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LSSN End-of-Year Wrap-Up and Hope for the Future

LSSN End-of-Year Wrap-Up and Hope for the Future

Introduction I can’t believe I’m saying this, but 2023 is moving quickly towards a close. With that, we at LSSN wanted to do a little end-of-year reflection on this past year and offer some hope for the future. We will review some of the key events and milestones from LSSN, as well as exciting LS research that came out and what to look out for from us in 2024. First Up, Some Gratitude First of all, we want to extend a tremendous and heartfelt thank you to our beautiful LS community. We appreciate all that you do to spread the word about us, telling your doctors about LSSN, liking and sharing our content, and donating. Kathy and I have the special honor of knowing many of you through the LSSN’s free bi-weekly virtual meetups. Kathy and I have been at it for a long time, with the first meetup in…
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Non-Ablative Laser for Lichen Sclerosus

Non-Ablative Laser for Lichen Sclerosus

Introduction In our last video, I discussed ablative laser and addressed the question of whether it was an effective treatment for lichen sclerosus. I noted, in that video, that there are different types of laser, so, for today's video, we are going to look at non-ablative laser for lichen sclerosus and whether they are an effective treatment option for LS. Be sure to like this video and subscribe to our channel for more educational LS content. Disclaimer This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. Importantly what I share is my interpretation of the science. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate. https://www.youtube.com/watch?v=noTt0b1imCo Important Links Get my FREE eBook on vulvar lichen sclerosus here Want to…
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Lisa’s Lichen Sclerosus Pregnancy Journey

Lisa’s Lichen Sclerosus Pregnancy Journey

Introduction Many folks have questions about lichen sclerosus and pregnancy. We address the science behind lichen sclerosus and pregnancy here. However, we want to address this from a more lived experience perspective today. A while back, I opened a call on my Instagram page for folks who were willing to share their pregnancy and lichen sclerosus experience. Today, I’m sharing Lisa’s LS and pregnancy journey to help raise more awareness about LS and pregnancy. Lisa and I met for a virtual call to chat about her experience. What follows is my re-telling of her journey.  Lisa’s first pregnancy Lisa had had LS symptoms since she was a little girl. However, back then, the doctors were clueless as to why she was always itchy and uncomfortable. Consequently, she had to just kind of live with these symptoms.  By the time she got pregnant at 25, she was symptomatic but still did…
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Ablative Laser for Lichen Sclerosus: Is It an Effective Treatment?

Ablative Laser for Lichen Sclerosus: Is It an Effective Treatment?

Introduction For today’s video, I am going to be discussing laser therapy for lichen sclerosus. Specifically, I'm going to look at an ablative laser for lichen sclerosus. In our next video, I will review non-ablative lasers for lichen sclerosus, because there are different types of lasers, and they do not all work the same. In this video, I explain what ablative laser therapy is, how it works, what to expect, how to prepare, cost, and frequency. Finally, I share what the science says about ablative laser and whether it is an effective treatment for lichen sclerosus. Disclaimer This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. Importantly what I share is my interpretation of the science. If this video was helpful to you, we’d love your support so we can continue providing important education like this.…
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Laser Therapy for Lichen Sclerosus: Experimental Treatment Series

Laser Therapy for Lichen Sclerosus: Experimental Treatment Series

Introduction Experimental treatments show promise in managing a condition but have not been thoroughly evaluated for efficacy, safety, and acceptability. Think of it like a non-approved treatment option; it may or may not work. In the context of lichen sclerosus, when discussing experimental treatment options, I mean interventions, medications, or procedures that have not yet shown to be fully effective as a treatment but show promise in helping with symptom management. In our last post, I discussed platelet-rich plasma as an experimental treatment for lichen sclerosus. Today, we continue the experimental treatment series by looking at laser therapy for lichen sclerosus. We often get questions about laser therapy for lichen sclerosus. For example, folks ask, "Someone on a forum mentioned they got laser therapy for lichen sclerosus; what is laser therapy anyway?" or "Is laser therapy an effective treatment for lichen sclerosus?". Another question I hear is, "Why has my…
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Fat Grafting for Lichen Sclerosus and Sexual Health

