Looking at Lichen Sclerosus Diet Studies for Hope and Guidance

Looking at Lichen Sclerosus Diet Studies for Hope and Guidance

Lichen Sclerosus diet studies are few and far between but our guest Erica Eberl went on the hunt so we can discuss what we can learn from the science. Erica Eberl is a 23-year-old dietitian and LS warrior who was diagnosed less than a year ago. She has used her skills and resources to research LS and diet and shares her findings to help others. After Erica Eberl was diagnosed with LS, she did extensive research on Lichen Sclerosus and diet and found three studies that she was able to share. One LS diet study from Italy found that avocado and soybean extract cream and a dietary strategy improved symptoms in women with mild to moderate LS, although it wasn't as effective as corticosteroids. A case-control study from Italy found that increased consumption of carotenoids (precursors to Vitamin A) was associated with less LS. Lastly, a study from Portugal found…
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Burnt – Stop Ignoring my (Vulvar/Pelvic) Pain

Burnt – Stop Ignoring my (Vulvar/Pelvic) Pain

Introduction Hey, beautiful soul. Today we have a guest post by the amazing Sabrina Sarro (they/them). Sabrina is a lead psychotherapist and clinical supervisor at Gray Matters, in New York City. They have their Master’s in social work (MSW), focusing on advanced clinical practice and intersectional social issues. Additionally, they MFA (Master's in Fine Arts) in Nonfiction and are a certified clinical trauma professional and are certified in DBT. They are also a PCOS and vulvovaginal health specialist who helps folks with chronic pelvic pain, painful sex, and other genital health conditions. Sabrina is especially passionate about creating a safe container for people of color (POC), queer, and TGNC (transgender and gender non-conforming) folks to explore their physical and mental health in order to heal. Learn more about them by clicking here. Sabrina lives with vulvar and pelvic pain and is still searching for a diagnosis, after seeing over 20 doctors…
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Overcoming Health Anxiety from Lichen Sclerosus

Overcoming Health Anxiety from Lichen Sclerosus

Introduction In this video, we are going to discuss health anxiety from lichen sclerosus. If you have health anxiety or aren't sure what it is, be sure to watch this video. I explain what health anxiety is, the three main defining characteristics, and how it can manifest and impact your quality of life. I share how your health anxiety may affect your LS. Finally, I speak from lived experience on what my journey on overcoming health anxiety from LS looked like and more! Be sure to like this video and subscribe to our channel for more educational LS content. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. https://www.youtube.com/watch?v=a8B9i3LQOZY&t=3s Important Links from to Health Anxiety from Lichen Sclerosus Get my FREE lichen sclerosus eBook with over 60+ pages of evidence-based information and support guidance here.…
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The 4 Important Elements to the Right Lichen Sclerosus Support Group

The 4 Important Elements to the Right Lichen Sclerosus Support Group

No one support group is created for everyone. Finding the right Lichen Sclerosus support group for you can take trial and error. We hope to give you some food for thought before you jump into the next one to ensure it’s the right fit. Do you need a lichen sclerosus support group? We run through many emotions when we’re first diagnosed with Lichen Sclerosus. Many people report feeling shock and disbelief that they have an incurable condition. Others feel frustration because they had to wait so long before getting real answers. Some even blame themselves or wonder if they could have prevented this. All of these emotions are valid. We all go through them. But no one should have to go through them alone. For a long time, I struggled unknowingly by myself. The thing about emotional and mental health is that sometimes you may not even know how much…
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Is the Autoimmune Protocol the Lichen Sclerosus Natural Treatment for You?

Is the Autoimmune Protocol the Lichen Sclerosus Natural Treatment for You?

Have you ever wondered if there was a Lichen Sclerosus natural treatment? Could you actually manage this condition with diet and lifestyle? Angie Alt, a social activist and researcher, takes on the challenge of managing her Lichen Sclerosus for 9 years through the Autoimmune Protocol, an ambitious goal that leads to a journey of self-discovery and healing. In this video, you will learn:1. How Angie Alt transformed the Paleo Diet into the Autoimmune Protocol to manage her Lichen Sclerosus naturally for 9 years.2. What is the Autoimmune Protocol and how can it help those living with Lichen Sclerosus?3. How to navigate the Autoimmune Protocol in a sustainable way with the help of Angie Alt’s program. https://youtu.be/6cKD3IhFOxw Resources:If you want to work with Angie or become an AIP-certified trainer, so you can use this Lichen Sclerosus natural treatment effectively, check out the links below. www.autoimmunewellness.com sadtoaip.com for AIP coaching program www.aipcertified.com Lichen Sclerosus…
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What I Want Doctors To Know: LS Edition

