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What is Lichen Sclerosus?

Lichen Sclerosus is an inflammatory chronic skin condition that mostly affects the anogenital skin. It creates localized inflammation, which changes the texture of the skin. The skin can turn white and appear waxy. The most common symptoms are itching, tears, architectural changes, and pain with sex (dyspareunia). Although there is no current cure for Lichen Sclerosus, it can be managed with proper treatment and care.

Learn more about Lichen Sclerosus
women sitting on a sofa contemplating on what Lichen Sclerosus is

What's Happening at LSSN?

LSSN Has Joined The Autoimmune Registry!

We are proud to announce we are now a part of the Autoimmune Registry Network. Together, we can share data and further research on autoimmune diseases. We're now connected with others autoimmune disease groups looking to advance research for new treatments.

We're excited to see the advancements this collaboration brings!

Check out the Autoimmune registry
Spark the Flame: Sex, Intimacy, & LS.

Did you miss our last live event, Spark the Flame?

Dr. Carolin Klein taught us how to navigate intimacy with confidence, even when dealing with LS.

She covered three important topics that will help you take control of your intimacy:

Communication: You'll learn how to openly and honestly communicate your needs and desires with your partner.

Emotional connection: Explore ways to strengthen your emotional bond with your partner beyond just sex.

Break intimacy stereotypes: Discover a world of possibilities beyond traditional expectations.

Dr. Carolin Klein, a leading sex therapist, will be leading the event with her compassionate and expert guidance.

Click to watch the replay
LSSN Is A 2023 Top-Rated Nonprofit!

You made it possible!

Thank you to everyone who has shared and continues to share their reviews on GreatNonprofits.org website. By sharing your stories and experiences, LSSN has become one of the first 2023 Top-Rated Nonprofits of the year.

This honor makes it possible for more donors and potential volunteers to find our organization and help further our mission.

If LSSN has touched your life please consider sharing your review so even more people can find us.

Click to share your review
The LSSN Membership is OPEN!

We are pleased to announce the new Lichen Sclerosus Support Network membership!

In partnership with LS Warrior LLC, we will provide our recurring monthly and annual donors various programs to help them overcome the mental and physical effects of Lichen Sclerosus.

Click to learn more about the program
We need your Help

It takes a team of dedicated volunteers to help with research, copywriting, web design, event planning, etc., to bring quality lichen sclerosus education to our LS community.

We can use your help. That's why we're calling for all volunteers.

Click to view our volunteer job board

International Bi-weekly LS Support Virtual Meetups

Support from People who Understand
Who better to share your story with and get answers from then others going through the same thing.
Evidence-based Information not Advice
No one can tell you what to do with your body. We'll tell you what the evidence says. You take what you need and leave the rest. There is no one-size fits all in LS.
Available to Everyone with Vulvar LS
We meet every other Saturday from 2-4 and 7-9 PM EST, to make the meetups accessible to all time zones. We provide an inclusive environment and respect everyone's pronouns and identity.
Security
Not only will you be surrounded by friends, our meeting are held on a password protected secure platform. Your login information will be emailed to you within a week of the next meetup.
Strength in Numbers
There's something freeing and empowering about telling your story to a group who gets it. It will give you the strength and power to continue the fight.
Signup For Our Free Virtual Meetups

How to Donate

Sponsor an Event
  • Help our organization provide quality content
  • Advertise your company with us
  • Support Lichen Sclerosus education and awareness
Donate Time or Services
  • Volunteer your time to advance the mission
  • Donate your service or product
  • Make a one-time donation or become a continuous sponsor

Lichen Sclerosus is more common than we think and it's often missed and this is really important.
Jill Krapf, MD

Get the Facts
Find answers to our most frequently asked questions.
Get Support
Join our virtual support.
Get A Provider
Search our referral based provider directory.

Lichen Sclerosus Blogs and Videos

Video Thumbnail. Shows Dr. Mauskar and Kathy's profile in front of a purple background with a large white oval between them. In the oval it says "Hormones and vulvar microbiome in Lichen sclerosus ft Dr. Melissa Mauskar."
March 1, 2024
Unraveling the Hormone and Microbiome Puzzle in Lichen Sclerosus
Discover the latest research on hormones and the microbiome in lichen sclerosus. Dr. Melissa Mauskar shares insights on her latest research and its role in future LS research.
Graphic design image of a person with black hair in a bobbed haircut, light blue 3/4 length shirt shrugging their shoulders with a puzzled look on their face to indicate confusing over lichen sclersosus and vulvar psoriasis.
February 26, 2024
Vulvar Lichen Sclerosus and Vulvar Psoriasis
Misdiagnoses are common in the vulvar health space. Learn about the differences between lichen sclerosus and vulvar psoriasis here.
Graphic design of image of a yellow and orange bowl with white powder (to represent borax) amongst a purple background. The top title text says: "Lichen Sclerosus and Borax".
February 15, 2024
Lichen Sclerosus and Borax
Lichen sclerosus and borax is a controversial topic within the LS community. To learn about LSSN's position on borax, click here.
Image of Jaclyn with long brown hair in a black dress pointing at the title text on the left which reads: "What does remission mean for vulvar lichen sclerosus".
February 15, 2024
Remission and Vulvar Lichen Sclerosus
Click to learn more about remission and vulvar lichen sclerosus. What it is, how it's diagnosed, and if you can have symptoms in remission.

Meet the Executive Board

Pam Cobb
Pam Cobb
President
Detail
Kathy Ruiz-Carter
Kathy Ruiz-Carter
Vice-President/Treasurer
Detail
Jaclyn Lanthier
Jaclyn Lanthier
Secretary
Detail

Words from the Community

    Have a question? Need a resource?

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