What is Lichen Sclerosus?

Lichen Sclerosus is an inflammatory chronic skin condition that mostly affects the anogenital skin. It creates localized inflammation, which changes the texture of the skin. The skin can turn white and appear waxy. The most common symptoms are itching, tears, architectural changes, and pain with sex (dyspareunia). Although there is no current cure for Lichen Sclerosus, it can be managed with proper treatment and care.

Learn more about Lichen Sclerosus
women sitting on a sofa contemplating on what Lichen Sclerosus is

What's Happening at LSSN?

LS Digital Zine

The LS Zine Project is our newest initiative. We have collected your stories, poems, artwork, and interviews about living with LS. And released them to raise awareness and let people know they are not alone.

LS has gain visibility over the last few years. As we grow as a community it's important everyone's voices are heard.

Download your FREE copy today and share it with a someone to help bring more awareness to this condition.

Download your copy of the LS Zine
The LSSN Membership is OPEN!

We are pleased to announce the new Lichen Sclerosus Support Network membership!

In partnership with LS Warrior LLC, we will provide our recurring monthly and annual donors various programs to help them overcome the mental and physical effects of Lichen Sclerosus.

Click to learn more about the program
We need your Help

It takes a team of dedicated volunteers to help with research, copywriting, web design, event planning, etc., to bring quality lichen sclerosus education to our LS community.

We can use your help. That's why we're calling for all volunteers.

Click to view our volunteer job board

How to Donate

Sponsor an Event
  • Help our organization provide quality content
  • Advertise your company with us
  • Support Lichen Sclerosus education and awareness
Donate Time or Services
  • Volunteer your time to advance the mission
  • Donate your service or product
  • Make a one-time donation or become a continuous sponsor

Lichen Sclerosus is more common than we think and it's often missed and this is really important.
Jill Krapf, MD

Get the Facts
Find answers to our most frequently asked questions.
Get Support
Join our virtual support.
Get A Provider
Search our referral based provider directory.

Lichen Sclerosus Blogs and Videos

Image of four people of different ages and skin color sitting together wearing vibrant colored clothing representing clothing and lichen sclerosus.
September 25, 2023
Clothing and Lichen Sclerosus
Clothing and lichen sclerosus can be complicated. Click hear to learn what clothing to avoid, what is LS friendly, and general clothing advice
Graphic image of red, blue, and cream colored bottles and jars of barrier cream, emollients, and salves.
September 21, 2023
Barrier Cream or Emollient: Which is Better for Lichen Sclerosus
Emollient, barrier cream, salve, balm - what's the difference between these and which is best for lichen sclerosus? Click to learn more.
LSSN Mini Summit on Vulvovaginal Conditions
September 20, 2023
LSSN Mini Summit on Vulvovaginal Conditions
Here are 5 reasons you need to be at this year's LSSN Mini Summit on vulvovaginal Conditions to take control if your vulvar health.
Image of people with different body types and skin tones wearing underwear as this post discusses underwear and lichen sclerosus
September 11, 2023
Underwear and Lichen Sclerosus: What Kind is Best
If you have lichen sclerosus you may be wondering what underwear is best for you? Click to learn more about underwear and LS options.

Meet the Executive Board

Lauren Connelly
Lauren Connelly
Kathy Ruiz-Carter
Kathy Ruiz-Carter
Jaclyn Lanthier
Jaclyn Lanthier

Words from the Community

    Have a question? Need a resource?

    We're here to help. Send us a message and we'll get back to you as soon as possible.