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  • The Lichen Sclerosus Blog

    Are you tired of finding conflicting information on the internet about Lichen Sclerosus? You're in the right place if you’re looking for quality, educational, evidence-based information!

    The Lichen Sclerosus Blog posts every Tuesday on topics like treatments, sexual health, mental health, and more!

    Subscribe to our blog to receive email notifications when we post a new blog.

    LSSN End-of-Year Wrap-Up and Hope for the Future

    Jaclyn Blog

    What has LSSN been up to in 2023? Click to read our year in review, new research, and what's to come for 2024.

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    • Lisa's Lichen Sclerosus Pregnancy Journey

      Jaclyn Blog

      Ever wondered about pregnancy and lichen sclerosus? Click to read Lisa's lichen sclerosus pregnancy journey.

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    • Laser Therapy for Lichen Sclerosus: Experimental Treatment Series

      Jaclyn Blog

      Have you debated trying laser therapy for lichen sclerosus? Want to learn more about if laser is right for you? Click to learn more.

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    • Platelet-Rich Plasma for Lichen Sclerosus: Experimental Treatment Series

      Jaclyn Blog

      Is platelet-rich plasma for lichen sclerosus is a good treatment option? Click to learn more about PRP and lichen sclerosus.

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    • Clothing and Lichen Sclerosus

      Jaclyn Blog

      Clothing and lichen sclerosus can be complicated. Click hear to learn what clothing to avoid, what is LS friendly, and general clothing advice

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    • LSSN Mini Summit on Vulvovaginal Conditions

      Kathy Blog, Kathy Video

      Here are 5 reasons you need to be at this year's LSSN Mini Summit on vulvovaginal Conditions to take control if your vulvar health.

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    • Underwear and Lichen Sclerosus: What Kind is Best

      Jaclyn Blog

      If you have lichen sclerosus you may be wondering what underwear is best for you? Click to learn more about underwear and LS options.

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    • Lichen Sclerosus Treatment Versus Adjunct Therapy

      Jaclyn Blog

      Learn more about the difference between treatment and adjunct therapy and how you can make the most of your treatment plan by clicking here.

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    • A Look at Acceptance and Resilience. What Does It Mean?

      Kathy Blog

      Want to learn more about acceptance, resilience, and Lichen Sclerosus? Look no further! Click to join us on this round table discussion!

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    • Lichen Planus or Lichen Sclerosus? Can You Have Both?

      Jaclyn Blog

      Are you wondering about the differences between lichen planus and lichen sclerosus? Curious if you can have both? Click to learn more.

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    • Pelvic Floor Physical Therapy for Those with Lichen Sclerosus

      Kathy Blog

      Ever wonder how pelvic floor physical therapy can help your LS? You aren't the only one. PFPT Ashley /stump breaks it down for us.

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    • Lichen Sclerosus & Menopause: What's the Difference?

      Jaclyn Blog

      Not sure if your symptoms are from menopause or lichen sclerosus? Click here to learn more about this fundamental difference.

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    • Kintsugi: How I Learned to Love my Vulva Again

      Jaclyn Blog

      Lichen sclerosus can cause changes to the physical appearance of the vulva. Learn how Kintsugi can help heal your relationship to your vulva.

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    • What's the best lube for Lichen Sclerosus?

      Kathy Blog

      Ever wonder what lube you should try if you have Lichen Sclerosus? Click to read about types of lube and what to consider in picking one.

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    • Lichen Sclerosus and Pregnancy

      Jaclyn Blog

      Do you have lichen sclerosus and are thinking of getting pregnant? Want to learn more about lichen sclerosus & pregnancy? Click here to read.

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    • Take Part In The Revolutionary GRIDD Study Today

      Kathy Blog

      As a patient with a dermatology condition, we ask that you help create the largest database of patients. Join the GRIDD study today.

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    • Lichen Simplex Chronicus and LS: What’s the Difference?

      Jaclyn Blog

      Uncertain if you have lichen simplex chronicus or lichen sclerosus? Can you have both? Click here to learn more.

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    • LS Zine Giving Voice to Patients Around the World

      Kathy Blog

      Download LSSN's LS Zine to read stories and poetry, see artwork, and hear interviews from lichen sclerosus patients around the world.

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    • Chronic Pain and Lichen Sclerosus: What is Going On?

      Jaclyn Blog

      Click to reach this post on chronic pain and lichen sclerosus. Learn about the causes and what you can do to manage your pain.

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    • Giving Yourself Grace

      Kathy Blog

      Do you struggle with mental health and Lichen Sclerosus? Click here for 4 tips on how to give yourself grace with your struggles!

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    • Pain from Lichen Sclerosus: The Fundamentals

      Jaclyn Blog

      Do you experience pain from lichen sclerosus? Want to learn more about how pain can manifest and how to manage pain? Click to learn more.

