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Novel NonSteroidal Lichen Sclerosus Study: Your Experience Could Help Others

What is Lichen Sclerosus?

Lichen Sclerosus is a chronic inflammatory autoimmune skin condition that mostly affects the female anogenital skin. It creates localized inflammation, which changes the texture of the skin. The skin can turn white and appear waxy. The most common symptoms are itching, tears, architectural changes, and pain with sex (dyspareunia). Although there is no current cure for Lichen Sclerosus, it can be managed with proper treatment and care.

The Lichen Sclerosus Support Network is a beacon of support and empowerment for individuals and couples navigating the challenges of Lichen Sclerosus. Our international non-profit organization recognizes LS's far-reaching impact on physical and emotional well-being, extending beyond the initial diagnosis.

LSSN goes beyond simply providing information. We foster a supportive community through educational resources, workshops, and online forums. By offering easy-to-understand, evidence-based knowledge and fostering open conversations about living with LS, the network empowers individuals and couples to overcome obstacles and rewrite their love stories, fostering inclusivity and understanding throughout their journey.

Learn more about Lichen Sclerosus
women sitting on a sofa contemplating on what Lichen Sclerosus is

What's Happening at LSSN?

Missed the Wholistic Healing Summit? Unlock a World of Lichen Sclerosus Knowledge!

The Wholistic Healing Summit might be over, but the opportunity to learn, heal, and connect is still here! Our replays offer a deep dive into the physical, emotional, and relational aspects of living with lichen sclerosus.

Whether you're newly diagnosed or seeking new insights, these recordings are packed with expert advice, practical tips, and heartwarming stories from the LS community.

What You'll Discover:

  • Medical Expertise: Learn about the latest treatments, management strategies, and research breakthroughs from renowned specialists.
  • Emotional Well-being: Gain tools for coping with stress, anxiety, and the emotional impact of LS.
  • Relationships & Intimacy: Navigate intimacy challenges and strengthen your connections with loved ones.
  • Self-Care & Empowerment: Discover holistic approaches to well-being and find your voice in the LS community.

    For a limited time, you can get access to ALL of this for a fraction of the cost!

    Lifetime Replay Access + Exclusive Bonuses: $99 (Includes a comprehensive PDF guide and bonus sessions!)

    Don't miss out on this transformative opportunity. Let the Wholistic Healing Summit be your guide on the journey to a healthier, happier you.

  • Click for more details and to get your Pass
    Leading Experts in Vulvar Health Join LSSN Circle of Support's Mission

    The LSSN Circle of Support is thrilled to announce a powerful new partnership with The Center for Vulvovaginal Disorders (CVVD)! As a leading authority on lichen sclerosus and other vulvar conditions, CVVD brings invaluable expertise and resources to our mission.

    With locations in New York City, Washington DC, and Tampa, FL, their team of renowned specialists, including Drs. Andrew Goldstein, Jill Krapf, and Chailee Moss, has helped thousands of women find relief and healing.

    Explore their groundbreaking research, educational resources, and comprehensive treatment options on their website today.

    Go to the CVVD website
    Ditch the Lichen Sclerosus Drama. Find Your Community of Empowered Warriors.

    Tired of the endless cycle of Googling, the fear-mongering on social media, and the unsolicited advice? We get it. The LS Warrior community is your sanctuary from the chaos.

    Imagine a space where you can:

    • Cut through the noise: Access curated, expert-backed resources and ditch the endless scroll.
    • Share your story without judgment: Connect with others who truly understand your experience, no matter where you are on your LS journey.
    • Take back control: Arm yourself with knowledge, support, and the confidence to advocate for your health.

    Join us and discover a community that champions informed decisions, body autonomy, and a whole lot of support.

    Your Lichen Sclerosus journey doesn't have to be a solo mission. Let's rise together.

    Join the LS Warriors Community
    Check Out Our Annual Report

    LSSN is on a mission to empower people with lichen sclerosus and reduce the time to diagnosis.

    2023 was an amazing year of growth at Lichen Sclerosus Support Network. We

    * Started three new education streams
    * Held more live virtual events
    * Reached more people then ever before
    * Made awesome partnerships
    * And so much more!

