Vulvar Lichen Sclerosus, Autoimmune Conditions, & Comorbidities
Introduction When you receive a diagnosis of vulvar lichen sclerosus (VLS), the first wave of emotion is often relief. You finally have a name for what you have been experiencing. But very quickly, a second wave can follow. You start reading and see the words 'autoimmune' and 'cancer risk'. And then you see long lists of “associated conditions.” Panic sets in; as does fear, worry, anger, and more. It can feel like the diagnosis is growing beyond the vulva, and it can be downright terrifying (especially if you have health anxiety, as I (Jaclyn) do). Let’s slow this down. This post is about clarity. It’s about context. And most importantly, it’s about empowerment, not fear. We’re grounding this in peer-reviewed research, including the 2020 review by Krapf et al., De Luca et al. (2023), Tasker et al. (2020), etc., and translating it into something that actually helps you in a…

