Videos Archives

Jun

Recurrent Tearing and Lichen Sclerosus

For today’s video, we are continuing our discussion of sexual health and lichen sclerosus and discuss recurrent tearing and lichen sclerosus. Tearing with sex may happen to some folks on occasion; for others, it can happen often. When folks keep experiencing tearing, this is called recurrent tearing. In this video, I talk about why LS skin is prone to tearing, which areas tend to tear more frequently, who tends to tear, and options to manage recurrent tearing. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation. https://www.youtube.com/watch?v=dLUer7VCDhc&t=6s Important Links Get my FREE eBook on vulvar lichen…

Discussing The Challenges of Lichen Sclerosus Research with Sophie Rees

Jun

By Kathy

Kathy Video

Discussing The Challenges of Lichen Sclerosus Research with Sophie Rees

The surprising roadblocks of Lichen Sclerosus research - and how they were overcome! In this episode, you will be able to: Delve into the challenges faced in Lichen Sclerosus research and the consequences for affected individuals. Realize the value of spreading awareness about vulval and vaginal conditions to empower women. Grasp the essential role education and accurate diagnosis play in successfully treating Lichen Sclerosus. Investigate the impact of diverse and inclusive language in Lichen Sclerosus research on patient well-being. Recognize the importance of increasing healthcare access and improving treatments for Lichen Sclerosus patients. My special guest is Sophie Rees. Sophie Rees is a medical sociologist specializing in qualitative and mixed methods research to explore patient experience. She works at the University of Bristol Trials Centre, conducting qualitative research within randomized controlled trials. Sophie is the Chief Investigator of the ESRC-funded project Living with Vulval LS: A Mixed Methods Study, using…

Jun

By Jaclyn Lanthier

Jaclyn Video

Exercise and Lichen Sclerosus, Part 2

Introduction For today’s video, we will be talking about lifestyle and LS. Specifically, we will be talking about lichen sclerosus and exercise. Can you exercise? How can you exercise safely with LS? I address these questions and more in this video. I share my top 5 tips for exercising with lichen sclerosus. After, I demonstrate a workout routine you can do standing up and lying down. This is great if you cannot sit for prolonged periods. However, if you are looking for a seated workout, be sure to check out my last video, where I demo a seated routine. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. Be sure to like this video and subscribe to our channel for more educational LS content. Important Links for Lichen Sclerosus and Exercise Get my FREE lichen…

Lichen Sclerosus and Exercise (+ LS Friendly Routine)

May

By Jaclyn Lanthier

Jaclyn Video

Lichen Sclerosus and Exercise (+ LS Friendly Routine)

Introduction In this video, we will be talking about lifestyle and lichen sclerosus. Specifically, we will be talking about lichen sclerosus and exercise. Can you exercise? How can you exercise safely with LS? I address these questions and more in this video. I share my top 5 tips for exercising with lichen sclerosus. After, I demonstrate a workout routine you can do completely seated. This is great if you experience a lot of tearing or are afraid to tear while working out. And if you're like, Jaclyn, sitting hurts, no way I can workout seated, don't worry, I got you! In my next video, I will demonstrate a standing/lying down workout that is great for folks who cannot sit for extended periods of time. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. Be sure…

May

By Jaclyn Lanthier

Jaclyn Video

Pelvic Health and Lichen Sclerosus

Introduction: Why You Should Care about Pelvic Health if You Have Lichen Sclerosus For today’s video, I am joined by Penny, a fellow LS warrior, and founder and CEO of the Pelvic Health Yoga Membership. The topic of this video is pelvic health and lichen sclerosus. Particularly, we discuss why it's so important for folks with LS to prioritze their pelvic health. Further, we share how the Pelvic Health Yoga Membership can help. Be sure to like this video and subscribe to our channel for more educational LS content. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. **This post includes an affiliate link. If you join the Pelvic Health Yoga Membership, I will receive a small commission which goes towards running The Lost Labia Chronicles. Watch the Video on Here https://www.youtube.com/watch?v=wV3gOJC4850 Penny's Links Join…

