How To Help Children Affected by Pediatric Lichen Sclerosus

https://youtu.be/n_kMuoUogL0 Introduction Today I am joined by the amazing dermatologist, Dr. Sandy Flann, who is an expert on pediatric Lichen Sclerosus. Dr. Flann was the lead clinician for pediatric dermatology at the Orpington Hospital in the UK. She now works for West Kent Dermatology. She has been treating patients for over 20 years. Yes, you heard that right, Pediatric Lichen Sclerosus! As we know, Lichen Sclerosus can affect anyone, of any age - children included. Unfortunately, there is a lack of research and resources for parents of children with Lichen Sclerosus. So, today we're going to find out about treatment, what to look for, the progression of symptoms, and how we can help our children become comfortable in their skin. This is an important episode if you have a child with LS, or if you plan on having children (as it’s important to know some of the warning signs to…
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How to Find Peace After Stress Triggers Your LS, Jennifer’s Story

How to Find Peace After Stress Triggers Your LS, Jennifer’s Story

Watch the interview here: https://youtu.be/w0GRYydvRsM Listen to the interview here Introduction and Excited Announcements In today’s episode, we are joined by Jen, who is one of my OG followers, and my ride-or-die ladies! I’m so thrilled she is here with us to share the amazing story of her journey with Lichen Sclerosus. Jen’s journey involves a traumatic birth and a lot of stress to her vulva and vagina. She discusses what this process was like, how her symptoms manifested after the birth of her daughter, her diagnosis, and how she now deals with stress and Lichen Sclerosus. Lichen Sclerosus Support Network - A Huge Thank You To Our Sponsor! Before we jump into today’s episode, however, I want to thank our sponsor, the Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping bring information, education, and most importantly, support to all Lichen Sclerosus warriors. Be sure…
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Self-Advocating To Help Beat Vulvar Cancer

Self-Advocating To Help Beat Vulvar Cancer

https://youtu.be/DC-u_GJrlIg Listen to the podcast here: Today we are joined (again) by therapeutic nutrition consultant, LS warrior, and vulvar cancer survivor, Heather Cooan. Last episode we heard her diagnosis story. Unfortunately, Heather went undiagnosed for over 25 years, allowing her Lichen Sclerosus to develop into cancer. This was a gross failure of the medical system. In today’s episode, we learn how Heather advocated for herself and fought for her values. Doing so allowed Heather’s Lichen Sclerosus to go into remission and she is now cancer-free! Her story reminds us of the importance of self-advocacy in the medical realm. Before we dive back into her story, however, I want to thank our sponsor, the Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping bring information, education, and most importantly support to all Lichen Sclerosus warriors. Be sure to follow them on IG and FB @lichensclerosussupportnetwork. Continue reading…
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How the Medical System Failed Heather Cooan

How the Medical System Failed Heather Cooan

Watch the interview Here: https://youtu.be/OIV2Li68RJ4 Or listen to it Here: Introduction And Some Exciting New Announcements! Hey! Welcome to episode six of season 2 of Lichen Sclerosus Podcast. Today we are joined by therapeutic nutrition consultant, LS warrior, and cancer survivor, Heather Cooan. Heather’s journey from how the medical system let her down to self-advocacy and taking control of her health and body is nothing short of incredible.  Her story will be told in two parts. Today, we begin with when Heather’s symptoms first began to manifest, how they impacted her life, and how she was repeatedly let down by the system. Before we jump into her story, however, I want to thank our sponsor, the Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping bring information, education, and most importantly support to all Lichen Sclerosus warriors. Be sure to follow them on IG and FB…
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The Lost Labia Journey: Finding Community

The Lost Labia Journey: Finding Community

Watch the interview here: https://www.youtube.com/watch?v=HOMphC0g6F0 Listen to the audio only here: Intro and Some Exciting New Announcements! Welcome to the fifth episode of Season 2 of Lichen Sclerosus Podcast! Today we are continuing Jaclyn’s story. In last week’s episode, we discussed the beginning of Jaclyn’s journey with Lichen Sclerosus. Early in her journey, Jaclyn experienced painful sex and a lot of fear and anxiety concerning her body and her future. Despite having a sex therapist, a pelvic floor physiotherapist, and compassionate friends and family, she still felt very alone in her diagnosis. She longed for a community where she could find support and support others. In today’s episode, Jaclyn shares how she found community, connection, and friendship with others who had Lichen Sclerosus. She also shares her journey from painful sex to pain-free, pleasurable sex. Before we jump into part two of her story, I want to thank our sponsor,…
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Jaclyn’s Lost Labia Journey: Surviving Alone

