Unraveling the Hormone and Microbiome Puzzle in Lichen Sclerosus

Unraveling the Hormone and Microbiome Puzzle in Lichen Sclerosus

Hey friend! I recently had the pleasure of chatting with Dr. Melissa Mauskar, a true rockstar in the world of vulvar health research. She illuminated some fascinating new findings about the hormone and microbiome landscapes in lichen sclerosus. I walked away feeling so hopeful about how this work might improve patient care down the road! 🙌 Dr. Mauskar broke down the key takeaways in an accessible way - no need for a medical degree to follow along! Whether you have lichen sclerosus yourself or treat patients, I think you'll find this chat insightful. A few highlights that caught my ear: The role of progesterone and other hormones in LS skin How treatment impacts microbiome diversity Exciting areas for future research. Dr. Mauskar's passion for patient-centered care and collaboration across specialties to move the needle is inspiring. She helped me understand how this study into hormones and the vulvar microbiome in…
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LSSN Mini Summit on Vulvovaginal Conditions

LSSN Mini Summit on Vulvovaginal Conditions

https://www.youtube.com/watch?v=lLPT8xf6F7U As we all know, education is foundational to health. If we don’t know about our bodies and vulvovaginal conditions, it’s difficult to take care of them. LSSN exists to empower people with LS through evidence-based information and support. And this year, we’re bringing you even more opportunities to access information and experts in the field.  For the first time, LSSN is hosting a mini-summit! The LSSN Mini Summit: Vulvovaginal Conditions is a 3-day virtual event that will provide you with the information and support you need to take control of your vulvar health. It will take place Friday, September 29, through Sunday, October 1, 2023. You'll learn from leading experts about vulvovaginal conditions rarely discussed, including Lichen Sclerosus. Other conditions include: Hidradenitis Suppurativa Persistent Pelvic Nerve Pain Persistent Genital Arousal Disorder Genitourinary Syndrome of Menopause Lichen Simplex Chronicus Overactive Pelvic Floor Muscles. You'll also be able to connect with…
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Discussing The Mona Lisa Double-Blind Study with Leia Mitchell

Discussing The Mona Lisa Double-Blind Study with Leia Mitchell

In this episode, we look at the clinical trial done around Fractionated Carbon Dioxide Laser, also known as the Mona Lisa laser, with Leia Michell. We discuss why they felt the research was needed, who was in the trial, how they performed the trial, and the results. If you've got laser treatment, please let us know how it was for you in the comments below. Meet Leia Mitchell, a passionate and knowledgeable physician assistant whose expertise lies in the realm of Lichen Sclerosus treatment. Her commitment to the comprehensive understanding and management of this condition has led her to investigate the Mona Lisa laser's potential for helping those with Lichen Sclerosus. As a board-certified physician assistant, Leia's extensive experience and background allow her to provide expert guidance and advice to medical practitioners seeking the latest innovations in Lichen Sclerosus's care. Leia's dedication to her field has resulted in the groundbreaking…
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Unfiltered and Bold: Real Talk on Pelvic Health with Penny Petersson

Unfiltered and Bold: Real Talk on Pelvic Health with Penny Petersson

Does the constant discomfort in your pelvic area sound familiar? Have you tried medication or invasive procedures with little to no relief? It's time to take control of your pelvic wellness with holistic approaches that celebrate the power of your body. Join us to discover how embracing your pelvic area can alleviate pain and create a supportive community for those dealing with similar issues. Don't let chronic conditions hold you back any longer - it's time to unlock your potential for a fulfilling life. Empower yourself and join us for a journey towards pelvic health and wellness. The body is so fucking amazing. Penny Petersson Pelvic Yoga Coach My special guest is Penny Petersson You can catch a glimpse of Penny's infectious spirit on her Instagram page, @wellbeingbypenny, where she makes us smile by calling out the struggles of living with LS and pelvic health issues. This is Penny Petersson's…
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Discussing The Challenges of Lichen Sclerosus Research with Sophie Rees

