Lichen Sclerosus Research Is Changing: New Treatments & What I Learned at ISSVD 2026

Lichen Sclerosus Research Is Changing: New Treatments & What I Learned at ISSVD 2026

Introduction If you’re not familiar with ISSVD, it’s the International Society for the Study of Vulvovaginal Disease, and this Congress brings together some of the clinicians and researchers working at the forefront of vulvar and vaginal health. And there was so much presented at ISSVD 2026 that I wanted to bring some of it back to you—but without making you sit through hours of scientific presentations or decipher research jargon. So in this video, I’m breaking down some of the research and conversations that stood out to me most as a patient advocate, in normal-person language, and focusing on what I think actually matters to patients. Some Important Notes Before We Dive In And yes, before we get started: this is a long one! If you've followed my work for any length of time, you probably know how passionate I am about vulvar-health research. After spending several days surrounded by…
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I Didn’t Expect Another Diagnosis… Living with Hashimoto’s + Lichen Sclerosus

I Didn’t Expect Another Diagnosis… Living with Hashimoto’s + Lichen Sclerosus

Introduction - Returning to My Roots: A Raw and Honest Conversation Today, I’m going back to my roots, sharing openly, honestly, and vulnerably about a recent shift in my health. I was diagnosed with Hashimoto’s thyroiditis, an autoimmune condition that affects the thyroid, and it’s changed the way I understand my body, my symptoms, and my journey with vulvar lichen sclerosus (VLS). This isn’t just another diagnosis. It’s a piece of a much bigger picture. I hope sharing my story (once again) will help more people. Watch the video below. https://www.youtube.com/watch?v=bAHQWywATRo Understanding Hashimoto’s in the Context of Autoimmune Disease Hashimoto’s is an autoimmune condition where the immune system attacks the thyroid. This can impact energy levels, metabolism, weight, mood, and overall well-being. But what’s important (and often not talked about enough) is that autoimmune diseases don’t tend to exist in isolation. If you have one autoimmune condition, like vulvar lichen…
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Does Stress Cause Vulvar Lichen Sclerosus?

Does Stress Cause Vulvar Lichen Sclerosus?

Introduction A common experience in processing a vulvar lichen sclerosus (VLS) diagnosis is understanding what happened. “What went wrong?”, “Why did this happen to me?” and “What caused this?” are common questions we here in our community. I know I (Jaclyn) have definitely gone down the ‘cause’ rabbit hole, trying to figure out just what exactly happened to my body to result in VLS. Today, we will discuss a topic that most people can relate to–stress. Specifically, we will address the question, “Does stress cause vulvar lichen sclerosus?” as this is one of the top questions we hear during our virtual meetups, Instagram DMs, and emails. First, we discuss what stress is and then address whether stress causes VLS. Second, we address the flip side of this question, “Can VLS cause stress?”. Finally, we share different ways to help manage stress and develop greater stress resilience. *This post is evidence-based;…
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LSSN End-of-Year Wrap-Up and Hope for the Future

LSSN End-of-Year Wrap-Up and Hope for the Future

Introduction I can’t believe I’m saying this, but 2023 is moving quickly towards a close. With that, we at LSSN wanted to do a little end-of-year reflection on this past year and offer some hope for the future. We will review some of the key events and milestones from LSSN, as well as exciting LS research that came out and what to look out for from us in 2024. If you're more of a visual person, enjoy this year-end review with our Executive director Kathy Ruiz-Carter. https://youtu.be/MejM6rg2gMc First Up, Some Gratitude First of all, we want to extend a tremendous and heartfelt thank you to our beautiful LS community. We appreciate all that you do to spread the word about us, telling your doctors about LSSN, liking and sharing our content, and donating. Kathy and I have the special honor of knowing many of you through the LSSN’s free bi-weekly…
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Sexual Health Resources for Lichen Sclerosus

Sexual Health Resources for Lichen Sclerosus

Introduction For today’s video, we are going to chat about sexual health resources for lichen sclerosus. I begin by reviewing what a sex therapist is and how to find and vet a sex therapist. After, I highlight a number of different sexual health resources for lichen sclerosus as not everyone is able to work with a sex therapist. Such resources include educational podcasts, key figures to follow on social media, books and practices, and events and workshops. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. https://www.youtube.com/watch?v=XCThBj6-ggo Free Vetting a Potential Sex Therapist…
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A Look at Acceptance and Resilience. What Does It Mean?

A Look at Acceptance and Resilience. What Does It Mean?

Listen to the podcast here: Introduction And Excited Announcements Hey, and welcome! I’m so glad you are here to join a round table discussion about the concepts of acceptance and resilience we had live with some members of the LSSN membership. The concepts of acceptance and resilience are critical to living with a condition such as Lichen Sclerosus. In this discussion, I asked our participants a series of questions relating to these concepts and Lichen Sclerosus. If you want to join future discussions? Click the button below. Sign Up What is your definition of acceptance and resilience? What do those words mean to you, specifically concerning your Lichen Sclerosus? Jen: I think of the concept of acceptance as being able to admit that you have a condition/disease without simultaneously giving up/throwing in the towel. Acceptance for me means my Lichen Sclerosus is a part of me, but it is not…
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