    Check out our 2023 Annual Report to get all the details.

    We could not have done it without the support of our amazing community. Thank you!

    We're looking to do bigger and better things this year. we hop you're ready to give people all over the world their lives back.

    Because we sure are!

    Read our 2023 Annual Report
    LSSN Has Joined The Autoimmune Registry!

    We are proud to announce we are now a part of the Autoimmune Registry Network. Together, we can share data and further research on autoimmune diseases. We're now connected with others autoimmune disease groups looking to advance research for new treatments.

    We're excited to see the advancements this collaboration brings!

    Check out the Autoimmune registry
    We need your Help

    It takes a team of dedicated volunteers to help with research, copywriting, web design, event planning, etc., to bring quality lichen sclerosus education to our LS community.

    We can use your help. That's why we're calling for all volunteers.

    Click to view our volunteer job board

    International Monthly LS Support Virtual Meetups

    Support from People who Understand
    Who better to share your story with and get answers from then others going through the same thing.
    Evidence-based Information not Advice
    No one can tell you what to do with your body. We'll tell you what the evidence says. You take what you need and leave the rest. There is no one-size fits all in LS.
    Available to Everyone with Vulvar LS
    We meet every 4 weeks on Saturday from 2-4 and 7-9 PM EST, to make the meetups accessible to all time zones. We provide an inclusive environment and respect everyone's pronouns and identity.
    Security
    Not only will you be surrounded by friends, our meeting are held on a password protected secure platform. Your login information will be emailed to you within a week of the next meetup.
    Strength in Numbers
    There's something freeing and empowering about telling your story to a group who gets it. It will give you the strength and power to continue the fight.
    Signup For Our Free Virtual Meetups

    How to Donate

    Join our Circle of Support
    • Help our organization provide quality content
    • Share your business with our community
    • Support evidence-based Lichen Sclerosus education and support
    Donate Time or Services
    • Volunteer your time to advance the mission
    • Donate your service or product
    • Make a one-time donation or become a continuous sponsor

    Lichen Sclerosus is more common than we think and it's often missed and this is really important.
    Jill Krapf, MD

    Get the Facts
    Get an overview of lichen sclerosus.
    Get Support
    Join our private community.
    Get A Provider
    Search our referral based provider directory.

    Lichen Sclerosus Blogs and Videos

    Image of a pregnant person with brown skin in a pink dress and a positive pregnancy test to the right of them.
    May 26, 2024
    New Research on Pregnancy and Vulvar Lichen Sclerosus
    What do you need to know about pregnancy and vulvar lichen sclerosus? Click to learn more about the latest research.
    Graphic design image of a person in a red dress holding their hands over their pelvic area to represent needing to go pee/urinary frequency and a bladder with a grimaced expression and tears coming out of its eyes.
    May 19, 2024
    Does Vulvar Lichen Sclerosus Affect the Bladder?
    We know vulvar lichen sclerosus affects the vulva, but does vulvar lichen sclerosus affect the bladder? Click to learn more.
    Graphic design image of a larger person with long black hair sitting in purple underwear representing anti-fat bias and vulvar lichen sclerosus.
    May 12, 2024
    Anti-Fat Bias, Misdiagnoses, and Vulvar Lichen Sclerosus
    Can anti-fat bias contribute to delayed diagnosis for people with vulvar lichen sclerosus? Click here to learn more.
    Image of Jaclyn with long brown hair, cat-eye winged eyeliner, red lipstick and a mauve shirt pointing at the title text which reads, "How to treat and manage a vulvar lichen sclerosus flare."
    May 9, 2024
    How to Treat and Manage a Vulvar Lichen Sclerosus Flare
    Do you know how to treat a vulvar lichen sclerosus flare? Or how to manage symptoms during a flare? Click to learn more.

    Meet the Executive Board

    Pam Cobb
    Pam Cobb
    Chief Executive Officer
    Detail
    Kathy Ruiz-Carter
    Kathy Ruiz-Carter
    President/Treasurer
    Detail
    Jaclyn Lanthier
    Jaclyn Lanthier
    Secretary
    Detail

    Words from the Community

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