Services
  • Volunteer your time to advance the mission
  • Donate your service or product
  • Make a one-time donation or become a continuous sponsor

Lichen Sclerosus is more common than we think and it's often missed and this is really important.
Jill Krapf, MD

Get the Facts
Find answers to our most frequently asked questions.
Get Support
Find support resources.
Get A Provider
Search our referral based provider directory.

Lichen Sclerosus Blogs and Videos

Unraveling the Mystery of Lichen Sclerosus Treatment with Dr. Jill Krapf
March 17, 2023
Unraveling the Mystery of Lichen Sclerosus Treatment with Dr. Jill Krapf
Want to learn more about the mystery of steroid treatment? Join me as I speak to Dr. Jill Krapf and we debunk steroid myths.
Image of a wood table with the word 'steroids' spelled out with blue, yellow, and green colored alphabet letter magnets.
March 13, 2023
Lichen Sclerosus Treatment Series Part 1: Steroids
Rarely do doctors give us all the information about steroids to treat lichen sclerosus. Click here to learn all about steroids for LS.
Image of Jaclyn in a red One Piece Film Red t-shirt, cat eye makeup, and long brown hair. The title text reads: "lichen sclerosus and sexual health symptoms".
March 10, 2023
Sexual Health Symptoms and Lichen Sclerosus
Curious to learn more about sexual health symptoms and lichen sclerosus? Click here for an evidence-based overview.
How to Apply Topical Steroid Treatment for Lichen Sclerosus Correctly
March 4, 2023
How to Apply Topical Steroid Treatment for Lichen Sclerosus Correctly
Were you given topical steroids as a treatment for your Lichen Sclerosus but not told how to use them properly? No worries we got you covered.

Meet the Executive Board

Lauren Connelly
Lauren Connelly
Kathy Ruiz-Carter
Kathy Ruiz-Carter
Jaclyn Lanthier
Jaclyn Lanthier

Words from the Community

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