diagnosis Archives

Biopsies and Vulvar Lichen Sclerosus ft. Dr. Babb

Feb

Biopsies and Vulvar Lichen Sclerosus ft. Dr. Babb

Introduction In today's video, Dr. Babb joins us to answer all your questions about vulvar biopsies for lichen sclerosus. We chat about: Is a biopsy necessary Areas or instances when you shouldn't biopsy What does "non-specific inflammation mean" and how to proceed if your results say this Second opinions on biopsy readings from another pathologist Whether mild or early LS can be caused via a biopsy and more! We learned a lot in this one and hope you will, too! *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate." https://www.youtube.com/watch?v=4sZPzBXUack Important Links Get…

Vulvar Biopsy Tips & Tricks to Manage Pain and Fear

Feb

By Jaclyn Lanthier

Jaclyn Blog

Vulvar Biopsy Tips & Tricks to Manage Pain and Fear

Introduction Vulvar lichen sclerosus (VLS) can be diagnosed clinically or with a biopsy. While a clinical diagnosis involves minimal pain, in that at most, your clinician will look at the skin and maybe move the skin around a bit, a vulvar biopsy can be painful. It can also be scary. So, to help mitigate some of the fear and pain that some folks experience, we wanted to put together a post with tips and tricks to help make the process as comfortable as possible. This will involve things you can do before, during, and after the biopsy. If you want a quick downloadable checklist with condensed tips and tricks, click here. Disclaimers *This post comes from lived experience from our VLS community and does not constitute medical advice. **This post contains affiliate links. We may receive a small commission for purchases made through this link to put towards our mission,…

4 Brave Lichen Sclerosus Diagnosis Stories. You are NOT Alone.

Jan

By Kathy

Kathy Blog

4 Brave Lichen Sclerosus Diagnosis Stories. You are NOT Alone.

Listen to the podcast here: Getting a Lichen Sclerosus diagnosis can feel like a very lonely experience. Even though your experience is unique, there are aspects of it that run through thousands of people's stories all over the world. It is my honor to share diagnosis stories from a few members of the Lichen Sclerosus Support Network (LSSN). Sharing these experiences is so important because it helps us know that we are not alone. Lyna's Lichen Sclerosus Diagnosis, United States I was diagnosed about two years ago, but have had LS for five years. I was seeing my gynecologist and my general practitioner for three years, telling them about my symptoms of intense itching, burning, and fissures. Every time I'd come into the office, though, for a checkup, my fissures would be healed and nothing would be visible. They started testing me for STDs, bacterial vaginosis, yeast infection, etc., but…

Dec

By Kathy

Podcast

How To Help Children Affected by Pediatric Lichen Sclerosus

https://youtu.be/n_kMuoUogL0 Introduction Today I am joined by the amazing dermatologist, Dr. Sandy Flann, who is an expert on pediatric Lichen Sclerosus. Dr. Flann was the lead clinician for pediatric dermatology at the Orpington Hospital in the UK. She now works for West Kent Dermatology. She has been treating patients for over 20 years. Yes, you heard that right, Pediatric Lichen Sclerosus! As we know, Lichen Sclerosus can affect anyone, of any age - children included. Unfortunately, there is a lack of research and resources for parents of children with Lichen Sclerosus. So, today we're going to find out about treatment, what to look for, the progression of symptoms, and how we can help our children become comfortable in their skin. This is an important episode if you have a child with LS, or if you plan on having children (as it’s important to know some of the warning signs to…

Nov

By Kathy

Podcast

My Lichen Sclerosus Diagnosis Story: Kathy

https://www.youtube.com/watch?v=goffDiGfeMI&list=PLdOEDZ7nvfRzBtrbx_D7nlJtMArclSm0c I'm so excited to bring back one of my favorite guests to discuss my Lichen Sclerosus diagnosis story. Lou! If you don't know who Lou is go back and listen to the episode "Lou's Diagnosis Story". She is so much fun and I could not wait to speak with her again. We go in-depth on my lichen sclerosus diagnosis story and discuss some of the decisions I made. My hope is that you learn something from my experiences or at the very least know that you are not alone. Please reach out: IG - https://www.instagram.com/lichensclerosuspodcast/ FB - https://www.facebook.com/lichensclerosussupportnetwork Don't forget to sign up for the virtual meetup.

Jul

By Kathy

Podcast

Lou’s Lichen Sclerosus Diagnosis Story

Our sister in Lichen Sclerosus, Lou, from Australia, shares her diagnosis story with us. Her trials span everything from doctors to mental health. Be prepared to smile and laugh because we had fun. And although our stories are individual to ourselves, we share many similarities. If you haven't heard my story yet, you can find it here lssupport.net/my-lichen-sclerosus-diagnosis/. If you need help dealing with appointment anxiety, check out the podcast episode “How to Overcome Appointment Anxiety so You Can be Your Best Advocate”. Share in the sisterhood of LS and stay tuned to the end for an exciting announcement. If you need help preparing for a visit with a practitioner, check out LSSN's guide for advocating for yourself. Don't forget to subscribe to be notified of the next episode, or find all the podcast episodes here for more education and diagnosis stories. Instagram @lichensclerosuspodcast Facebook @lichensclerosussupportnetwrok Resources: Video Lou shared…