Burnt – Stop Ignoring my (Vulvar/Pelvic) Pain

Burnt – Stop Ignoring my (Vulvar/Pelvic) Pain

Introduction Hey, beautiful soul. Today we have a guest post by the amazing Sabrina Sarro (they/them). Sabrina is a lead psychotherapist and clinical supervisor at Gray Matters, in New York City. They have their Master’s in social work (MSW), focusing on advanced clinical practice and intersectional social issues. Additionally, they MFA (Master's in Fine Arts) in Nonfiction and are a certified clinical trauma professional and are certified in DBT. They are also a PCOS and vulvovaginal health specialist who helps folks with chronic pelvic pain, painful sex, and other genital health conditions. Sabrina is especially passionate about creating a safe container for people of color (POC), queer, and TGNC (transgender and gender non-conforming) folks to explore their physical and mental health in order to heal. Learn more about them by clicking here. Sabrina lives with vulvar and pelvic pain and is still searching for a diagnosis, after seeing over 20 doctors…
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Overcoming Health Anxiety from Lichen Sclerosus

Overcoming Health Anxiety from Lichen Sclerosus

Introduction In this video, we are going to discuss health anxiety from lichen sclerosus. If you have health anxiety or aren't sure what it is, be sure to watch this video. I explain what health anxiety is, the three main defining characteristics, and how it can manifest and impact your quality of life. I share how your health anxiety may affect your LS. Finally, I speak from lived experience on what my journey on overcoming health anxiety from LS looked like and more! Be sure to like this video and subscribe to our channel for more educational LS content. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. https://www.youtube.com/watch?v=a8B9i3LQOZY&t=3s Important Links from to Health Anxiety from Lichen Sclerosus Get my FREE lichen sclerosus eBook with over 60+ pages of evidence-based information and support guidance here.…
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What I Want Doctors To Know: LS Edition

What I Want Doctors To Know: LS Edition

Introduction Many folks with lichen sclerosus have complicated relationships with their doctors and healthcare providers. If you ever felt gaslit or dismissed by your doctor, you are not alone. Similarly, if you have trust issues with doctors, you are also not alone. In this blog post, I am writing from the heart about what I want doctors who diagnose and treat lichen sclerosus to know. It is a call to do better and show up with compassion and empathy for your patients.  Of course, there are some wonderful providers out there who have a wealth of knowledge and who treat their patients as fellow human beings with respect and dignity - thank you to those of you already doing this work. Stay in the Loop! Never Miss a Blog Post, YouTube Video, Podcast Episode, Event, or Product Launch by Getting on Our Newsletter! Sign up to LSSN’s monthly newsletter here.…
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Vulva Checks for Lichen Sclerosus

Vulva Checks for Lichen Sclerosus

Introduction to Vulva Checks for Lichen Sclerosus In this video, we are going to discuss vulva checks for lichen sclerosus. I start by discussing why they are so important. I share what you need to do one, how to do one, and what you need to look out for in terms of lichen sclerosus. Additionally, I review two ways to document important changes and what to do if you suspect your LS is progressing. Be sure to like this video and subscribe to our channel for more educational LS content. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. https://www.youtube.com/watch?v=E9fnXDh5up4&t=5s Important Links Get my FREE lichen sclerosus eBook with over 60+ pages of evidence-based information and support guidance here. Join LSSN's FREE LS virtual support meetup here. Are you looking for more individualized support? I…
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The Importance of Feeling Heard

The Importance of Feeling Heard

Introduction Hey, beautiful soul. It’s Jaclyn from The Lost Labia Chronicles in partnership with Lichen Sclerosus Support Network (LSSN). Yup! If you follow me on social media (@thelostlabiachronicles) or are on my newsletter, you already know that I have partnered with LSSN to help reach more people with lichen sclerosus content and education. My goal in creating TLLC was always to help support folks in their LS journey by providing evidence-based information and to help folks with LS feel heard and supported. I was a one-woman team from 2021-2022.  However, I believe in joining forces with other powerful LS warriors in the LS community, we can reach even more people and have a deeper impact. Thus, I have partnered up with LSSN and will be creating content on LSSN’s website. This way folks with LS don’t have to go through multiple websites to find information and support resources; everything you…
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