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What is Lichen Sclerosus?

Lichen Sclerosus is an inflammatory chronic skin condition that mostly affects the anogenital skin. It creates localized inflammation, which changes the texture of the skin. The skin can turn white and appear waxy. The most common symptoms are itching, tears, architectural changes, and pain with sex (dyspareunia). Although there is no current cure for Lichen Sclerosus, it can be managed with proper treatment and care.

Learn more about Lichen Sclerosus
women sitting on a sofa contemplating on what Lichen Sclerosus is

What's Happening at LSSN?

LS Zine Submissions Open Again!

The LS Zine Project is our newest initiative. We have collected your stories, poems, artwork, and interviews about living with LS. And released them to raise awareness and let people know they are not alone.

Our first edition was a big success. And we're ready to highlight your stories again. Submissions are open until February 20, 2024 at https://bit.ly/LS-Zine-2024

Haven't downloaded your FREE copy yet? Click the link below today and share it with a someone to help bring more awareness to this condition.

Download your copy of the LS Zine
LSSN Is A 2023 Top-Rated Nonprofit!

You made it possible!

Thank you to everyone who has shared and continues to share their reviews on GreatNonprofits.org website. By sharing your stories and experiences, LSSN has become one of the first 2023 Top-Rated Nonprofits of the year.

This honor makes it possible for more donors and potential volunteers to find our organization and help further our mission.

If LSSN has touched your life please consider sharing your review so even more people can find us.

Click to share your review
The LSSN Membership is OPEN!

We are pleased to announce the new Lichen Sclerosus Support Network membership!

In partnership with LS Warrior LLC, we will provide our recurring monthly and annual donors various programs to help them overcome the mental and physical effects of Lichen Sclerosus.

Click to learn more about the program
We need your Help

It takes a team of dedicated volunteers to help with research, copywriting, web design, event planning, etc., to bring quality lichen sclerosus education to our LS community.

We can use your help. That's why we're calling for all volunteers.

Click to view our volunteer job board

How to Donate

Sponsor an Event
  • Help our organization provide quality content
  • Advertise your company with us
  • Support Lichen Sclerosus education and awareness
Donate Time or Services
  • Volunteer your time to advance the mission
  • Donate your service or product
  • Make a one-time donation or become a continuous sponsor

Lichen Sclerosus is more common than we think and it's often missed and this is really important.
Jill Krapf, MD

Get the Facts
Find answers to our most frequently asked questions.
Get Support
Join our virtual support.
Get A Provider
Search our referral based provider directory.

Lichen Sclerosus Blogs and Videos

Graphic design image of a person with black hair in a bobbed haircut, light blue 3/4 length shirt shrugging their shoulders with a puzzled look on their face to indicate confusing over lichen sclersosus and vulvar psoriasis.
February 26, 2024
Vulvar Lichen Sclerosus and Vulvar Psoriasis
Misdiagnoses are common in the vulvar health space. Learn about the differences between lichen sclerosus and vulvar psoriasis here.
Graphic design of image of a yellow and orange bowl with white powder (to represent borax) amongst a purple background. The top title text says: "Lichen Sclerosus and Borax".
February 15, 2024
Lichen Sclerosus and Borax
Lichen sclerosus and borax is a controversial topic within the LS community. To learn about LSSN's position on borax, click here.
Image of Jaclyn with long brown hair in a black dress pointing at the title text on the left which reads: "What does remission mean for vulvar lichen sclerosus".
February 15, 2024
Remission and Vulvar Lichen Sclerosus
Click to learn more about remission and vulvar lichen sclerosus. What it is, how it's diagnosed, and if you can have symptoms in remission.
Image of a person with white skin and a yellow sweater and long brown hair with teal colored question marks around their head. There are two thought bubbles which read: "Lichen sclerosus or vulvar dermatitis".
February 3, 2024
Lichen Sclerosus or Vulvar Dermatitis
Lichen sclerosus or vulvar dermatitis? Learn the differences between the two conditions and whether your LS care is causing dermatitis here.

Meet the Executive Board

Pam Cobb
Pam Cobb
President
Detail
Kathy Ruiz-Carter
Kathy Ruiz-Carter
Vice-President/Treasurer
Detail
Jaclyn Lanthier
Jaclyn Lanthier
Secretary
Detail

Words from the Community

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