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New Research on Pregnancy and Vulvar Lichen Sclerosus

Introduction For some time, the medical community believed that vulvar lichen sclerosus (VLS) primarily affected children and post-menopausal people. This meant younger adults were often left out of VLS conversations and research. Thanks to recent advances in VLS research and loud advocates for the VLS community, we now know people of all ages can be affected by VLS. At LSSN, we noticed a trend amongst newly diagnosed younger adults–a worry about pregnancy and vulvar lichen sclerosus. And we get it: a VLS diagnosis can be scary if you are pregnant or thinking about getting pregnant, especially since there is not a lot of research and information on this topic. We published two blog posts to help raise awareness about pregnancy and vulvar lichen sclerosus and to help bring more information…
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First time impressions…

This is my first time attending and I am so impressed with how informative and empowering this has been. The speakers have been phenomenal.
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Best year ever!

The conference this year was amazing. It was so nice to see so many familiar faces and meet so many new friends. I have learned so much. The speakers have been outstanding. This has been so much more than I ever could have dreamed.
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Education to the MAX!

I have learned so much. The speakers have been outstanding. This has been so much more than I ever could have dreamed.
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How the summit transforms.

I don't think you'll ever know what this summit meant in my journey, I'm still processing everything, but I can say a seed of acceptance was planted and that is huge, beyond words. I love you all and I'm deeply grateful for all you folks do!
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One-of-a-kind Experts!

Stellar, passionate, beyond knowledgable — everything we all wish we had in a gynecologist, sex therapist, vulva specialist, menopausal expert!
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Does Vulvar Lichen Sclerosus Affect the Bladder?

Introduction Getting a vulvar lichen sclerosus (VLS) diagnosis can be hard. It can feel both validating and terrifying. After a diagnosis, opening up your laptop and getting to Googling is not uncommon. Perhaps you join an online support group to help you learn more. However, amidst all this learning, you start to wonder about VLS and its connection to other symptoms you experience. For example, some folks want to know if there's a connection between VLS and various autoimmune conditions. Others want to know if VLS can affect your gastrointestinal tract. Another common connection-based question we hear and see a lot is, "Does vulvar lichen sclerosus affect the bladder?". If you've ever wondered about that, this is the post for you! We address this question and share what you need…
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Anti-Fat Bias, Misdiagnoses, and Vulvar Lichen Sclerosus

Introduction Content Warning: anti-fatness, anti-fat bias, weight loss, medical abuse, and medical neglect.   Misdiagnoses are common in the vulvar lichen sclerosus (VLS) community. Many of us, myself included, endured years of pain and suffering, only for healthcare providers to dismiss us. Many factors contribute to misdiagnosis. For example, a lack of provider education about vulvar lichen sclerosus can lead to misdiagnoses; lack of awareness may be another factor. Those two points get a lot of attention when it comes to misdiagnosis. However, something that gets less attention is discriminatory factors that can lead to misdiagnoses. Today, we have the honor of featuring a guest post by Chris Barbieri on the topic of anti-fat bias, misdiagnosis, and vulvar lichen sclerosus. Anti-fat bias is a form of discrimination that involves prejudiced attitudes…
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How to Treat and Manage a Vulvar Lichen Sclerosus Flare

Introduction For today’s video, we are going to discuss how to treat a vulvar lichen sclerosus (VLS) flare, according to Dihn et al. (2016). I also highlight what I (Jaclyn) do when I'm in a flare and what others in the VLS community have found helpful. Be sure to like this video and subscribe to our channel for more educational LS content. If this video was helpful to you, we’d love your support so we can continue providing important education like this. Make a donation today at https://lssupportnetwork.org/donate. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. https://www.youtube.com/watch?v=ufIzSyr8jg0 Important Links Get my FREE eBook on vulvar lichen sclerosus here Want to work with me (Jaclyn)?…
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Rori Huynh

My name is Rori, and I have had LS since I was 4 years old. I wanted to not just teach about this rare condition, but also give girls just as young as I was, to have a platform where they can speak to other girls like them. LSSN took on my mission with full force!
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Jaclyn Lanthier

Jaclyn is the founder of The Lost Labia Chronicles - a knowledge-sharing hub for evidence-based lichen sclerosus information and support. She is a patient advocate, involved in many advocacy training programs. Jaclyn sits on the board of Lichen Sclerosus Support Network as secretary of the board, content creator, meetup facilitator, and speaker. She is actively involved in several vulvar lichen sclerosus studies across the globe, including research at the University of British Columbia and the University of Nottingham.
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Andrew T. Goldstein

Dr. Andrew T. Goldstein, the Director of the Center for Vulvovaginal Disorders (www.vulvodynia.com)  is a leading authority in vulvovaginal disorders, including lichen sclerosus. His distinguished career spans clinical practice, research leadership, and a commitment to global women's health.
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Thank you! You will not receive any more emails about Wholistic Healing Summit 2024. Here's some other information you may be interested in. Our Most Recent Posts: Our Most Popular Posts:
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Does Trauma cause Lichen Sclerosus?

