4 Brave Lichen Sclerosus Diagnosis Stories. You are NOT Alone.

4 Brave Lichen Sclerosus Diagnosis Stories. You are NOT Alone.

Listen to the podcast here: Getting a Lichen Sclerosus diagnosis can feel like a very lonely experience. Even though your experience is unique, there are aspects of it that run through thousands of people's stories all over the world. It is my honor to share diagnosis stories from a few members of the Lichen Sclerosus Support Network (LSSN). Sharing these experiences is so important because it helps us know that we are not alone. Lyna's Lichen Sclerosus Diagnosis, United States I was diagnosed about two years ago, but have had LS for five years. I was seeing my gynecologist and my general practitioner for three years, telling them about my symptoms of intense itching, burning, and fissures. Every time I'd come into the office, though, for a checkup, my fissures would be healed and nothing would be visible. They started testing me for STDs, bacterial vaginosis, yeast infection, etc., but…
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How To Help Children Affected by Pediatric Lichen Sclerosus

https://youtu.be/n_kMuoUogL0 Introduction Today I am joined by the amazing dermatologist, Dr. Sandy Flann, who is an expert on pediatric Lichen Sclerosus. Dr. Flann was the lead clinician for pediatric dermatology at the Orpington Hospital in the UK. She now works for West Kent Dermatology. She has been treating patients for over 20 years. Yes, you heard that right, Pediatric Lichen Sclerosus! As we know, Lichen Sclerosus can affect anyone, of any age - children included. Unfortunately, there is a lack of research and resources for parents of children with Lichen Sclerosus. So, today we're going to find out about treatment, what to look for, the progression of symptoms, and how we can help our children become comfortable in their skin. This is an important episode if you have a child with LS, or if you plan on having children (as it’s important to know some of the warning signs to…
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My Lichen Sclerosus Diagnosis Story: Kathy

https://www.youtube.com/watch?v=goffDiGfeMI&list=PLdOEDZ7nvfRzBtrbx_D7nlJtMArclSm0c I'm so excited to bring back one of my favorite guests to discuss my Lichen Sclerosus diagnosis story. Lou! If you don't know who Lou is go back and listen to the episode "Lou's Diagnosis Story". She is so much fun and I could not wait to speak with her again. We go in-depth on my lichen sclerosus diagnosis story and discuss some of the decisions I made. My hope is that you learn something from my experiences or at the very least know that you are not alone. Please reach out: IG - https://www.instagram.com/lichensclerosuspodcast/ FB - https://www.facebook.com/lichensclerosussupportnetwork Don't forget to sign up for the virtual meetup.
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Lou’s Lichen Sclerosus Diagnosis Story

Lou’s Lichen Sclerosus Diagnosis Story

Our sister in Lichen Sclerosus, Lou, from Australia, shares her diagnosis story with us. Her trials span everything from doctors to mental health. Be prepared to smile and laugh because we had fun. And although our stories are individual to ourselves, we share many similarities. If you haven't heard my story yet, you can find it here lssupport.net/my-lichen-sclerosus-diagnosis/. If you need help dealing with appointment anxiety, check out the podcast episode “How to Overcome Appointment Anxiety so You Can be Your Best Advocate”. Share in the sisterhood of LS and stay tuned to the end for an exciting announcement. If you need help preparing for a visit with a practitioner, check out LSSN's guide for advocating for yourself. Don't forget to subscribe to be notified of the next episode, or find all the podcast episodes here for more education and diagnosis stories. Instagram @lichensclerosuspodcast Facebook @lichensclerosussupportnetwrok Resources: Video Lou shared…
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