I was just recently diagnosed last week with LS and here in Canada sadly to say there is not much information on LS so glad I found you...!!! Just this last week I think I handled my flare up if you will call it...I think I have always had this but this time it was severe enough for me to go to the Emergency hospital and was told from an ER Dr what i have just by one look he said those 2 words Lichen Sclerosus so he took a swab to rule out a Yeast infection ( which i knew was not one ) told me to go see a Gynecologist and get a Biopsy swab done and I got the prescription for the Taro-Clobetasol cream....I was so scared when I left the hospital I got home and Googled Lichen Sclerosus and there you were!!!! So I want to Thank you for helping me through this week you are the reason I feel better today and its been 1 week and my Yoo Hoo feels so much better. I am looking forward to tommorrow to learn more and Hey....maybe just maybe help get a cure for this... but first we need to know why this is happening I am glad to be a member with Lichen Sclerosus society... Thank you Kathy

Hi everyone! I just wanted to take a few minutes to write an LSSN appreciation post. I joined LS Warriors about a month ago, and it has been nothing short of life changing for me. After so many years of feeling isolated and ashamed about having LS, and often being very secretive about it, it's been so empowering to see a community of women rallying together, sharing stories and wisdom, and supporting each other. I think it has helped me move from a place of grief and paralysis to a place of action and curiosity. As much as having LS sucks, I'm starting to see it as an opportunity to connect with my body and learn about it deeply, in community with you all. So THANK YOU Kathy and the amazing women who curate, participate, and hold space for this group! I so appreciate you.

You are gold! Hello! Your podcast is outstanding!! Thank you!! I was just diagnosed this past December 2022. Your topics on your podcast are so helpful and informative. Now I’m headed to your website. God bless you and thank you!!

The good thing is I found your Website and I've learned so much from Dr Jill and Jaclyn and you. I'm back to using the clobetasol ointment a couple times a week to prevent flare ups. I learned that the LS skin down there is thicker than regular skin. So I feel comfortable using the ointment. It's so nice to feel normal down there again. Well almost..... What a difference. I can sleep all night without waking.. Wish I had good information years ago. Probably would not have fused. But doctors just don't know that much about LS. At least back in 2016. The Website is so informative with the different guests and actual LS sufferers telling their experiences.

I hesitantly stumbled upon your podcast, through your instagram. I didn’t want to realize that many more people were struggling with the same thing as me. My diagnosing doctor passed away this year and I know I will not be able to replace him. I was referred to him after being treated like I was having multiple partners & chronic yeast infections. I am still searching for a good fit for my disease and appreciate your podcast for what it is. 10/10 would recommend! Thanks for all you do & say!

I wanted to express my gratitude for all you do and share some additional appreciation because I really do say a huge thank you from my heart, this two meet ups have been so helpful. I look forward to our next meet up.

Based on what I have learned from your show, I am convinced I have LS, and am armed with the knowledge and confidence to advocate for myself when I finally do see her. In the meantime, I'm listening to the podcast daily and using some of the tips you've shared to help me deal with the symptoms (mainly the itch!). Thanks to you, I haven't had to suffer for years like you and so many others have. I, and I'm sure so many others, am eternally grateful for your courage and honesty.

I just want to say ths LS support network has done wonders for me, my mental health and coming to terms with my condition.

Hi Kathy! I just wanted to write a note to you and tell you I was diagnosed with LS yesterday. I’m 27. I was super overwhelmed and felt like my health issues were spinning out of control. I also have celiac disease (diagnosed 9 years ago) and Hashimoto’s (diagnosed 3 months ago). Since watching your videos, I actually felt like everything began to make sense! I have so much more clarity now and a lot less guilt about my issues! And especially thanks to you, I was able to apply the ointment on correctly on my first night!! Thank you so much for the work you do. It is so incredible to feel a network of support right when I need it 💖

I have listened to MOST of Kathy's podcasts, and they have been a sanity saver!