LSSN Mini Summit on Vulvovaginal Conditions
20
Sep
By Kathy
Kathy Blog, Kathy Video

LSSN Mini Summit on Vulvovaginal Conditions

https://www.youtube.com/watch?v=lLPT8xf6F7U As we all know, education is foundational to health. If we don’t know about our bodies and vulvovaginal conditions, it’s difficult to take care of them. LSSN exists to empower people with LS through evidence-based information and support. And this year, we’re bringing you even more opportunities to access information and experts in the field.  For the first time, LSSN is hosting a mini-summit! The LSSN Mini Summit: Vulvovaginal Conditions is a 3-day virtual event that will provide you with the information and support you need to take control of your vulvar health. It will take place Friday, September 29, through Sunday, October 1, 2023. You'll learn from leading experts about vulvovaginal conditions rarely discussed, including Lichen Sclerosus. Other conditions include: Hidradenitis Suppurativa Persistent Pelvic Nerve Pain Persistent Genital Arousal Disorder Genitourinary Syndrome of Menopause Lichen Simplex Chronicus Overactive Pelvic Floor Muscles. You'll also be able to connect with…
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Discussing The Mona Lisa Double-Blind Study with Leia Mitchell
07
Jul
By Kathy
Kathy Video

Discussing The Mona Lisa Double-Blind Study with Leia Mitchell

In this episode, we look at the clinical trial done around Fractionated Carbon Dioxide Laser, also known as the Mona Lisa laser, with Leia Michell. We discuss why they felt the research was needed, who was in the trial, how they performed the trial, and the results. If you've got laser treatment, please let us know how it was for you in the comments below. Meet Leia Mitchell, a passionate and knowledgeable physician assistant whose expertise lies in the realm of Lichen Sclerosus treatment. Her commitment to the comprehensive understanding and management of this condition has led her to investigate the Mona Lisa laser's potential for helping those with Lichen Sclerosus. As a board-certified physician assistant, Leia's extensive experience and background allow her to provide expert guidance and advice to medical practitioners seeking the latest innovations in Lichen Sclerosus's care. Leia's dedication to her field has resulted in the groundbreaking…
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Unfiltered and Bold: Real Talk on Pelvic Health with Penny Petersson
23
Jun
By Kathy
Kathy Video

Unfiltered and Bold: Real Talk on Pelvic Health with Penny Petersson

Does the constant discomfort in your pelvic area sound familiar? Have you tried medication or invasive procedures with little to no relief? It's time to take control of your pelvic wellness with holistic approaches that celebrate the power of your body. Join us to discover how embracing your pelvic area can alleviate pain and create a supportive community for those dealing with similar issues. Don't let chronic conditions hold you back any longer - it's time to unlock your potential for a fulfilling life. Empower yourself and join us for a journey towards pelvic health and wellness. The body is so fucking amazing. Penny Petersson Pelvic Yoga Coach My special guest is Penny Petersson You can catch a glimpse of Penny's infectious spirit on her Instagram page, @wellbeingbypenny, where she makes us smile by calling out the struggles of living with LS and pelvic health issues. This is Penny Petersson's…
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Discussing The Challenges of Lichen Sclerosus Research with Sophie Rees
09
Jun
By Kathy
Kathy Video

Discussing The Challenges of Lichen Sclerosus Research with Sophie Rees

The surprising roadblocks of Lichen Sclerosus research - and how they were overcome! In this episode, you will be able to: Delve into the challenges faced in Lichen Sclerosus research and the consequences for affected individuals. Realize the value of spreading awareness about vulval and vaginal conditions to empower women. Grasp the essential role education and accurate diagnosis play in successfully treating Lichen Sclerosus. Investigate the impact of diverse and inclusive language in Lichen Sclerosus research on patient well-being. Recognize the importance of increasing healthcare access and improving treatments for Lichen Sclerosus patients. My special guest is Sophie Rees. Sophie Rees is a medical sociologist specializing in qualitative and mixed methods research to explore patient experience. She works at the University of Bristol Trials Centre, conducting qualitative research within randomized controlled trials. Sophie is the Chief Investigator of the ESRC-funded project Living with Vulval LS: A Mixed Methods Study, using…
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Unlocking Lichen Sclerosus Secrets: (W)holistic Healing Summit
28
Apr
By Kathy
Kathy Video

Unlocking Lichen Sclerosus Secrets: (W)holistic Healing Summit

When Kathy started her podcast, she never imagined it would grow into something so much more - the Lichen Sclerosus Support Network and their annual (W)holistic Healing Summit. Now, every year, Kathy and her community strive to make a brighter tomorrow for those facing the same struggle she once did. But what does the future hold for this amazing network? In this episode, you will be able to: Experience the transformational effects of holistic healing on lichen sclerosus patients at the inspiring summit. Dive into the world of comprehensive resources to fill the information gap and learn more. Elevate your network by participating in interactive sessions and listening to expert talks within the community. Unfold necessary discussions on sexual health, pregnancy, and menopause related to lichen sclerosus. Choose from free, basic, or all-access passes to get different perk levels “It's important that you guys get that information in a way…
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Discussing how steroids affect lichen sclerosus patients with Dr. Jill Krapf
14
Apr
By Kathy
Kathy Video

