Elevate the Voices of People with LS Through Global Research

To participate in this important research, Global Research on the Impact of Dermatological Diseases, please follow this link: https://globalskin.org/GRIDDStudy Stakeholder toolkit: https://globalskin.org/component/cont... A huge thank you and shoutout to the incredible work done by GlobalSkin for their initiatives to help create a better world for folks with dermatological conditions. Learn all about the Global Research on the Impact of Dermatological Diseases below https://youtu.be/hY3McSD6Zfg In today's video, I am sharing a very important survey for lichen sclerosus and dermatology conditions. It is free, takes about 20 minutes to fill out, and is available in 17 different languages. As a lichen sclerosus patient, you are invited to participate in ground-breaking research that is being conducted by the International Alliance for Dermatology Patient Organizations (also known as GlobalSkin) in collaboration with researchers at Cardiff University (UK) and University Medical Centre Hamburg-Eppendorf (Germany). What is the GRIDD study? The Global Research on the Impact of Dermatological Diseases (GRIDD) project aims…
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How to keep your quality of life with Lichen Sclerosus

How to keep your quality of life with Lichen Sclerosus

https://www.youtube.com/watch?v=VKZTAUKpNcw Introduction Hey, welcome. I’m so glad you are here with me at Lichen Sclerosus Podcast. In this episode, I decided to take a little break from the interviews, and just speak from my heart. That is, I want to talk about not letting Lichen Sclerosus control your quality of life; not letting it rob you of who you are or the way you want to live.  Lichen Sclerosus Support Network – A Huge Thank You To Our Sponsor! Before we jump into today’s episode, however, I want to thank our sponsor, Lichen Sclerosus Support Network (LSSN) for making this podcast possible. LSSN is helping get people diagnosed earlier and get the treatment and care they deserve. Be sure to follow them on IG and FB @lichensclerosussupportnetwork. The Ways in Which It Can Feel Like Lichen Sclerosus Controls Your Life During our last virtual meetup (get information on the meetups…
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