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    • Is Lichen Sclerosus Lowering Your Sex Drive?

      Kathy Blog

      Do you have Lichen Sclerosus and are struggling with your sex drive? Want to find out why? Come and find tips on how to get your drive back.

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    • Pediatric Lichen Sclerosus: What You Need to Know to Support your Child

      Jaclyn Blog

      Do you think your child has pediatric lichen sclerosus? Are you looking for information to help support your child? Click to read more.

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    • Grooming with Vulvar Lichen Sclerosus (with video)

      Kathy Blog

      Curious about grooming when you have vulvar Lichen Sclerosus? We brought in an expert to answer your questions.

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    • Lichen Sclerosus & Surgery: What Does the Science Say?

      Jaclyn Blog

      Did you know surgery may be an option for you if you have lichen sclerosus? Click here to read about surgery and lichen sclerosus.

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    • Does long-term use of topical steroids thin vulvar skin?

      Kathy Blog

      Many people with Lichen Sclerosus worry that long-term use of topical steroids will thin their skin and cause damage. But there’s a lot to consider about this gold standard for treatment. In a recent interview, Dr. Jill Krapf helped clear up the confusion.

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    • Lichen Sclerosus Treatment Series: Calcineurin Inhibitors

      Jaclyn Blog

      Did you know there's a non-steroidal treatment for lichen sclerosus? Click here to learn more about calcineurin inhibitors for LS.

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    • Lichen Sclerosus (W)holistic Healing Summit 2023

      Kathy Blog

      If you have LS and are looking for evidenced-based whole-body lichen sclerosus information, you need to be at the (W)holistic Healing Summit.

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    • Lichen Sclerosus Treatment Series Part 2: Steroids

      Jaclyn Blog

      What are the side effects of steroids for LS? What should you do if you have a side effect? Click here to learn more.

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    • How I Successfully Overcame the Fear of Performing My Vulva Check

      Kathy Blog

      Are you doing your vulva check? The first time can be scary, especially with lichen sclerosus. Read to get helpful resources.

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    • Lichen Sclerosus Treatment Series Part 1: Steroids

      Jaclyn Blog

      Rarely do doctors give us all the information about steroids to treat lichen sclerosus. Click here to learn all about steroids for LS.

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    • How to Apply Topical Steroid Treatment for Lichen Sclerosus Correctly

      Kathy Blog

      Were you given topical steroids as a treatment for your Lichen Sclerosus but not told how to use them properly? No worries we got you covered.

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    • The Clitoris & Lichen Sclerosus: What You Need To Know

      Jaclyn Blog

      Clitoral phimosis can lead to pain and loss of sensation for folks with vulvar lichen sclerosus. Click to read more about clitoral health.

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    • She Reversed Severe Clitoral Adhesions Without Surgery

      Kathy Blog

      Suffering from clitoral fusing? Read how one LS patient reversed severe clitoral adhesions without surgery in less than eight weeks!

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    • Architectural Changes & Lichen Sclerosus

      Jaclyn Blog

      Click here to learn more about what architectural changes are for folks with lichen sclerosus and how you can prevent them from happening.

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    • Can Constipation and Urinary Incontinence be Relieved with Pelvic Physical Therapy?

      Kathy Blog

      Suffering from constipation or urinary incontinence? Holly Horikawa, a pelvic physical therapist, reveals how to break the vicious cycle.

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    • Burnt – Stop Ignoring my (Vulvar/Pelvic) Pain

      Jaclyn Blog

      Pelvic and vulvar pain is political. Click here to read a guest post by Sabrina Sarro on the political aspects of living with vulvar pain.

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    • The 4 Important Elements to the Right Lichen Sclerosus Support Group

      Kathy Blog

      Struggling with the emotional and mental health side of LS? Discover how to find the right lichen sclerosus support group you need to thrive.

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    • What I Want Doctors To Know: LS Edition

      Jaclyn Blog

      Living with lichen sclerosus can be hard. Here are all the things I want doctors treating lichen sclerosus to know.

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    • 4 Brave Lichen Sclerosus Diagnosis Stories. You are NOT Alone.

      Kathy Blog

      Having lichen sclerosus can feel like a lonely experience, but sharing our stories reminds us that we’re not alone. In this blog, members of the Lichen Sclerosus Support Network share their diagnosis stories.

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    • The Importance of Feeling Heard

      Jaclyn Blog

      Click here to read about this crucial yet often overlooked aspect of healing and lichen sclerosus – the power of being heard.

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    • How to be a Better Self Advocate in Your Healthcare

      Kathy Blog

      Feel like you and your doctor are never on the same page? Learn my three-stage process to becoming a better self advocate.

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    • How to Overcome Appointment Anxiety so You Can be Your Best Advocate

      Kathy Blog

      Don't let appointment anxiety get in the way of advocating for yourself. Learn three easy steps to overcoming appointment anxiety!

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