Unlocking Lichen Sclerosus Secrets: (W)holistic Healing Summit

Apr

By Kathy

Kathy Video

Unlocking Lichen Sclerosus Secrets: (W)holistic Healing Summit

When Kathy started her podcast, she never imagined it would grow into something so much more - the Lichen Sclerosus Support Network and their annual (W)holistic Healing Summit. Now, every year, Kathy and her community strive to make a brighter tomorrow for those facing the same struggle she once did. But what does the future hold for this amazing network? In this episode, you will be able to: Experience the transformational effects of holistic healing on lichen sclerosus patients at the inspiring summit. Dive into the world of comprehensive resources to fill the information gap and learn more. Elevate your network by participating in interactive sessions and listening to expert talks within the community. Unfold necessary discussions on sexual health, pregnancy, and menopause related to lichen sclerosus. Choose from free, basic, or all-access passes to get different perk levels “It's important that you guys get that information in a way…

Vulva Awareness and Appreciation with Jaclyn & Penny

Apr

By Jaclyn Lanthier

Jaclyn Video, Videos

Vulva Awareness and Appreciation with Jaclyn & Penny

National Vulva Awareness Day 2023 Why do we Have an Event for Vulvar Awareness and Appreciation Did you know 8 out of 10 folks with vulvas do not know all the names of their anatomy or what part does what? Yes, we have a major lack of vulvar awareness out there. Vulvar health is in trouble because of stigma and lack of awareness and education, and we want to turn that around! April 21st is National Vulva Awareness Day! National Vulva Awareness Day was created in 2022 by our dear friends and allies to the lichen sclerosus community, SweetSpot Labs, to bring awareness to a part of the body that is often overlooked and to break the stigma around the vulva. This year, we at Lichen Sclerosus Support Network wanted to hold an event on this special day to raise awareness and cultivate some vulva appreciation and love. Introduction In…

Vulva Checks for Vulvar Cancer: What to Look out For

Apr

By Jaclyn Lanthier

Jaclyn Video

Vulva Checks for Vulvar Cancer: What to Look out For

Introduction *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. *Content Warning* Please note that this video contains discussions of vulvar cancer and includes a traumatic story of a survivor's fight for a diagnosis. Mentions of sexual assault and trauma are also included. If this doesn't feel safe for you right now, please return when you feel more grounded. If you do watch the video, please be sure to do self-care afterward. In this video, I am joined by the beautiful LS and vulvar cancer warrior Yohanna Hoehler, founder and director of Vulvar Cancer Awareness Forum (more on Yohanna below). One of our first videos on LSSN's channel was vulva checks for lichen sclerosus. However, given that lichen sclerosus has a slightly increased risk of developing vulvar cancer, many folks started messaging us about what…

Discussing how steroids affect lichen sclerosus patients with Dr. Jill Krapf

Apr

By Kathy

Kathy Video

Discussing how steroids affect lichen sclerosus patients with Dr. Jill Krapf

Join me in the second part of this conversation with Dr. Jill Krapf, LS specialist; researcher; author; and educator, about her research review, "Topical Corticosteroids in the Treatment of Vulvar Lichen Sclerosus: A Review of Pharmacokinetics and Recommended Dosing Frequencies." When evaluating treatments for lichen sclerosis, one must consider all variables involved for optimal application. In this review article, the authors explore the science of the skin and the effects of inflammation, as well as the absorption of the medication. However, with limited research guiding us, the answer remains scattered and uncertain, leaving us with more questions than answers. In this episode, you will be able to: Discover the effectiveness of topical steroid treatments in managing Lichen Sclerosis. Understand skin absorption concerns and dosages when using steroid treatments. Uncover truths about the myths surrounding the long-term side effects of steroid use. Grasp the significance of adhering to proper steroid application…

Clitoral Myofascial Release for Lichen Sclerosus: Un-fuse Without Surgery

Apr

By Jaclyn Lanthier

Jaclyn Video

Clitoral Myofascial Release for Lichen Sclerosus: Un-fuse Without Surgery

Introduction *Disclaimer: This video on clitoral myofascial release for lichen sclerosus is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. For today’s video, I am joined by the brilliant Dr. Ashlie Crewe to talk all about clitoral myofascial release for un-fusing your clitoris with lichen sclerosus. We chat about myofascial release, how it's applied to the clitoris to help break up adhesions and scarring (aka fusing), when to avoid it, when you can expect results, and more. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today. https://youtu.be/QWyM1WFAY-Y Important Links from Lichen Sclerosus and Overactive Pelvic Floor Get my FREE lichen sclerosus eBook with over 60+ pages of…