Discussing The Challenges of Lichen Sclerosus Research with Sophie Rees

The surprising roadblocks of Lichen Sclerosus research - and how they were overcome! In this episode, you will be able to: Delve into the challenges faced in Lichen Sclerosus research and the consequences for affected individuals. Realize the value of spreading awareness about vulval and vaginal conditions to empower women. Grasp the essential role education and accurate diagnosis play in successfully treating Lichen Sclerosus. Investigate the impact of diverse and inclusive language in Lichen Sclerosus research on patient well-being. Recognize the importance of increasing healthcare access and improving treatments for Lichen Sclerosus patients. My special guest is Sophie Rees. Sophie Rees is a medical sociologist specializing in qualitative and mixed methods research to explore patient experience. She works at the University of Bristol Trials Centre, conducting qualitative research within randomized controlled trials. Sophie is the Chief Investigator of the ESRC-funded project Living with Vulval LS: A Mixed Methods Study, using…
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Unlocking Lichen Sclerosus Secrets: (W)holistic Healing Summit

Unlocking Lichen Sclerosus Secrets: (W)holistic Healing Summit

When Kathy started her podcast, she never imagined it would grow into something so much more - the Lichen Sclerosus Support Network and their annual (W)holistic Healing Summit. Now, every year, Kathy and her community strive to make a brighter tomorrow for those facing the same struggle she once did. But what does the future hold for this amazing network? In this episode, you will be able to: Experience the transformational effects of holistic healing on lichen sclerosus patients at the inspiring summit. Dive into the world of comprehensive resources to fill the information gap and learn more. Elevate your network by participating in interactive sessions and listening to expert talks within the community. Unfold necessary discussions on sexual health, pregnancy, and menopause related to lichen sclerosus. Choose from free, basic, or all-access passes to get different perk levels “It's important that you guys get that information in a way…
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Discussing how steroids affect lichen sclerosus patients with Dr. Jill Krapf

Discussing how steroids affect lichen sclerosus patients with Dr. Jill Krapf

Join me in the second part of this conversation with Dr. Jill Krapf, LS specialist; researcher; author; and educator, about her research review, "Topical Corticosteroids in the Treatment of Vulvar Lichen Sclerosus: A Review of Pharmacokinetics and Recommended Dosing Frequencies." When evaluating treatments for lichen sclerosis, one must consider all variables involved for optimal application. In this review article, the authors explore the science of the skin and the effects of inflammation, as well as the absorption of the medication. However, with limited research guiding us, the answer remains scattered and uncertain, leaving us with more questions than answers. In this episode, you will be able to: Discover the effectiveness of topical steroid treatments in managing Lichen Sclerosis. Understand skin absorption concerns and dosages when using steroid treatments. Uncover truths about the myths surrounding the long-term side effects of steroid use. Grasp the significance of adhering to proper steroid application…
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Unraveling the Mystery of Lichen Sclerosus Treatment with Dr. Jill Krapf

Unraveling the Mystery of Lichen Sclerosus Treatment with Dr. Jill Krapf

Join me as I talk to Dr. Jill Krapf, LS specialist; researcher; author; and educator, about all things steroids. What does it do to the skin? Why do we need it? And she answers some frequently heard steroid concerns. If you’re on the fence about or want to learn more about steroids, this is the episode for you. In this video, you will learn: 1. What is the current understanding of the cause of Lichen Sclerosus and what role do external stressors, diet, hormones, and trauma play? 2. How can topical steroids be effectively used to manage Lichen Sclerosus? 3. What are the best strategies for individualized care for Lichen Sclerosus? https://www.youtube.com/watch?v=NtFse-rcRwI Resources: Vulvar Lichen Sclerosus: Current Perspectives https://www.vulvodynia.com/assets/files/ijwh-191200-vulvar-lichen-sclerosus-current-perspectives.pdf Topical Corticosteroids in the Treatment of Vulvar Lichen Sclerosus: A Review of Pharmacokinetics and Recommended Dosing Frequencies https://vulvodynia.com/assets/files/Lichen-Sclerosus.pdf Center for Vulvovaginal Disorder http://cvvd.org LSSN Blogs: How to Apply Topical Steroid Treatment…
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Pain Relief Without Pills: Ashlie Crewe’s Guide to Treating Persistent Pelvic Pain

Pain Relief Without Pills: Ashlie Crewe’s Guide to Treating Persistent Pelvic Pain

Do you suffer from persistent pelvic pain and have been told that it is “all in your head”? If so, you are not alone. Ashlie Crewe, a Physical Therapist with a Psychology degree, embarks on a journey to help patients manage their chronic pain using neuroscience, only to find her own trial by fire as she discovers a unique way to challenge a patient's overprotective nervous system. "The beautiful thing, good and bad, is that physical therapists, we're not allowed to prescribe medicine in the United States. So I think one of the cool things about my job then is we're really taught to work with the human body, and we're not allowed to order imaging, we're not allowed to prescribe medications.” Who is Ashlie Crewe? Ashlie Crewe is a Pelvic Health physical therapist and teacher/mentor to Pelvic Health physical therapists across the United States. She has a passion for…
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The Way To Undo Severe Clitoral Fusing In One Visit Without Going Under The Knife