Introduction A lichen sclerosus diagnosis can be a heavy thing to process. It can bring up a lot of negative emotions, thoughts, and feelings, such as anger, frustration, fear, and more. As folks process their diagnosis, some begin to wonder what caused their LS. In fact, we frequently hear folks express wanting to know what caused this or share their theories on what caused it. Some of those theories involve past trauma as the causal factor behind LS. Today, we will be addressing the question of whether lichen sclerosus is caused by trauma. If this does not feel supportive to you, please feel free to skip this blog and return to it at a time that feels right and safe for you. Disclaimers *This post is evidence-based; I draw on…
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Julia Rebecca Miron

Julia has been practicing mindfulness since 2009 and teaching mindfulness since 2015. She's recently been qualified by Brown University to teach the Mindfulness-Based Stress Reduction (MBSR) program. She's also a Writer and has been featured in Chicken Soup for the Soul. She’s always had a desire to make mindfulness less intimidating and more accessible. Her approach is to take the pressure off of being a perfect meditator, and she encourages being a messy meditator.
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Harriette Scapero, MD, FPMRS

Dr. Harriette Scarpero is a board-certified fellowship trained urologist as well as board certified in Female Pelvic Medicine and Reconstructive Surgery (FPMRS). Dr. Scarpero is also a nationally recognized expert in FPMRS and specializes in the urologic care of women. Dr. Scarpero received her B.A. in English from the University of the South in 1989. She graduated from Louisiana State University School of Medicine in New Orleans, LA and completed her General Surgery Internship and Urology Residency at LSU Medical Center. She served as Chief Resident at LSU/Ochsner from 1999-2001. Dr. Scarpero did a fellowship in Female Urology and Voiding Dysfunction at New York University School of Medicine. In 2004, she became Board Certified in Urology. Dr. Scarpero was previously an Associate Professor of Urologic Surgery and Residency Program Director…
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Tara Allen, MD, FPMRS

Dr. Tara Allen has been in private practice in Nashville since 2008. She completed her undergraduate training at the University of Southern Mississippi followed by her Doctorate of Medicine at the University of Mississippi in Jackson. Both her general surgery internship and urologic surgery residency were completed at the University of Arkansas in Little Rock. Dr. Allen is board certified by the American Board of Urology as well as Female Pelvic Medicine and Reconstructive Surgery (FPMRS). Dr. Allen’s scope of practice includes general urology with a focus on female urologic issues and sexual health. She was drawn to Nashville due to the small number of female urologists in practice in Middle Tennessee. She offers laparoscopy, robotic surgery, treatment of pelvic floor prolapse and urinary leakage, Interstim® neuromodulation for bladder dysfunction,…
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Michelle Fraser

Orthopaedic and Pelvic Health PhysiotherapistCertified Yoga InstructorBA, BScPT, FCAMPT, CYT, MEd Michelle is a pelvic health advocate and educator dedicated to helping people of all genders manage pelvic floor dysfunction. With a focus on lichen sclerosus, trauma, global health, and LGBTQ+ inclusivity, she empowers individuals to reclaim their pelvic well-being. Michelle shares her knowledge with physiotherapists in Canada and internationally, promoting trauma-informed and LGBTQ+-affirming practices.
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Do you Need a Compounding Pharmacy for Lichen Sclerosus?

Introduction Today, we will address a question we frequently get via email and at LSSN’s virtual meetups. That is, do you need a compounding pharmacy for lichen sclerosus? Some of you may already be familiar with compounding pharmacies and the concept of compounding medications. Others may be hearing this for the first time. Either way, this conversation usually spikes a lot of intrigue and curiosity about whether or not you need one. In this post, we will address: What is a compounding pharmacy What kind of medications are offered at compounding pharmacies Benefits of compounding pharmacies Cons of compounding pharmacies Do you need a compounding pharmacy for lichen sclerosus When should you consider a compounding pharmacy for lichen sclerosus and, Important notes about compounding medications Disclaimers *If this post is…
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