Pain Archives

LSSN Mini Summit on Vulvovaginal Conditions

Sep

LSSN Mini Summit on Vulvovaginal Conditions

https://www.youtube.com/watch?v=lLPT8xf6F7U As we all know, education is foundational to health. If we don’t know about our bodies and vulvovaginal conditions, it’s difficult to take care of them. LSSN exists to empower people with LS through evidence-based information and support. And this year, we’re bringing you even more opportunities to access information and experts in the field. For the first time, LSSN is hosting a mini-summit! The LSSN Mini Summit: Vulvovaginal Conditions is a 3-day virtual event that will provide you with the information and support you need to take control of your vulvar health. It will take place Friday, September 29, through Sunday, October 1, 2023. You'll learn from leading experts about vulvovaginal conditions rarely discussed, including Lichen Sclerosus. Other conditions include: Hidradenitis Suppurativa Persistent Pelvic Nerve Pain Persistent Genital Arousal Disorder Genitourinary Syndrome of Menopause Lichen Simplex Chronicus Overactive Pelvic Floor Muscles. You'll also be able to connect with…

Pain Relief Without Pills: Ashlie Crewe’s Guide to Treating Persistent Pelvic Pain

Mar

By Kathy

Kathy Video

Pain Relief Without Pills: Ashlie Crewe’s Guide to Treating Persistent Pelvic Pain

Do you suffer from persistent pelvic pain and have been told that it is “all in your head”? If so, you are not alone. Ashlie Crewe, a Physical Therapist with a Psychology degree, embarks on a journey to help patients manage their chronic pain using neuroscience, only to find her own trial by fire as she discovers a unique way to challenge a patient's overprotective nervous system. "The beautiful thing, good and bad, is that physical therapists, we're not allowed to prescribe medicine in the United States. So I think one of the cool things about my job then is we're really taught to work with the human body, and we're not allowed to order imaging, we're not allowed to prescribe medications.” Who is Ashlie Crewe? Ashlie Crewe is a Pelvic Health physical therapist and teacher/mentor to Pelvic Health physical therapists across the United States. She has a passion for…

Jaclyn’s Lost Labia Journey: Surviving Alone

Feb

By Kathy

Podcast

Jaclyn’s Lost Labia Journey: Surviving Alone

https://youtu.be/CKS9Znvi38w Watch this week's interview. Listen to the Podcast here: Introduction and Some Exciting New Announcements! Hey! Welcome to the Lichen Sclerosus Podcast show notes. I have a very special LS Warrior with us today, Jaclyn, who is going to share the story of her journey with Lichen Sclerosus. Her progression from feeling alone and hopeless to empowered and thriving is captivating! Jaclyn is truly a beacon of light in our Lichen Sclerosus community and her story is sure to captivate you. Before we jump into her story, I want to thank our sponsor, the Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping bring information, education, and most importantly support to all Lichen Sclerosus warriors. Be sure to follow them on IG and FB @lichensclerosussupportnetwork. Continue reading to the end for exciting announcements coming from LSSN! Jaclyn’s First Warning: Painful Sex Jaclyn started having symptoms…

Carrie Bock’s LS Journey: From Pain to Love

Feb

By Kathy

Podcast

Carrie Bock’s LS Journey: From Pain to Love

Listen to the podcast here: Welcome to the second episode of Season 2 of Lichen Sclerosus Podcast! Today we have a diagnosis story from an amazing woman, Carrie Bock, who tells us about her journey from pain and shame with sex to acceptance and empowerment of herself and her disease. Keep reading to find out how Carrie moved from painful sex from Lichen Sclerosus to being in a loving marriage, with healthy, pain-free sex. Carrie’s Christian Upbringing Carrie grew up in a conservative, Christian environment. In her house, sex was never discussed. Her family never spoke about things like going through puberty, what it meant to be a woman and sex. In her church, there was a lot of shame and fear around sex. Sex and being a sexual person were negatively portrayed. Furthermore, in middle school, the form of sex education she received was fear-based. It focused on scaring…