LS Zine Giving Voice to Patients Around the World

LS Zine Giving Voice to Patients Around the World

By Gina At this year’s (W)holistic Healing Summit, the Lichen Sclerosus Support Network released its first LS Zine! The zine gives voice to LS patients through art, poetry, interviews, and storytelling. It’s a creative, intimate look at Lichen Sclerosus through the eyes of people who live with it every day. I am honored to be one of the individuals featured in the LS Zine. Contributing two poems and being interviewed by a member of the project team reminded me of the importance of art and storytelling as a part of healing. The Importance of Sharing Our LS Stories Since being diagnosed in 2020 with Lichen Sclerosus, I’ve struggled with being able to put my experience into words.  Because LS isn’t widely known, I’ve spent a lot of time researching it and explaining it. I’ve read medical articles, listened to webinars, and tracked symptoms. I’ve shared the information I’ve learned with…
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What Can We Learn From Breast Cancer Awareness?

What Can We Learn From Breast Cancer Awareness?

Introduction Hey! Welcome to today’s episode. I’m so glad you are with us! Today is going to be a little different. In honor of World Voice Day, that is, a nationwide event dedicated to celebrating the importance/power of the voice in our lives, I have decided to use my voice to discuss the breast cancer awareness movement. Specifically, I trace the history of this grassroots movement from the 1960s to today and highlight what we can learn from them in raising awareness for Lichen Sclerosus. Please read until the end for some exciting news about the Lichen Sclerosus Support Network and how YOU can use your voice to help us out! Lichen Sclerosus is a Marginalized Disease Here on the Lichen Sclerosus Podcast, I talk about LS a lot! I mean, I have a whole podcast dedicated solely to this topic. However, LS is a marginalized disease that many medical…
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