What I Want Doctors To Know: LS Edition

Introduction Many folks with lichen sclerosus have complicated relationships with their doctors and healthcare providers. If you ever felt gaslit or dismissed by your doctor, you are not alone. Similarly, if you have trust issues with doctors, you are also not alone. In this blog post, I am writing from the heart about what I want doctors who diagnose and treat lichen sclerosus to know. It is a call to do better and show up with compassion and empathy for your patients.  Of course, there are some wonderful providers out there who have a wealth of knowledge and who treat their patients as fellow human beings with respect and dignity - thank you to those of you already doing this work. Stay in the Loop! Never Miss a Blog Post, YouTube Video, Podcast Episode, Event, or Product Launch by Getting on Our Newsletter! Sign up to LSSN’s monthly newsletter here.…
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Vulva Checks for Lichen Sclerosus

Vulva Checks for Lichen Sclerosus

Introduction to Vulva Checks for Lichen Sclerosus In this video, we are going to discuss vulva checks for lichen sclerosus. I start by discussing why they are so important. I share what you need to do one, how to do one, and what you need to look out for in terms of lichen sclerosus. Additionally, I review two ways to document important changes and what to do if you suspect your LS is progressing. Be sure to like this video and subscribe to our channel for more educational LS content. *Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. https://www.youtube.com/watch?v=E9fnXDh5up4&t=5s Important Links Get my FREE lichen sclerosus eBook with over 60+ pages of evidence-based information and support guidance here. Join LSSN's FREE LS virtual support meetup here. Are you looking for more individualized support? I…
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4 Brave Lichen Sclerosus Diagnosis Stories. You are NOT Alone.

4 Brave Lichen Sclerosus Diagnosis Stories. You are NOT Alone.

Listen to the podcast here: Getting a Lichen Sclerosus diagnosis can feel like a very lonely experience. Even though your experience is unique, there are aspects of it that run through thousands of people's stories all over the world. It is my honor to share diagnosis stories from a few members of the Lichen Sclerosus Support Network (LSSN). Sharing these experiences is so important because it helps us know that we are not alone. Lyna's Lichen Sclerosus Diagnosis, United States I was diagnosed about two years ago, but have had LS for five years. I was seeing my gynecologist and my general practitioner for three years, telling them about my symptoms of intense itching, burning, and fissures. Every time I'd come into the office, though, for a checkup, my fissures would be healed and nothing would be visible. They started testing me for STDs, bacterial vaginosis, yeast infection, etc., but…
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How Nutrition Therapy Could Help Manage Your Lichen Sclerosus

How Nutrition Therapy Could Help Manage Your Lichen Sclerosus

Can nutrition therapy help manage your Lichen Sclerosus? After Heather Cooan was denied care for 25 years and her Lichen Sclerosus developed into Vulvar Cancer, she fought back, healed herself, and now, as a certified nutrition therapy practitioner, she's helping others balance their hormones, identify triggers, and find hope to heal their LS.In this video, you will learn:1. What is the difference between a nutrition therapist and a dietitian?2. What is leaky gut, and how can it cause auto-immune diseases?3. What are the six buckets of triggers that can cause auto-immune diseases? Nutrition therapy is a way to look at all the factors in your diet, environment, and lifestyle to manage your Lichen Sclerosus. While challenging, it can also be rewarding. https://www.youtube.com/watch?v=dXNu_ptApCA Resources: Find out what buckets are triggering your health issues by taking Heather's test at https://heathercooan.com/lspodcast.  Dive deeper with Heather in our Holistic Healing Summit Replay video: Troubleshooting Your…
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The Importance of Feeling Heard

The Importance of Feeling Heard

Introduction Hey, beautiful soul. It’s Jaclyn from The Lost Labia Chronicles in partnership with Lichen Sclerosus Support Network (LSSN). Yup! If you follow me on social media (@thelostlabiachronicles) or are on my newsletter, you already know that I have partnered with LSSN to help reach more people with lichen sclerosus content and education. My goal in creating TLLC was always to help support folks in their LS journey by providing evidence-based information and to help folks with LS feel heard and supported. I was a one-woman team from 2021-2022.  However, I believe in joining forces with other powerful LS warriors in the LS community, we can reach even more people and have a deeper impact. Thus, I have partnered up with LSSN and will be creating content on LSSN’s website. This way folks with LS don’t have to go through multiple websites to find information and support resources; everything you…
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