The Way To Undo Severe Clitoral Fusing In One Visit Without Going Under The Knife

In this episode, Dr. Rachel Rubin sheds light on the startling truth that 23% of all women suffer from Clitoral Phimosis, aka fusing. We later discuss how her innovative stretching procedure, non-surgical lysis of clitoral phimosis, has resulted in a 76% decrease in pain and a 64% increase in orgasm rate for these women. In this video, you will learn: Discover why 23% of all women have some degree of clitoral adhesions and what symptoms this can cause. Learn about a new procedure, non-surgical lysis of clitoral phimosis, that can help 76 % of women reduce pain, improve satisfaction with sex, increase sexual arousal, and even help 64% of women achieve orgasm for the first time. Uncover the secrets to treating lichen sclerosus optimally before any procedure, including what hormones and topical treatments can be used. Watch the interview replay on non-surgical lysis of clitoral fusing https://youtu.be/F5KO5LGXRx0 Resources: Read Dr.…
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Looking at Lichen Sclerosus Diet Studies for Hope and Guidance

Looking at Lichen Sclerosus Diet Studies for Hope and Guidance

Lichen Sclerosus diet studies are few and far between but our guest Erica Eberl went on the hunt so we can discuss what we can learn from the science. Erica Eberl is a 23-year-old dietitian and LS warrior who was diagnosed less than a year ago. She has used her skills and resources to research LS and diet and shares her findings to help others. After Erica Eberl was diagnosed with LS, she did extensive research on Lichen Sclerosus and diet and found three studies that she was able to share. One LS diet study from Italy found that avocado and soybean extract cream and a dietary strategy improved symptoms in women with mild to moderate LS, although it wasn't as effective as corticosteroids. A case-control study from Italy found that increased consumption of carotenoids (precursors to Vitamin A) was associated with less LS. Lastly, a study from Portugal found…
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Is the Autoimmune Protocol the Lichen Sclerosus Natural Treatment for You?

Is the Autoimmune Protocol the Lichen Sclerosus Natural Treatment for You?

Have you ever wondered if there was a Lichen Sclerosus natural treatment? Could you actually manage this condition with diet and lifestyle? Angie Alt, a social activist and researcher, takes on the challenge of managing her Lichen Sclerosus for 9 years through the Autoimmune Protocol, an ambitious goal that leads to a journey of self-discovery and healing. In this video, you will learn:1. How Angie Alt transformed the Paleo Diet into the Autoimmune Protocol to manage her Lichen Sclerosus naturally for 9 years.2. What is the Autoimmune Protocol and how can it help those living with Lichen Sclerosus?3. How to navigate the Autoimmune Protocol in a sustainable way with the help of Angie Alt’s program. https://youtu.be/6cKD3IhFOxw Resources:If you want to work with Angie or become an AIP-certified trainer, so you can use this Lichen Sclerosus natural treatment effectively, check out the links below. www.autoimmunewellness.com sadtoaip.com for AIP coaching program www.aipcertified.com Lichen Sclerosus…
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How Nutrition Therapy Could Help Manage Your Lichen Sclerosus

How Nutrition Therapy Could Help Manage Your Lichen Sclerosus

Can nutrition therapy help manage your Lichen Sclerosus? After Heather Cooan was denied care for 25 years and her Lichen Sclerosus developed into Vulvar Cancer, she fought back, healed herself, and now, as a certified nutrition therapy practitioner, she's helping others balance their hormones, identify triggers, and find hope to heal their LS.In this video, you will learn:1. What is the difference between a nutrition therapist and a dietitian?2. What is leaky gut, and how can it cause auto-immune diseases?3. What are the six buckets of triggers that can cause auto-immune diseases? Nutrition therapy is a way to look at all the factors in your diet, environment, and lifestyle to manage your Lichen Sclerosus. While challenging, it can also be rewarding. https://www.youtube.com/watch?v=dXNu_ptApCA Resources: Find out what buckets are triggering your health issues by taking Heather's test at https://heathercooan.com/lspodcast.  Dive deeper with Heather in our Holistic Healing Summit Replay video: Troubleshooting Your…
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