Join Us & Empower Your LS Journey with In-Person Meetups in Florida.

Join Us & Empower Your LS Journey with In-Person Meetups in Florida.

Tired of feeling isolated and overwhelmed by lichen sclerosus? You're not alone. Join us for an intimate in-person meetups in Florida where you can: Connect with other locals who truly understand your journey Share your experiences in a safe and supportive space Learn from fellow patients and LSSN experts Find the support and resources you need to thrive Virtual support is great, but nothing replaces the power of in-person connection. At our meetups, you'll experience: The warmth of community: Share stories, offer encouragement, and celebrate successes together. Expert guidance: Learn the latest information and practical tips from LSSN Executive Director, Kathy Ruiz-Carter. Reliable information: Get your questions answered and clear up any confusion about LS. Empowerment: Leave feeling more confident and in control of your health. Meet A Leading Voice in the LS Space: Kathy Ruiz-Carter Our in-person Florida meetups are led by Kathy Ruiz-Carter, a Lichen Sclerosus educator with…
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A Look at Acceptance and Resilience. What Does It Mean?

A Look at Acceptance and Resilience. What Does It Mean?

Listen to the podcast here: Introduction And Excited Announcements Hey, and welcome! I’m so glad you are here to join a round table discussion about the concepts of acceptance and resilience we had live with some members of the LSSN membership. The concepts of acceptance and resilience are critical to living with a condition such as Lichen Sclerosus. In this discussion, I asked our participants a series of questions relating to these concepts and Lichen Sclerosus. If you want to join future discussions? Click the button below. Sign Up What is your definition of acceptance and resilience? What do those words mean to you, specifically concerning your Lichen Sclerosus? Jen: I think of the concept of acceptance as being able to admit that you have a condition/disease without simultaneously giving up/throwing in the towel. Acceptance for me means my Lichen Sclerosus is a part of me, but it is not…
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4 Brave Lichen Sclerosus Diagnosis Stories. You are NOT Alone.

4 Brave Lichen Sclerosus Diagnosis Stories. You are NOT Alone.

Listen to the podcast here: Getting a Lichen Sclerosus diagnosis can feel like a very lonely experience. Even though your experience is unique, there are aspects of it that run through thousands of people's stories all over the world. It is my honor to share diagnosis stories from a few members of the Lichen Sclerosus Support Network (LSSN). Sharing these experiences is so important because it helps us know that we are not alone. Lyna's Lichen Sclerosus Diagnosis, United States I was diagnosed about two years ago, but have had LS for five years. I was seeing my gynecologist and my general practitioner for three years, telling them about my symptoms of intense itching, burning, and fissures. Every time I'd come into the office, though, for a checkup, my fissures would be healed and nothing would be visible. They started testing me for STDs, bacterial vaginosis, yeast infection, etc., but…
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The Lost Labia Journey: Finding Community

The Lost Labia Journey: Finding Community

Watch the interview here: https://www.youtube.com/watch?v=HOMphC0g6F0 Listen to the audio only here: Intro and Some Exciting New Announcements! Welcome to the fifth episode of Season 2 of Lichen Sclerosus Podcast! Today we are continuing Jaclyn’s story. In last week’s episode, we discussed the beginning of Jaclyn’s journey with Lichen Sclerosus. Early in her journey, Jaclyn experienced painful sex and a lot of fear and anxiety concerning her body and her future. Despite having a sex therapist, a pelvic floor physiotherapist, and compassionate friends and family, she still felt very alone in her diagnosis. She longed for a community where she could find support and support others. In today’s episode, Jaclyn shares how she found community, connection, and friendship with others who had Lichen Sclerosus. She also shares her journey from painful sex to pain-free, pleasurable sex. Before we jump into part two of her story, I want to thank our sponsor,…
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