Discussing how steroids affect lichen sclerosus patients with Dr. Jill Krapf

Join me in the second part of this conversation with Dr. Jill Krapf, LS specialist; researcher; author; and educator, about her research review, "Topical Corticosteroids in the Treatment of Vulvar Lichen Sclerosus: A Review of Pharmacokinetics and Recommended Dosing Frequencies." When evaluating treatments for lichen sclerosis, one must consider all variables involved for optimal application. In this review article, the authors explore the science of the skin and the effects of inflammation, as well as the absorption of the medication. However, with limited research guiding us, the answer remains scattered and uncertain, leaving us with more questions than answers. In this episode, you will be able to: Discover the effectiveness of topical steroid treatments in managing Lichen Sclerosis. Understand skin absorption concerns and dosages when using steroid treatments. Uncover truths about the myths surrounding the long-term side effects of steroid use. Grasp the significance of adhering to proper steroid application…
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Do you want to Get Your Sexy Back? You need this program.
31
Mar
By Kathy
Kathy Video

Do you want to Get Your Sexy Back? You need this program.

Has lichen sclerosus changed your sex life? Did you lose your self-confidence? Do you feel less at home in your body? Has your sexual identity been destroyed? Is your libido nonexistent? Like you have no desire for sex and intimacy? Here’s the thing. You are not alone! What if we had a way to turn it around? If you're ready to get your sexy back, you need to watch this video and go to https://lssupportnetwork.org/sexyback We spent months designing a unique program for folks with lichen sclerosus with chronic illness, sex educator Shauna Farabaugh. A one a kind of life-changing experience for our community. And you do not want to miss it. We're only accepting the first 15 people into the program. By attending the live classes, doing the practices, and interacting with the community, you will: Increase your libido and desire Learn how to communicate sexual desires and limits…
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Unraveling the Mystery of Lichen Sclerosus Treatment with Dr. Jill Krapf
17
Mar
By Kathy
Kathy Video

Unraveling the Mystery of Lichen Sclerosus Treatment with Dr. Jill Krapf

Join me as I talk to Dr. Jill Krapf, LS specialist; researcher; author; and educator, about all things steroids. What does it do to the skin? Why do we need it? And she answers some frequently heard steroid concerns. If you’re on the fence about or want to learn more about steroids, this is the episode for you. In this video, you will learn: 1. What is the current understanding of the cause of Lichen Sclerosus and what role do external stressors, diet, hormones, and trauma play? 2. How can topical steroids be effectively used to manage Lichen Sclerosus? 3. What are the best strategies for individualized care for Lichen Sclerosus? https://www.youtube.com/watch?v=NtFse-rcRwI Resources: Vulvar Lichen Sclerosus: Current Perspectives https://www.vulvodynia.com/assets/files/ijwh-191200-vulvar-lichen-sclerosus-current-perspectives.pdf Topical Corticosteroids in the Treatment of Vulvar Lichen Sclerosus: A Review of Pharmacokinetics and Recommended Dosing Frequencies https://vulvodynia.com/assets/files/Lichen-Sclerosus.pdf Center for Vulvovaginal Disorder http://cvvd.org LSSN Blogs: How to Apply Topical Steroid Treatment…
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Pain Relief Without Pills: Ashlie Crewe’s Guide to Treating Persistent Pelvic Pain
03
Mar
By Kathy
Kathy Video

Pain Relief Without Pills: Ashlie Crewe’s Guide to Treating Persistent Pelvic Pain

Do you suffer from persistent pelvic pain and have been told that it is “all in your head”? If so, you are not alone. Ashlie Crewe, a Physical Therapist with a Psychology degree, embarks on a journey to help patients manage their chronic pain using neuroscience, only to find her own trial by fire as she discovers a unique way to challenge a patient's overprotective nervous system. "The beautiful thing, good and bad, is that physical therapists, we're not allowed to prescribe medicine in the United States. So I think one of the cool things about my job then is we're really taught to work with the human body, and we're not allowed to order imaging, we're not allowed to prescribe medications.” Who is Ashlie Crewe? Ashlie Crewe is a Pelvic Health physical therapist and teacher/mentor to Pelvic Health physical therapists across the United States. She has a passion for…
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The Way To Undo Severe Clitoral Fusing In One Visit Without Going Under The Knife
17
Feb
By Kathy
Kathy Video

The Way To Undo Severe Clitoral Fusing In One Visit Without Going Under The Knife

In this episode, Dr. Rachel Rubin sheds light on the startling truth that 23% of all women suffer from Clitoral Phimosis, aka fusing. We later discuss how her innovative stretching procedure, non-surgical lysis of clitoral phimosis, has resulted in a 76% decrease in pain and a 64% increase in orgasm rate for these women. In this video, you will learn: Discover why 23% of all women have some degree of clitoral adhesions and what symptoms this can cause. Learn about a new procedure, non-surgical lysis of clitoral phimosis, that can help 76 % of women reduce pain, improve satisfaction with sex, increase sexual arousal, and even help 64% of women achieve orgasm for the first time. Uncover the secrets to treating lichen sclerosus optimally before any procedure, including what hormones and topical treatments can be used. Watch the interview replay on non-surgical lysis of clitoral fusing https://youtu.be/F5KO5LGXRx0 Resources: Read Dr.…
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