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Lichen Sclerosus is a chronic inflammatory autoimmune skin condition that mostly affects the female anogenital skin. It creates localized inflammation, which changes the texture of the skin. The skin can turn white and appear waxy. The most common symptoms are itching, tears, architectural changes, and pain with sex (dyspareunia). Although there is no current cure for Lichen Sclerosus, it can be managed with proper treatment and care.
The Lichen Sclerosus Support Network is a beacon of support and empowerment for individuals and couples navigating the challenges of Lichen Sclerosus. Our international non-profit organization recognizes LS’s far-reaching impact on physical and emotional well-being, extending beyond the initial diagnosis.
LSSN goes beyond simply providing information. We foster a supportive community through educational resources, workshops, and online forums. By offering easy-to-understand, evidence-based knowledge and fostering open conversations about living with LS, the network empowers individuals and couples to overcome obstacles and rewrite their love stories, fostering inclusivity and understanding throughout their journey.
Your donations make it possible for us to fund our organization and programs so we can change the future of people with Lichen Sclerosus worldwide.
If you’ve been piecing together symptoms that don’t seem to fit, you’re not imagining it. Sometimes the full picture takes looking beyond a single diagnosis.
Some people living with lichen sclerosus later discover they also have lichen planus. Others spend months trying to understand symptoms that don’t quite fit a single diagnosis. If that’s been your experience, you don’t have to do the heavy lifting alone anymore.
That’s why we created AboutLichenPlanus.com, a trusted educational resource with expert interviews, patient guides, and practical tools to help you better understand lichen planus, including when it overlaps with lichen sclerosus.
Whether you discover you have lichen sclerosus, lichen planus, or both, you deserve answers, expert education, and a community that understands what you’re experiencing. We’ll be here every step of the way.

Tired of the endless cycle of Googling, the fear-mongering on social media, and the unsolicited advice? We get it. The LS Warrior community is your sanctuary from the chaos.
Imagine a space where you can:
Join us and discover a community that champions informed decisions, body autonomy, and a whole lot of support.
Your Lichen Sclerosus journey doesn't have to be a solo mission. Let's rise together.

It takes a team of dedicated volunteers to help with research, copywriting, web design, event planning, etc., to bring quality lichen sclerosus education to our LS community.
We can use your help. That's why we're calling for all volunteers.

Living with a vulvar condition like lichen sclerosus shouldn’t mean sacrificing comfort or style. Pavone Lingerie was born from this very struggle. Founder Janneke Schellekens, diagnosed with LS herself, couldn’t find underwear that soothed her sensitive skin or prevented emollients from staining her clothes.
Her solution? Luxuriously soft bamboo underwear, designed with your vulva’s unique needs in mind. Experience the silky softness of bamboo against your skin, while feeling secure knowing our special barrier keeps emollients where they belong.
As a member of our LSSN family, you enjoy 25% off your next order with the code LSSN.

So you don't have to fight alone anymore
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