New Research on Pregnancy and Vulvar Lichen Sclerosus

New Research on Pregnancy and Vulvar Lichen Sclerosus

Introduction For some time, the medical community believed that vulvar lichen sclerosus (VLS) primarily affected children and post-menopausal people. This meant younger adults were often left out of VLS conversations and research. Thanks to recent advances in VLS research and loud advocates for the VLS community, we now know people of all ages can be affected by VLS. At LSSN, we noticed a trend amongst newly diagnosed younger adults–a worry about pregnancy and vulvar lichen sclerosus. And we get it: a VLS diagnosis can be scary if you are pregnant or thinking about getting pregnant, especially since there is not a lot of research and information on this topic. We published two blog posts to help raise awareness about pregnancy and vulvar lichen sclerosus and to help bring more information on this topic to our community. One reviewed what the science said about pregnancy and VLS; another was a post…
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Lisa’s Lichen Sclerosus Pregnancy Journey

Lisa’s Lichen Sclerosus Pregnancy Journey

Introduction Many folks have questions about lichen sclerosus and pregnancy. We address the science behind lichen sclerosus and pregnancy here. However, we want to address this from a more lived experience perspective today. A while back, I opened a call on my Instagram page for folks who were willing to share their pregnancy and lichen sclerosus experience. Today, I’m sharing Lisa’s LS and pregnancy journey to help raise more awareness about LS and pregnancy. Lisa and I met for a virtual call to chat about her experience. What follows is my re-telling of her journey.  Lisa’s first pregnancy Lisa had had LS symptoms since she was a little girl. However, back then, the doctors were clueless as to why she was always itchy and uncomfortable. Consequently, she had to just kind of live with these symptoms.  By the time she got pregnant at 25, she was symptomatic but still did…
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Lichen Sclerosus and Pregnancy

Lichen Sclerosus and Pregnancy

Introduction In this post, I share what the science says about lichen sclerosus and pregnancy. Specifically, I look at treatment during pregnancy, risks and benefits of treating during pregnancy, and delivery. *This post is evidence-based; I draw on the medical literature to share what you need to know about pregnancy and lichen sclerosus. Importantly, what I share is my interpretation of the science and data. A Note on the Science of Lichen Sclerosus and Pregnancy We are all about transparency here at Lichen Sclerosus Support Network. What does that mean? That means we are always as honest as possible about the information and guidance we provide to our LS community. Thus, in the spirit of transparency, I want to note that there is not much research on lichen sclerosus and pregnancy. Of the few studies available, many are case studies (which are less robust than randomized controlled trials (RCTs)). Further,…
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