Are you starting your vulvar lichen sclerosus (VLS) journey? We know it can feel like a lot to handle. Finding reliable help for lichen sclerosus can be hard to find. That’s why we made this comprehensive resource just for you.
Here, you’ll find easy-to-understand information, tips for feeling better, and supportive communities who know what you’re going through. We’re here for you every step of the way, giving you the tools to take care of yourself and feel your best.
What Is Vulvar Lichen Sclerosus?
Knowledge is power. Learn what VLS is, how to treat it, and where to get more details.
Lichen Sclerosus Overview
Learn the who, what, when, and where of vulvar lichen sclerosus.
Treatment Guide
Get the ins and outs of current, future, and adjunct treatments.
Diet and LS
Find out how different food groups can affect your LS.
Where Can I Get Help Getting A Lichen Sclerosus Diagnosis?
Getting a vulvar LS diagnosis can take an average of 5-15 years and many doctors but it doesn’t have to.
What Kind of Doctor Do You Need for LS?
Knowing who we should see can be confusing and often lead to misdiagnosis. Learn about the different providers who treat LS.
Prepare With Our Biopsy Checklist
Biopsies are often used to diagnose vulvar lichen sclerosus. Use our checklist to prepare for before, during, and after the visit.
Making the Most of Your Doctor’s Visits
Appointments can be really stressful. Preparing beforehand and having a plan can go a long way. Check out our 5 must-haves.
How Do I Live With Vulvar Lichen Sclerosus?
Now that you’ve got a diagnosis, how do you maintain your quality of life? Check out these resources.
Don’t Let LS Take Over Your Life
VLS affects your whole life but it can be managed. Check out our playlist on living with LS and fight back.
Posts On The Things You Care About
Our extensive blog posts touch on all aspects of VLS. From underwear to treatment and everything in between.
A Reassuring Voice Empowering Your Journey
Sometimes you need to hear the information to feel connected. Check out our extensive video library.
Where Can I Get Helpful Lichen Sclerosus Support?
Tackling VLS is easier with a community. We’ve got options.
Join Us From Anywhere in the World
Learn about VLS in the company of people who get it. Share your story and ask questions at a monthly virtual meetup.
Safe, Secure, and 24/7 Inclusive Community
Do you value informed decisions, body autonomy, and support? Then you should be our next LS Warrior.
Not Ready for Community? No problem.
Need more 1-on-1 support? Reach out to Jaclyn from The Lost Labia Chronicles for knowledge and compassion.
Are There Products That Will Help My Lichen Sclerosus?
What products your body will like is very individualized. We’ve gathered some community favorites to make it easier for you to find.
One-Stop Shop For All Your Product Recommendations
From biopsy support to underwear, check out our Amazon store.
Where Can I Get Help For My Mental Health?
The mental health symptoms of vulvar lichen sclerosus are some of the worst. At LSSN we won’t let VLS steal our joy.
If you or a loved one is in immediate danger calling 911 or your local emergency number and talking with police may be necessary. It is important to notify the operator that it is a psychiatric emergency and ask for police officers trained in crisis intervention or trained to assist people experiencing a psychiatric emergency.
Are There Others Like Me?
Vulvar Lichen Sclerosus makes you feel like the only person in the world going through this journey. You’re NOT!
4 Brave Lichen Sclerosus Diagnosis Stories. You Are NOT Alone.
Join four brave souls as they share the ups and downs of their stories.
A New Baby and A New Diagnosis: Lou’s Lichen Sclerosus Story
Find out how Lou finally got diagnosed and is learning to live with LS.
How to Find Peace After Stress Triggers Your LS: Jennifer’s Story
Stress is a big trigger for LS, but you can overcome it.
Disclaimer:
The information provided on this Lichen Sclerosus Support Network (LSSN) resource page is intended for informational purposes only and should not be considered a substitute for professional medical advice. Always consult with a qualified healthcare provider for diagnosis and treatment. LSSN is not responsible for the content of external websites linked on this page. We encourage you to discuss any questions or concerns you may have about Lichen Sclerosus with your doctor or healthcare team.