Jaclyn’s Lost Labia Journey: Surviving Alone

https://youtu.be/CKS9Znvi38w Watch this week's interview. Listen to the Podcast here: Introduction and Some Exciting New Announcements! Hey! Welcome to the Lichen Sclerosus Podcast show notes. I have a very special LS Warrior with us today, Jaclyn, who is going to share the story of her journey with Lichen Sclerosus. Her progression from feeling alone and hopeless to empowered and thriving is captivating! Jaclyn is truly a beacon of light in our Lichen Sclerosus community and her story is sure to captivate you. Before we jump into her story, I want to thank our sponsor, the Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping bring information, education, and most importantly support to all Lichen Sclerosus warriors. Be sure to follow them on IG and FB @lichensclerosussupportnetwork. Continue reading to the end for exciting announcements coming from LSSN! Jaclyn’s First Warning: Painful Sex Jaclyn started having symptoms…
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Carrie Bock’s LS Journey: From Pain to Love

Carrie Bock’s LS Journey: From Pain to Love

Listen to the podcast here: Welcome to the second episode of Season 2 of Lichen Sclerosus Podcast! Today we have a diagnosis story from an amazing woman, Carrie Bock, who tells us about her journey from pain and shame with sex to acceptance and empowerment of herself and her disease. Keep reading to find out how Carrie moved from painful sex from Lichen Sclerosus to being in a loving marriage, with healthy, pain-free sex. Carrie’s Christian Upbringing Carrie grew up in a conservative, Christian environment. In her house, sex was never discussed. Her family never spoke about things like going through puberty, what it meant to be a woman and sex. In her church, there was a lot of shame and fear around sex. Sex and being a sexual person were negatively portrayed. Furthermore, in middle school, the form of sex education she received was fear-based. It focused on scaring…
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How Gratitude can top Fear and Anxiety when you have Lichen Sclerosus

How Gratitude can top Fear and Anxiety when you have Lichen Sclerosus

*A general disclaimer for this episode: This post deals with some real frank talk about challenging our anxieties concerning Lichen Sclerosus via gratitude. If you are not in a place to hear this yet, please skip over this episode/post. Before wrapping up this season, I wanted to bring you all one more episode. I wanted to discuss the topic of gratitude. Particularly, how we can harness the power of gratitude to overcome fear and anxiety related to Lichen Sclerosus. How do Fear and Anxiety Impact Mental Health When You Have Lichen Sclerosus? There are so many negative emotions and thoughts that come with a Lichen Sclerosus diagnosis. For example, fear, anger, sadness, shame, resentment, and confusion are just some of the many emotions you might experience. You might have thoughts such as: “What if I can never have sex again?” “What if I can’t have kids?” “What if I get…
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My Lichen Sclerosus Diagnosis Story: Kathy

My Lichen Sclerosus Diagnosis Story: Kathy

I'm so excited to bring back one of my favorite guests to discuss my Lichen Sclerosus diagnosis story. Lou! If you don't know who Lou is go back and listen to the episode "Lou's Diagnosis Story". She is so much fun and I could not wait to speak with her again. We go in-depth on my lichen sclerosus diagnosis story and discuss some of the decisions I made. My hope is that you learn something from my experiences or at the very least know that you are not alone. Please reach out: IG - https://www.instagram.com/lichensclerosuspodcast/ FB - https://www.facebook.com/lichensclerosussupportnetwork Don't forget to signup for the virtual meetup.
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How to STILL have a great relationship DESPITE Lichen Sclerosus

How to STILL have a great relationship DESPITE Lichen Sclerosus

Introduction Hey! Welcome! Have you ever thought about how Lichen Sclerosus will or has affected your relationship? Have you felt like Lichen Sclerosus was a death sentence to your current or future relationships? If yes, you want to listen to this episode. In this episode, I provide actionable tips about what we can do for our partners, what they can do for us, and what we can do for each other in order to have a great relationship. So, grab your partner and give it a listen together or have them listen to it on their own. Inspiration for the Episode This podcast episode was inspired by a man who reached out to me on Instagram. He was looking for advice on how he could support his girlfriend who was newly diagnosed with Lichen Sclerosus. It was incredibly touching to have a conversation with someone who genuinely wanted to learn…
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