Fat Grafting for Lichen Sclerosus and Sexual Health

Introduction For today’s video, I am joined by the wonderful Dr. Aurora Almadori. Dr. Almadori talks to us about the potential for fat grafting to improve skin texture and sexual pain. We discuss what steroids can and cannot do, sexual health and lichen sclerosus, the difference between stem cells, PRP, and fat grafting. Then we dive into current research that is investigating the potential for fat grafting to improve skin texture and sexual pain. We also discuss the question of if fat grafting can increase the side of our labia minora and if reconstructive surgery is recommended for folks with vulvar lichen sclerosus. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate. *Disclaimer: This video is for…
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Platelet-Rich Plasma for Lichen Sclerosus: Experimental Treatment Series

Platelet-Rich Plasma for Lichen Sclerosus: Experimental Treatment Series

Introduction Experimental treatments show promise in managing a condition but have yet to be thoroughly evaluated for efficacy, safety, and acceptability. Think of it like a non-approved treatment option; it may or may not work. In the context of lichen sclerosus, when discussing experimental treatment options, I mean interventions, medications, or procedures that have not yet shown to be fully effective as a treatment but show promise in helping with symptom management. Some of these experimental treatments include platelet-rich plasma for vulvar lichen sclerosus, laser, and phototherapy. I often get asked about platelet-rich plasma for lichen sclerosus. For example, folks ask, “Someone on a forum mentioned platelet-rich plasma; what is this?” or “Is platelet-rich plasma an effective treatment for lichen sclerosus?”. In today’s post, I will take a deep dive into platelet-rich plasma by addressing what it is, what the procedure involves, and what the science says for vulvar lichen…
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10 Tips for Managing Itch with Lichen Sclerosus

10 Tips for Managing Itch with Lichen Sclerosus

Introduction Not everyone has itch as a symptom of lichen sclerosus. However, if it is a symptom of yours, you know how absolutely miserable this can be. For today’s video, I share 10 tips for managing itch with lichen sclerosus. Let us know in the comments what your favorite tips are. To be transparent, this post is not evidence-based. Instead, the tips I share are either tips that work for me or tips I have heard from others. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate. https://www.youtube.com/watch?v=O1MPYMTGg6g Important Links Get my FREE eBook on vulvar lichen sclerosus here Want to work with me (Jaclyn)? I offer 1:1 lichen sclerosus peer support calls. Learn more and book a…
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Clothing and Lichen Sclerosus

Clothing and Lichen Sclerosus

Introduction Lichen sclerosus can impact many aspects of our lives. For example, it can influence our relationship with ourselves, our relationships with others, our mental health, our sexual health, and even our clothing. Yes, lichen sclerosus and clothing can be a big deal for many folks. While it may seem simple, clothing and lichen sclerosus can affect our mental health (in addition to exacerbating symptoms). I will do another blog on the mental health impact of clothing and LS in early 2024; stay tuned. For today's post, I take a more practical approach to clothing and lichen sclerosus by addressing the questions, "What clothing is recommended for lichen sclerosus," "What clothing should I wear in a flare," and "Will I ever be able to wear my old pants again"? *I have no affiliate links in this post. Any brand I mention is either just one I like or one I…
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Barrier Cream or Emollient: Which is Better for Lichen Sclerosus

Barrier Cream or Emollient: Which is Better for Lichen Sclerosus

Introduction For today’s video, I discuss the difference between barrier creams, emollients, balms, and salves and which option is best for lichen sclerosus. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate. https://www.youtube.com/watch?v=6VO13qXjiME Important Links Get FemmeSense balm in Canada or the United States here and save 10% off of your order with code LABIALOVE23 Celina's code for 10% off of the Momotaro Salve with code JOYONJOYONJOY Get my FREE eBook on vulvar lichen sclerosus here Want to work with me (Jaclyn)? I offer 1:1 lichen sclerosus peer support calls. Learn more and book a call here. Sign up for LSSN's FREE virtual support meetups Subscribe to LSSN's newsletter here Subscribe to TLLC's newsletter here Timestamps for Barrier…
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